Help please

I agree with, and have suffered, through the same things! Periodically over 3 years I have noticed some improvement, but then that has subsided. Whenever I taper successfully I am hopeful and then suffer these same symptoms/side effects again.

i don't think it has anything to do with "trying"....PMR runs its own course...just stay with it😊

Yes to 1-6 although my forgetfulness is compounded by ADHD.The other day i could not remember if it was fri or Sat and I refused to look it up until I could remember. It was just the early fogginess I get from all the meds or from not having meds yet. Goes along with the pain I have until I get moving and pred on board. I usually take the Pred and go back to bed for a couple of hours. That works. 

Housework? I need a man like that! I haven't been able to walk yet. Down to 13.75 from 20 a month ago. May be too fast because I had a hard day today (grandkids overnight, age 6 and 8 active boys), so took 15 this morning...didn't help much. I actually feel better as I reduce the dosage which tells me it may be pred reactions.  We shall see. Fatigue is my biggest problem, and I keep the house at 65 cause even doing dishes makes me sweaty and exhausted.  So, hang in there. They tell  me it gets better. Let's hope

They all sound very familiar!

Diagnosed Dec 14 aged 51 (just), currently on 5mg pred, MTX and Tocilizumab (Actemra)

1. Yep!

2/ I had about 6 months off work and then did a return to work program for the following few months. Been back full time for nearly a year.

3. Yup, same.

4/ Yep. you can never tell if it's going to be a good day or a bad day.

5/ Yup

Advice: read this forum!!

Hi George

just going to say yes to the brain fog but as your steroids come down it does get less, I understand about work I have been ambling along for the last 4 years all I did was sleep when I get home, sleep I cannot advise I sleep like a log, the walking will always do you good if you can manage it just remember to always rest after. As for the housework my job is caretaking very physical job sweating buckets but I think it has kept me quite fit I sometimes wonder what size dress I would be if my job was not  so physical. I have had pmr for 4 years just been told it's gone but adrenal glands working at 70% so my next challenge is to get them working, so good look but just remember t listen to your body when it wants rest then rest 

           Good luck

Hello George, I would be very surprised if PMR is the reason for you forgetting things, not trying to be unkind, but I would caution you to get checked for dementia or alzheimers just as a safety measure.  I am 83 and I have PMR, had lots of problems with it, but none that made me forget things.   I empathize with you, it is indeed difficult to get a good nights' sleep.  I have a lot of night sweats, do you? I am not sure if it is the prednisone causing that problem or something else.   Although I put up with plenty of pain over the past two and a half years, I am also suffering the problems associated with tapering off prednisone.  One needs to have lots of patience.  Hope you feel better soon. I never heard of PMR until I was diagnosed with it, then I hear so many with it, so I know I am not alone.