hi

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Hi Tess & Lisa

I have had to rest over these past few days as i have been a tad uncomfortable and exhuasted with the constant pain. Poor Fudge and Max havent been out for a good run over the weekend so their a bit fed up too bless them.

I am off to see my doctor shortly to see if she will support my claim for a blue badge for my car, and also if she thinks i should claim for DLA. Whats worrying me about claiming for that is that i can walk about most of the time around the house regardless of the pain that i am in. Due to my stubbourness of doing things for myself. But when grocery shopping i need every ounce of energy saved to enable me to get round the store, instead of being in pain before i get into the store due to having to park too far away.

So i think my claim would be refused on those grounds....i am sort of inbetween the entitlement bracket i think. I have also started the cook yourself thin diet, so i am hoping that will improove my health. as well as help me loose some weight. The meals are realy tastie too. AnywayI had best get ready to go out...take care

Bonnie x

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  • Posted

    Hi Bonnie & Lisa

    Hope you are feeling a little bit better now Bonnie. I know what you mean about DLA I don't know where I would be with that one. I don't think I would get it yet as I can walk around although being in pain. I like to keep moving while I can lol :lol: Don't know how I would be with the big shop. I don't drive and my husband does shifts so I do my shopping on Line! Seems like its a minefield trying to get it but you have to keep pushing forward :cry:

    I think really during the day I just get on and go with the pain! My worse times is overnight and early mornings before I get up :cry: Feeling really achy all over now as hormonal at the moment.

    Hope you ok Lisa!

    Take care

    Tess x x

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  • Posted

    Hi Tess

    Well the visit with my doctor went ok, and she suggested i apply for the dreaded dla, and that she supports me all the way. She is going to fill out her part on the blue badge form for me. So i have come away feeling a bit more positive.

    It sounds awfull the way we all have to put up with the pain, i hate the mornings when i have to come down the stairs, my bones feel so brittle that they feel they might snap, after sitting on the sofa and i need to get up it takes me a few seconds to get balanced and then i scuff my way across the living room...sometimes i joke about it........mainly to keep the embarrassment at bay, but on more occasions than not now, my partner has to help me up and off the sofa. Do you know what the stongest pain killer is ? all that i take dont seem to help that much, i am on 400mg of brufen, codomal, amytryptaline, paracitamal, thyroxin. Excuse my spelling lol.

    Take care

    Bonnie

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  • Posted

    Hi Bonnie

    Really pleased you had a good positive response from your doctor and she will support you to go ahead with a claim :lol:

    I am like you all I take is paracetomol, ampitripline, co-proxomol. I also take thyroxine as I have no thryoid as had cancer eleven years ago now. Do you take it for under or overactive thyroid! I also have Osteo arthritis but can't take anti inflammatories as give me acid reflux lol :cry:

    My daughter use to take tramadol which is a lot stronger pain relief tablet.

    I never taken them myself but you could always ask your gp.

    Hope you get on ok.

    Love Tess x x

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  • Posted

    Hi Tess and everyone else :wink:

    yeah, i have an underactive thyroid and i take 200mg every day. I never foget when i was first diagnosed with it. I felt chuffed to bits beleiving that when i started taking the thyroxin, my weight would get back to normal and i would no longer be feeling so exhausted :D

    That was back in 1992 and in 2008 i am still waiting for that to happen. :x

    Today i am taking Dihydrocodein 30mg (sometimes i take 2 :oops: ) then 20mg Omeprazole, Ibuprofen 400mg (again sometimes take 2 :x :shock: ) Amitriptyline i have these in 10 mg but often take 3 along with 1 or 2 Dihydrocodein at night. Fluoxetine 20mg and 200mg of thyroxin.

    I get really bad restless legs sometimes too, i had it really bad last week, but touch wood its gone quiet again for the past coulple of days smile

    Right i think i shall take my two favorite boys out for a run before the rain starts again, Then i shall settle down and do some more work on this rug that i am making and have a nice brew by the side of me.

    take care

    Bonnie

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  • Posted

    Hi Bonnie

    I take 125mg of thyroxine as I have to take it for life with having no thyroid gland. I was on a really high dose like you for quite sometime and then doctor reduced it. That does seem to be a high dose you are on.

    Do you have regular blood checks to see if it needs to be so high. I was told they don't like to put patient on too high a dose as sometimes there is a risk of osteoporosis softening of the bones.

    I was glad they reduced mine as my mum had osteoporosis and I take calcuim tablets twice a day as a preventative measure. Worth checking with your doctor if you need to be on such a high dose! :cry:

    I have had the restless legs before not very pleasant. Haven't had it for a while now. Just can't get comfortable anyway you sleep and I use to have to get up and walk around for a bit. :cry:

    Hope your rug is coming on ok. Will catch up again soon.

    Take care

    Love Tess x x

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  • Posted

    Hi all,

    Hope you are all doing ok. I have not been to good the past few days but over the worst now. Can anyone recommend an alternative to gabapentine, it does nothing for me my doc put me back on amitriptyline 50mg per night and 100mg of tramadol four times a day along with diclofenac 3 x a day. I didn't take the gabapentine because i don't think it works but it there is anything else I can try can you let me know and I will ask my GP.

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  • Posted

    hi di here

    i take tramodol was on diclofenic but just been giving a new one that i cant remember what its called. amityplime zopliclone for sleeping that dont work, lansorpromal, a anti sickness tablet. paracetomol. also i take a anti depressant in the morning

    but what does help..wish i new...

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  • Posted

    Hi di and all,

    Thanks for the response and you are so right even the doctors just look at me as if they have no idea but i keep thinking someone will come up with some thing I haven't tried and that could be the one that works.

    I suppose that is not going to happen. I have just had a bad flare up I didn't believe flare ups existed until I started gentle exercise but I can now say this time I don't feel as bad as the last \"flare ups\". I truly think the exercise I have been doing for the last year has made a big difference. Mind you, I am in a lot of pain tonight just hope I sleep.

    Di I hope you are doing well and get a good sleep tonight.

    Thanks Lisa.

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  • Posted

    Hi there everyone xxx

    Yeah Lisa bad flare ups of mine have lasted weeks :oops: Nightmare :roll:

    I was told about Lyrica from my friend in America then my Pain Specilist changed my meds on my last appointment to Lyrica which was good.......and it has seemed to relieve my pain a little better than the Gabapentine I was taking........ I was suppose to take an anti-inflammatory Celeoxib but unfortunately I again had side effects from it, as I told my Pain Specialist I would try it again(as I thought it could be the Amitryptline I was previously taking) but as it was I found the Celeoxib was causing me to have shallow breathing, I kind of had to force my self to breath somehow??? it was as though my airways were restricted somehow?? not a nice side effect........ but reading the advice label again it did say if you have side effects from Aspirin to be careful, which I do :oops: so now I take Tramadol of an evening and Tramacet (75% tramdol and 25% paracetamol ) through the day, due to my little boy :?

    I feel like I am a walking chemist :D as all in all I take around 15 tablets a day :roll:

    I do hope you all are coping ok today xxxx gentle hugs xxxxx

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  • Posted

    hi Ses, Linda,Di and Everyone

    How are you all. I have not been on since coming back as we are changing over to another broadband supplier. I am using my daughters laptop and internet.

    I hope everyone not in too much pain :cry: I went to physio and was pretty good. Gave me eight different exercises to do three times a day.

    Not managed then three days yet. Most of have done is twice a day.

    Got to go back in a months time. Would have been sooner so would have to go into Peterborough. If I leave it till then can go to my own doctors surgery.

    Going to see doctor tomorrow as still havent heard from the podiatrist at hospital. Don't no if my doctor has forgotten to send a letter off referring me. My toes has just started to play up again at the moment.

    Good to talk to you all again now and will catch up on Friday.

    Lots love to everyone and keep smiling. :lol:

    Love Tess x x

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  • Posted

    Hi Tess, everyone

    I was wondering how you were as I asked on another posting? I do hope the hospital haven't lost your notes or they are late sending them as I have found this happens quite often in the north west of England........ I do hope my medical notes do not go astray too as I have changed doctors :lol: which I am so glad I finally got to change, I am not racist or anything but the doctor I have had seemed to not understand my pain and fatigue as he was completely useless so it is such a relief I have a new GP :D

    Good luck with your appointment hun xx, I am off to bed now as I am so tired..... I had around two hours sleep last night due to the pain in my hip so I think I better goto bed :?

    Sweet dreams everyone and gentle hugs to you all xxxxx

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  • Posted

    Hi Di Ses Tess and everyone,

    Glad to hear from you Tess was begining to wonder if you were ok!

    Hope everything goes alright on Fri Di, when I had my appointment at hospital Dr. just confirmed the Fibro and put me back into care of GP! Hope you get on better than that as you seem worse than me.

    I understand about you not being recist Ses, my locum GP for six months was a Nigerian, and like you I am not racist, in fact when I was working some of the nicest children I worked with were black, but my problem was I couldn`t understand a thing he said!!! My husband flatly refused to see him because with his disabilities he just couldn`t cope. Hope you get on much better with your new practice.

    Well love and good luck to all, and as good a day as possible.

    Linda

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  • Posted

    Hi folks, Linda,Tess, Di & everyone

    A better day today still in pain but it goes with the flow eh???? my daughters birthday on saturday so I have to tolerate more kids here tomorrow due to \"a sleep over\" party so they will be getting the play station 2 out and singing on the singstar so you maybe able to hear the cats chorus about 8ish on friday night :lol: so listen out smile

    I do hope you rhumo appointment goes ok Di? and I do hope everyone else is having a good day? I did have a good night sleep though so maybe that did help???

    As you were saying about my old doctor, he had a nice bedside manner..... but he looked at you and then gave you medication before he asked what was wrong? not at all thorough, and so I changed previously but as the doctor I had has left I thought there is no way I am seeing him :? as he is a nightmare....... once he kind of give me a medical and he pulled my leg and knee and I couldnt walk on the worse leg for three or four days later so I do not know what he had done????? so I am relieved as you can see I have been able to change my doctors finally smile

    Anyway I do hope everyone has a lovely restful sleep and gentle hugs and kisses to you all xxxxxxxx

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  • Posted

    Hi Ses, Di, linda and Everyone

    Just been reading how you all are. I hope all goes well Di for you with the rheumatologist today! :lol: I am so pleased you have a new doctor Ses and you will get the help you need. You are going to have it busy with your daughters sleep over. How old is she? And how many are coming lol! :cry:

    How are you Linda? Don't you have to go and see the rheumatologist anymore then! I have to go and see mine again for the second time at the end of October. :lol: Whether it is because I have OA as well I don't know. :cry:

    Went to see my doctor yesterday and he couldn't understand why I hadn't heard anything. He had sent a letter off to hospital and said if I haven't heard anything in about ten days to ring him up. While I was there asked about flu injection. He thought it was a good idea to have one as I was ok with it last year. Thought it was better for me as I don't have a thyroid!

    Going to have one when they arrived middle of October. He also wants me to have blood test done on thyroid. I have to have more blood tests than normal for the thyroid. It is because after changing my level they need to keep that my levels are suppressed enough to stop and cancer cells coming back. :cry: Just a routine check so should be ok as been free of cancer now for eleven years. :lol:

    It is so good to get back on here and talk to you all. :lol: Was having withdrawal symptoms lol :cry:

    All take care.

    Love Tess x x

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  • Posted

    Hi Tess and everyone,

    No she said my GP could refer me back again if he thought it necessary!! Had to wait over a year for my podiatry appointment, he gave me some insoles. told me where I could buy the next pair (over £30) and said there was nothing else he could do!! Had lots of physio soon after diagnosis which left me black and blue and the physio full of apologies and worried as to whether she should carry on. Lol Mostly had ultrasound and another type of non-invasive treatment and exercises. Just been diagnosed with OA in my knees but just have pain killers at the moment. Its been much better now the weather is not so damp.

    Surely it would be better for patients and medical staff if there were some guidlines as to which treatments should be tried first, I know there is no specific trearment for fibro but surely everyone would feel better if physios, rheumatologists, GPs etc worked in the same way??? There wouldn`t be so much uncertantity among patients if they knew they were all being treated the same. I guess we have to get all the medical people to accept that the condition is real first!! That could take some doing.

    Well take care everyone

    Love Linda

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