1. Community
  2. Cancer
  3. Bowel Cancer

Hereditary bowel cancer

Posted , 3 users are following.

christina82926
christina82926

After loosing my lovey sister a few weeks ago from diagnosis to death was just three weeks we as a family are now being told that the biopsy that was taken from her means we could all have the gene as my nan had it my mom had it now I am booked in for a colonoscopy does anyone have any advice or has had the same dreadful thing happening 

0 likes, 4 replies

4 Replies

  • Daffs
    Daffs christina82926

    Posted

    Hello Christina, I'm very sorry for the loss of your sister.

    Although I don't have the same, I have bowel cancer which has now possibly spread to lungs

    May I suggest you contact the Macmillan nurses 0808 800 00 00. They are very good with any medical info and might even direct you to a group forum for that type. Ib find their forum on boqwel cancer great, plenty of what you jneed, others' experiences, sympathetic advice, etc, etc.

    Hope this is of some help,

    Best wishes, Daffs.

    • christina82926
      christina82926 Daffs

      Posted

      Thanks daffs for your reply sorry to hear things are not so good for you either it's good to talk though my sisters had spread to her liver then her blood it's a terrible cancer to have apparently because it lies hidden away all any of us can do is keep on top of things but I think we are scared of the unknown and what it can do anyway you take care keep talking 
    • Daffs
      Daffs christina82926

      Posted

      Hello Christina, Apparently this type, Bowel, does dpread to Liver and/or lungs and when that gets too bad could go on to brain, bone marrow Thrn you really are in trouble. But good news for you and hopefully me (liver and lungs) Liver heals itself and they can op now on both liver and lyungs. I'm being checked 3 mos. scans for my spot on lung.

      Have you been watching Panorama programmes lately. All about the wondergful trials they are doing at Marsden. Theres the hope.

      Did you call Macmillan, hope so, if you want answers, good ones. Join the Beating Bowel Cancer group and you can go to their Patients Day in April and I'll see you there.

  • zooa113104
    zooa113104 christina82926

    Posted

    Hi Christina

    Sorry for your loss. Its just terrible. My mother had colon cancer bk last Nov 13. She had an operation & treatment. She is fine now & is cancer free. Her mother/my nana had it & it was only discussing with the specialist that its was highly possible my nana had it. She had lung cancer (never drank or smoked) but she had this lump above her left leg nearer the colon. This we learnt was obviously a tumour & spread to her lung. I got a colonoscopy I'm42 & I had polyp removed, it was ok but polyps take more than 10yrs to turn nasty. Only for my mum I wouldn't have been screened. So 10/20 yrs down the Rd I would have been in trouble.

    The procedure is fine the preparation is the hard part. If you go onto you tube & watch the woman who used to host watchdog bk in the 80's or 90s I can't think of her name but she had advanced cancer 2 decades ago & got through it.

    Another thing I've stumbled acrossed is the importance of taking organic wheatgrass drink. Research it. A woman in America who juices it and is on YouTube said her mum had advanced colon cancer which reached the lungs & after medical treatment. She kept taking the wheatgrass & doctors confirmed she is cancer free. It cleans the blood & washes out dead cells which these develop into cancer. Amazing benefits. Do the research on youtube saves alot of reading. Let me know how you get on. Again sorry to hear of your sisters passing but think of how many in your family are aware & will get screened for this inherited illness.

    Keep strongsmile

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.