hELP REALLY cONSIDERING DOING MYSELF IN

:D Hi Sue its lovely to hear from you. Im glad things seem to be going ok for you...and although still not perfect atleast you seem in yourself alot more positive and cheerful which is GREAT :D

I am ok thanks...im just waiting to go to Rheumatologoly on the 2nd and 19th october...im also waiting for an appoitment to see the Neurosurgeon....not quite sure if i have spelt those correctly so i apologise if not!!

After a rather heated appointment with my consultants senior nurse over the treatment and handling of my injury my consultant has now requested i have another MRI THANK GOD!!

They are FINALLY also going to look into the problems i have suffered with my bowel and bladder since the accident....i mean it only happened nearly 2 yrs ago now so thats big of them hey!!

Im hoping they get something sorted as i have yet another urinary tract infection...and my bowel is still experiencing problems...which im sick of them ignoring!!

Like you im still using my crutches everywhere i go...although that said it is better then using my wheelchair so i should not complain!!

All that aside though my BEAUTIFULL ANGELS and HUSBAND as usual are being FANTASTIC...its so hard now they are back at school...and work as i miss them all SO MUCH!!

Although i have the care of my best friend and brother now during the days when i need them and then my husband at night so im really very SPOILT ha!!

It really is SSSSOOOOOO GOOOOOOD to hear from you and to hear that your life is going ok. I still always hold you in my prayers and will also pray about your results and that you get positive news as you really do deserve it Sue.

Please continue to keep in touch and let us know how things are going. I hope your family are all keeping well

Take care...and remember anytime you want to chat IM HERE!!

Best wishes Jaimie x x x x x

Ps...Hello to everyone...i hope your all doing ok...your all in my prayers and thoughts. God Bless. x x x

HI there Sue, Jamiee and everyone

So glad you are getting things sorted out xxxxx about time Sue xxxx

Jamiee I hope the Rhuemotologist and Neurosurgeon appointments go well as I have said this to many people the best thing to do is write a diary and then if you show this to either one of the Specialists then you will not miss any points you need to cover? as I have been in this situation and I have forgotten what I should have mentioned and then when I have realized it is too late :roll: and at least with the MRI it will make sure that you get facts rather than \"it could bes\"

I have been in so much pain again and it is driving me nuts, I have changed doctors surgery today and so I am hoping they are a better standard than the present one I am in???? My mum and other members of my family go there so they seem to be happy..... we will see????

I do hope everyone is having a nice day today xxxxx gentle hugs to you all xxxxx

Hi SES

I was wondering how you were doing and hoping that your silence was because you had gone off on an exotic holiday or something, rather than you being in a lot of pain again. Maybe it was both?????

Me, I have had no holiday this year (or last year) because all of my annual leave has gone on either covering some sick leave, which is otherwise unpaid, or my endless medical appointments. 25 hospital appointments/visits in the last 8 months and that doesn't include GP visits on top!! Over 4 hospitals. And another 5 booked in for the next 6 weeks. People think it's great I am back at work despite everything but it is a bloody hard slog, particularly with no annual leave. oops that is my moan over and done with!!!

Good luck with the new GP. It is so important to have a good one. The bunch at my practice are useless and clearly totally out of their depth with my problems. Makes me wonder what on earth we are paying them £100,000++ a year for. Is the new practice quite near to you?? Or have you been naughty and used your mum's address, who lives out of area?? Nah, you don't seem like the naughty type!!! Darren who used to write here said (I think) that it could take up to two months for the new GP to get your records, even in this day and age of computerisation. Maybe the NHS could buy a load of tortoises, strap the records to their backs and turn them into mini couriers. I'm sure they would get there quicker than the current arrangements. Shame you're not allowed to be trusted to take them to the new practice.

Is the worse of the pain in your hip still??

Best wishes

TFU

Hi TFU,

No I haven't been on holiday, but would love to :oops: financially unable to anyways as my hubby works and due to my disability I do not as I lost my job in march this year as I couldnt climb the stairs basically and due to the lack of concentration due to the fibrofog I decided it wasn't worth the stress and pain as I had to do courses once a month to keep up with the FSA regulations..............and so I am a homeworker as they say?

There is apparently a new system I have heard that the government has changed the ruling about the catchment area criteria and so this has finished, it is the patients choice now where they want to go, so you should try and see if you can change if your not happy with your present doctors? I changed due to the doctor I had, he gives you co-codamol before you have said what is wrong!!!! and he is not thorough one bit, the amount of story's I have heard, quite scary how he deals with patients :oops: so glad I have been able to change :D

Anyway I do hope you are having a good night, and I hope your not in pain......... hope you are having a better night than me?

Yeah the pain in my hip is terrible....... I kind of lean forward and I am in agony.... certain movements are agonizing anyway just got to grim and bear it a the meds are not working that well........ due to the osteo I think :oops:

Gentle hugs xxxx

Hi SES,

What were you doing careerwise before you had to give it all up? Maybe you could go back to it one day, if they could sort your pain out, even if it is only part time.

I think working full time is too much for me now, but with no support (I don't have a partner) and the mortgage company virtually banging on my door, because I got into serious arrears when I was sick before I don't really have much choice. I am physically exhausted and the infection(s) that won't go away despite 5 courses of antibiotics in 2 months doesn't help. It's at times like this that I wish that I had a pertner to take care of me, but everything has to be such a bloody battle.

I had hoped you had gone away on an exotic holiday......at least one of us would have been somewhere and I could do with some good news for a change even if it isn't my own. I pin all my hope on winning the lottery. Not that that gives me much hope, but just for those few hours I can dream. And if I win big I shall whisk all the regulars here of to New York to see all the finest doctors and to have every test done under the sun. And none of this waiting around for weeks on end either to get the results??? On that note I am going to bed to dream about my numbers coming up!!!

Hope you get some quality sleep.

Best wishes

TFU

Oh bless you hun,

Yeah I would take everyone on a cruise :lol: and pampered rotten with massage palours, and all other treatments we all deserve and yeah I can only dream :roll: I worked in the banking industry and so I I feel now due to the pain I cannot do anything which has concentration or anywhere with stairs (like my ex employer had 5 flights) and due to the fibro I go kind of blank(fibrofog) and the Osteo in my hip, the last time I went to work I walked up the stairs and I was numb all down one side, think this was the ddd too ???? I loved my job too but I thought I could have got the sack if i didn't do my job properly? FSA rules were a nightmare too.

I have been in so much pain, and have had around three hours sleep due to this....... my right hip .....nightmare I cant move forward slightly as I get pain it is awful....... meds not working neither :oops: even though I have taken the Tramadol? the pain is in the back of the hip going around to the front I am considering going to the hospital if these meds do not kick in :roll: as it is driving me nuts!!!!I have just changed doctor too so I cannot go there? this pain I guess is due to the Osteo-arthritis?

I was up last night as mentioned, at least I got something constructive done as I contacted my MP, I have been paying Council tax since 2002 with no help what so ever!!!! and recently I had found that I am eligible for council tax benefit???? so cut a long story short I have over paid around £4000 as in general my financial situation has more or less the same, the only thing is my hubby goes to work and I am now classed as disabled!!!! So I have asked for some refund as it is my right as I shouldn't have paid it!!!! The Council tax people said I \"knew\" I was eligible as I applied for it in 2005, but as they wanted further information I thought I was not eligible so as I have not heard from this Organization I have asked my MP to see what she can do???? The point is I had Bailiffs round and everything due to struggling paying for this!!!!! another nightmare :twisted: but at least due to the pain I finally did contact the MP as I think you can be more angry LOL due to the pain so your wording may be more to the point eh?

Anyway Jennyz/TFU I do hope you are having a good day and I do hope you have not over paid your council tax too :lol:

Gentle hugs xxxxxxx

Hi SES

Sorry to hear that it was another night of pain for you. It just seems ridiculous that someone somewhere doesn't take overall charge of your case, review your symptoms as a whole and treat you accordingly. It does all sound so bitty and as we always end up saying on this site it does seem that you need to start banging on a few doors. You cannot be reasonably expected to live your life with any sort of quality as things stand at present. It sounds like a living nightmare. And if the meds aren't working either, then all the more reason for someone somewhere to get you a thorough review. It makes me so cross. And you are so young too. If they just got you straight, you would be happy, employed, pain free, paying taxes, not drawing benefits and in little need of the NHS. But no, they would much rather piddle around, leaving you in agony. Maybe as a banker you could draw up a little spreadsheet of what all this is costing the country and send it to your MP and the Finance Director at your local NHS Trust. Maybe send it to Kelvin MacKenzie at the The Sun too. Translate it all into something they understand......money. Clearly they have no interest in the other side of the coin....your pain and discomfort!!!

And yep I would love a cruise. Can we go to the West Indies please and can I have a cabin with a seaview. Oh, and can I bring along my dog????

Best wishes

TFU

Hi there TFU,

Yes I would love your dog to come? Oh I so love a holiday :cry: Yeah the pain is a nightmare and today the top of my leg and thigh felt like a lead weight or something ......so heavy to put one foot forward......along with the pain in my hip, not a nice feeling....... my Pain Specialist said my pain is incurable (fibromyalgia) and all he can do is try and control it, I see him every six months???? I have however recently changed doctors so I am hoping they are more thorough than my old ones?? I found out that one med I was previously taking costs £240 for 24 of them so you can imagine the cost of just the meds we take for this dreadful pain, and to think they didn't even work......as I am just a guinea pig as there is no known med that relieves the fibro...... but I have osteo too so which one helps both that is the question........?????

I am now Support Group Organiser/Controller \"unpaid\" to help fellow members with fibromyalgia and so I am happy to do this as it fits in with my home life and two year old boy....... the only down side of it I just wish I was pain free?

On a lighter note I do hope you have had a good day? and we can keep our fingers crossed for Wednesdays lottery :lol: xxxxxxx

LOL!! Ah bless Tfu you and your pooch...your so sweet!! If i win the lottery or if my compensation is a HUGE payout then i will take you all on holiday...pooch and all!! :lol:

I will not be joining you though as il be having lots of cosmetic surgery...and making myself look PERFECT....I will then be taking myself off to find Simon Cowell to see if he will consider marrying me lol!!

I wish....anyway i should not say things like that as my husband is BLOODY GORGEOUS in looks and personality bless him...im very lucky!!

So sorry to hear you are suffering so much SES... :cry: i really pray things settle down for you and you soon find some respite from the pain.

I love you TFU you never fail to make me laugh...i love your sense of humour and ability to smile and joke even though you are suffering everyday...bless ya!! :lol:

I wish i could help stop your financial suffering even though i can not help stop your physical suffering....you so deserve a better pain free debt free life...YOUR AMAZING!!

I have never played the lottery...but maybe i should start...although i have never been lucky in life...well i have regards my BEAUTIFULL FAMILY...but never when it comes to thinhs like the lottery!!

Im that unlucky iv only gotta be in the same building as a mirrror and it will smash!!

An regards lottery...im that unlucky you could give me the 6 winning numbers and i would forget to put them on lol!!

GOOD LUCK THOUGH LADIES!!

I do hope things become good for you SES...Keep us informed...and you TFU you lovely lady you!!

Take care everyone lots of love God bless x x x x x

Bless you luckymun

Thank you so much for your kind words, are you any good at singing as X factor is auditioning at the moment hun, then you will meet Simon Cowell :D and then maybe you could get your millions with your singing contract xx :lol: and then you will have your compensation too :wink: so you willl be able to have what you want, I like extreme make over, I would love to have that done, it would make my day :roll:

I am just hoping the new doctors will listen? anyways I am going to goto bed as I am shattered so gentle hugs to you all and sweet dreams too........ meeting Simon Cowell :wink:

I didn't win the lottery tonight :cry: so no cruise for us all yet!!!!

Take care everyone xxxx