Hi friends Hope you are well. The doc informed me that my FEV1 is 66%.

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The only symptom I have is breathlessness nothing and it lasted for two days. The doc prescribed inhaler for one week and check up.

Can you tell if I am misdiagnosed?

Can the symptom go away?

Thanks for the help

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  • Posted

    What did s/he diagnose?  No one can answer you with such scant information.

    Maybe the breathlessness went away because you're using the inhaler?

    Symptoms of ANYTHING come and go, especially with medication because often that's all medication can do if it can't cure the cause

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    • Posted

      Thanks jude65855

      Sorry!

      I am 36 nonsomker. The doc informed me that my FEV1 is 66%, moderate to sever copd. The only symptom I had was only tiredness nothing else and it lasted for two days. The doc prescribed inhaler for one week and check up after a week.

      Can you tell if I am misdiagnosed?

      Can the symptom go away?

      Do I have to start taking the inhaler?

      Once started taking the inhaler can I stop?

      Thanks for the help

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    • Posted

      I can't tell if you're misdiagnosed:  with those results you almost certainly do have COPD and "only tiredness:" is a very common symptom because your lungs aren't getting enough oxygen into the rest of your body.

      COPD is not curable, but it is manageable.  Symptoms will come and go depending on lots of things, it's an extremely erratic condition.

      Check the instructions for your inhaler and if in doubt, google the manufacturer's website or talk to your pharmacist.  You don't HAVE to do anything, but if would be better for you if you learn more about the condition and how to manage it, in particular, pulmonary rehab if you can get to a course.   

      You can start and stop any medication whenever you like, but personally I don't intend to ever stop using the two inhalers I use because when I don't my lungs don't work as well and all the symptoms come back.

      You are young to have COPD:  is there a family history, because there is a genetic disorder which can contribute to early COPD - ask your doctor about this when you go back for the checkup.

      Good luck!

      It would be unusual for a young nonsmoker with no past history o asthma to develop COPD in the absence of other causes:  for example living with smoking parents, exposure to other airborne pollutants, etc.

       

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    • Posted

      Thanks a lot.

      I will start taking the inhaler right away and I am planning to seek second opinion.

      For your information no family history of having COPD or asthma.

      Most GP in the family are telling me it is impossible for me to have it.

      I tried to Google misdiagnosis for COPD. Is there a case?

      Thanks for the feed back. It is not easy to swallow this news but with God I can make it.

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    • Posted

      Hi wakjira88957,

      You must have had a lung function test for the Dr to find that your FEV1 is 66%...he's getting that from your test results so I really wouldn't think it's a misdiagnosis. But of course, the only way to really feel sure is to get a second opinion. The good thing is that's mild COPD and you probably are scared and don't know alot about the disease, but you might think you feel too good to have COPD. You were only tired temporarily....is that right? Listen, it's not the end of the world if you DO have it...especially since they caught it so early. You just have to get in tune with your body and know when to check your blood oxygen level...you need to buy a pulse oximeter. That's the little thing they put on your finger in the ER or Dr office to check the oxygen in your blood. It will help you when you are tired to know if it's your lungs or you're just tired. You have alot to learn...but you can live a very long time with this. Keep asking questions and research online, ask your medical professionals and you'll learn so much. Ask me or us anytime...I'm happy to help and so are they. Let me know what you decide to do about that second opinion....

      Ladyjack51

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    • Posted

      Good advice ladyjack, except that I don't see the necessity for a pulse oximeter as a matter of course:   my oxygen levels were above average last time they were checked and I'd reckon I'd know if they were low, because I'd feel tired.

      They're a good idea for people with low or fluctuating levels though

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    • Posted

      Thanks ladyjack51

      Honestly speaking I will seek second opinion.

      After doing the result the doctor didn't explain to me about it. But just said this because of your weight and prescribed symbicort. That is all he did. No explanation or advice.

      Anyway I will do another test, what do I loss?

      Best regards

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    • Posted

      Wow...Dr's like that really p*ssed me off!! People are scared and they have questions and they want to know what's happening to them!! Having said that....don't accept anything less than the respect of them hearing you and answering your questions. Don't be afraid to ask even if they seem in a hurry...you are paying for their service. They get "Godlike" sometimes and it sucks for scared or timid people. Please let us know...find a nice Dr....ask people or look at his reviews online. Ladyjack51
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    • Posted

      My post just got sent for review....I think bc of one word I used. I will repost to you if they don't allow it...
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  • Posted

    I haven't even been told, or if so have no recollection of any figures for my FEV1.

    You really need to speak to a specialist about this, or at least your GP.

    There are some google result I ookked up but nothing top help your request.

    sorry

     

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  • Posted

    Hi, don't mean to be cheeky but are you a bit overweight and that is causing the breathlessness?
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  • Posted

    Hi you really need to go back to the doctors or nurse and ask for a firm diagnosis and much more information.   With a lung function of 66% you come under the moderate category.   Are you in the UK?  If you you should have at least an annual review with a respiratory nurse who will do a spirometry test,  review your meds and check you are using them correctly. 

    I have copd and ashtma with a lung function of 78% and get breathless when walking up hills and steps,  feel tired a lot more,   and need ab's and steroids when I have a chest infection.   I use the blue ventolin inhaler which is a reliever as and when needed and Symbicort twice a day which is a preventer.  

    You are young at 36 to have copd especially if you have no history of smoking or second hand smoke or have worked in certain industries eg textiles.  Your doctor should be doing tests to rule out other lung problems.

    It can also be genetic but this is rare.   This is Alpha1 deficiency and a simple blood test should rule this out.   If you are in the UK have a look at the NICE guidelines which will give you a lot more information.   x

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    • Posted

      Thanks for the help.

      Unfortunately I am in Kenya.

      I think second opinion and ruling out other possible disease sounds resonable ......I will let you know the result.

      But I won't stop going back to the doc as scheduled.

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  • Posted

    So many things not ringing true here. Breathlessness can be caused by many things, its up to your doctor to find out the cause of your breathlessness.

    You say:

    Age 36, non smoker, no history in the family, only symptom tiredness, breathlessness for 2 days,  suggested because of your weight and prescribed symbicor !!!  FEV1 66%, copd diagnosed!!  .. most GP in the family are telling you impossible, 

    Going for a 2nd opinion is a good idea. 

     

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    • Posted

      Thanks

      I had a chat with the GP in the family, they confirmed and agreed to seek scond opinion. However they all have agree I start to do something about my weight and change life style, whatever is the resuslt.

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    • Posted

      Dear All

      First of all I would like to apologize for hiding my identity. The medical history I gave you was my wife's.

      The reason for that is she didn't know about her result and she didn't know what was going on with her at the time of testing.

      To make long story short, based on the advice from GPs in the family and some of you, we went to see another specialist.

      The Doctor's first reaction was less likely to be COPD. And request for different blood test, ct-scan and final Spirometery test.

      Some of you may not believed what I am going to tell you.

      It turn out to be fev1 2.64 fvc3.37

      The previous result was fev1 1.7 FvC 1.7.

      I was crying in front of God for the last 30 or so days and almost losing my job and thinking also about our two babies 2.5 year boy and 1 year daughter.

      You may believe or you may not but God has given my wife back to me. She is the best thing that happened to me.

      I wish you all the best and don't lose hope and faith.

      I did apply all the advice you guys gave me.

      Thank you!

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