Help please withdrawal from Bilicor /Bisporolol ????

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Hi guys, I'm a 38 year old female with pcos. Have my own business which is extremely stressful and was dealing with lots of legal issues this Jan 2020 when I went to the GP for a kidney infection. Doc picked up racing pulse and increased blood pressure and put me on Pearinda (not sure dosage) and Bilicor /Bisporolol 2.5 mg as well as Lipitor 10mg. Well 2.5 months later I managed to change my eating and exercising and lost 6kg and after exercising one day felt so bad and faint. I can't even type about this experience and I feel so ill and afraid to go through the same events. Well due to Covid 19 hubby insisted on not taking me to hospital which was the correct thing to do. I waited until the next day to see the doc again and she said that my blood pressure and pulse was low due to the tablets and the weightloss. So she asked me to stop all tablets immediately. The next day April 8 2020 I felt the worst I have ever felt in my life. I had anxiety, panic attacks lasting for hours, dry mouth, shaking hands, pain in my hands and cold hands and feet. My stomach would be sore and I would run to the toilet every few minutes, ulcer pain, gas. Went back to the doc and she said it's anxiety and gave me tablets for stress. I felt like I was dying.

That night I couldn't even put my head on the pillow I couldn't breathe and needed the room windows all open and the dry mouth and racing heart was horrible. Went back to the doc and she said she couldn't do anything more for me and I needed to go to hospital. And with COVID 19 the hospital close to home was closed and not accepting patients. Doc also said there's no such thing as withdrawal from Bisporolol as I did some research and found this forum. I'll never go back to that Doc again and will tell everyone of my experience. She's not a physician or specialist and put me on such dangerous pills. I went through withdrawal at home with my parents and hubby taking care of me.

I read here many of your stories which helped me get through the hardest time of my life!!! I read that magnesium helps, short walks and plenty of rest and water. Did all that and it certainly helped. Today is exactly 1 month later since I stopped the tablets, and although it's gotten so so so much better and I feel human again, I still experienced slight anxiety last night with a bit of dry mouth as I couldn't lay flat on my pillow again and barely slept. I tried starting exercising again however I'm terrified of feeling like this again. What I did notice with bisporolol it hides or masks all the pain you feel and once off the tablet, it all comes flooding back at one time. Now I'm battling with a pinched nerve causing pain in my neck and arms as well as severe ulcer pain with loads of gas. Also when I feel like going to the loo, I also feel a panic attack coming on but it's not as bad as the first few weeks.

My question for you guys who went through this, how long will it take for me to be back to normal totally. I'm 38 about 70kg, 1.6m, been on this for roughly 2 months. I meditate every day, take vitamins and magnesium, slow short walks, eat fairly healthily now. I rest quite a bit as well. Would love your support and advice please? TIA

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  • Posted

    Hi,

    I was unfortunately on Biso 15 months marked by:

    • nightmares
    • back pain
    • anxiety
    • WORST OF ALL SHAKING when its time for new dose

    In my experience looks like Biso "locks in" and "changes" how CNS and periphery nervous system communicate via various synapses, ions and channels which prevents it from being functional like it used to. As a result some get nervous system that is slowly degrading and dying so called nephropathy and it shows in blurred vision, balance problems, pain, SHAKING, WEAKNESS etc. Ofc, the more time you were on Biso and bigger the dose THE WORSE it is. Doctors will ofc convince you its OK for 35 year old to have all those symptoms, testament to just how far Hipocratic oath has come nowdays.

    Any way, easily biggest mistake in my life, better would have been to spent jail time.

    Tried to ween off but impossible. Anxiety, all sorts of pain, SHAKINESS are just to horrible to bear. Its like a doomsday machine. As added sound of horror you can even hear your heart beat in the brain but as irregular and distorted sound. Biso will simply NOT ALLOW anyone to tamper with its now properly "locked in" CNS and periphery neuro vegetative systems. You SIMPLY CANT "UNLOCK IT" to become normal again.

    BUT, there was a solution in my case. Switched to Nebivolol it UNLOCKED IT at lowest dose 1.25 mg and in moments I started to feel much better. Its than possible to ween off Nebivolol if you wish but I don't have any side effects any more and Nebivolol as beta blocker does provide support against arrhythmia AND heart attack as is vasodilator so I stayed on 1.25 mg.

    Regards

  • Posted

    Have any of you experienced long-term withdrawal effects from Bisprol? For example, strings in the eyes when I look forward. I feel like there are spider-shaped strings while looking with fluttering of the eyelashes.

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