hi I have copd and emphysema I'm on oxygen 16hrs day as oxygen levels or sats never go above 82% anyone else have this ?

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Was diagnosed with copd 2008 and emphysema but what is a. Downer 2003 had 3 blood clots right leg.D.V.T also P.E.blood. Clot on lung. I've had oxygen for 3yrs now does anyone else. Have this? I do also have a lot of other horrid things going on health wise. I seem to get over one thibg then bamm something. I almost died in August I had bad sickness and diarrhoea bring up black stuff after 12hrs rang ambulance it was black blood and I'd lost 4 pints!! It was a peptic ulcer no idea how I got it I thought ulcers were through booze I don't drink they said it wasn't. Booze ? I won't bore u folks as I have loads of other crap wrong lol u seem nice guys all in same boat just. Wondered if anyone else is on oxygen?

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  • Posted

    Hi Lolly,

    I'm a newbie, joined yesterday. Have already found a very nice person to chat to. My GP wanted me on home oxygen but the Chest Clinic said I wasn't bad enough as my blood oxygen was 92-3ish. Realising now that mine is not half as bad as some others, although, like you, I have various other things wrong with me. Thinking has changed about ulcers being caused by worry, stress or alcohol. It's quite often Helicobacter-Pylori- bacteria infection that causes most ulcers. It's somewhere on this Site (I just Googled the spelling and this site came up). Wow if I was passing black stuff, I wouldn't have waited 12 hours before I called an ambulance!

    Anyhow, pleased to welcome you to the site. I reckon it's good and the people seem friendly.

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  • Posted

    Thanks so much for the kind welcome and yes ure right about attitudes to ulcers have changed,I think I was just in shock as they said I almsot died! Yes I was naughty to leave it so long,as with me I have so much rubbish happen to me one after thing. after another I guarantee I go to casualty I don't see. Light of day lol. As for oxygen even after say 8 hrs I am 80-82 ! I was for a while not going over 75 that's when they investigated. I really had no choice oxygen wise. As I said after hrs on it my. levels rarely change but in myself I feel better they now say 82 is normal for me. Sorry to hear your poorly. Plz xcuse words cut in half ,typing from stupid blackberry instead of lappy I will use. lappy from now on. Thxs, again for nice friendly hi
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  • Posted

    You are a bit like me..I have to be dragged to the doctors or hospital under protest. I waited four days telling myself I had bad painful gastric reflux (from which I suffer and have meds) but also knowing I had pain down my right arm. In the end I gave in and asked son to call ambulance...good job I did, as I had had a heart attack and had another on arrival at the hospital. Had 2 stents put in and something split so nearly bled out on the table, boy did they MOVE IT, had about 4 people working on me. but ended up with 5 stents and survived to tell the tale, yet I still hate hospitals and doctor's waiting rooms. Have a good GP though, he will deal with me and prescribe over the phone if necessary. I

    It's not you cutting the words in half, this site doesn't have wrap round text, so it looks like words are getting split up but they come out OK.

    Hope you have a relatively good day....Regards, Val.

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  • Posted

    P.S. That should have read LEFT arm. Never did get the hang of left and right, lol...!!
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  • Posted

    You have made me actually belly laugh something I haven't done in ages!! I don't know how you coped with that nightmare sounds a horrid experience for u to go through but glad u came out sense of humour intact a person I can relate to if it wasn't for my very dry humour I'd of jumped off a bridge somewhere! When I was in resus for blood transfusion they could find a vein a few were trying and this rather stroppy Dr said well give few more tries then well have to go in your groin the main line I quipped bugger u. I don't care if its the jubilee line u will find a vein I think my veins got scared hey presto they went in my foot!! Lol. I don't know if u read my profile with a few of my ailments I'm a walking disaster I'm also blind in one eye detached retina had a scab on my foot thought was an allergic reaction to nickel in my trainers was there about 2yrs eventually drove me mad in end itching Dr took bit off turned out cancer !! Said ill never buy reeboks ever again lol seriously I have a cancer called bowens disease a verrrrrry sloooow growing cancer which has been cut out and cauterised its healed great but a tiny diddly bit looking familiar and I've recentlyfound 2 suspect lumps on scalp I have to see them March so we will see only thing that dosent fit says can be caused by too much sun I hate the sun I like it but we don't mix also because of chronic pain with my leg I wear opiate pain patches and can't go in sun with them. When u think of cancer poor souls have awful ones but me Mrs Magoo gets it on her foot lol oh well gonna make a coffee blummin hell I've been rabbiting lol x Lorraine
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  • Posted

    Oh Lorraine, I can't stop laughing, although it's not funny! I do hope it hasn't come back too rapid. I am secretly worried about some white lumps popping up all over. Showed GP the one on my hand as I'm sure it's sunburn turned nasty, he snapped "it's a wart". Might be, but they are multiplying quite rapidly and I did get seriously burned in 2004 in Bulgaria. My hair is thinning and I have some funny patches on head, but at 70, don't suppose they will bother sending me for tests.

    When I had my 2nd heart attack at the hospital, the doctor gave me an aspirin to melt and said "I've just saved your life". He was ever so young, and I replied "what you think you're on Holby City now or something" He laughed his socks off!!! But then I felt the severe pain and jokes were over! He was really good though, according to my son he whipped the staff into action, called up my TIA records and got things moving very fast and I got a quick transfer to the London Chest Hospital so, in effect, he did save my life...!!

    I've had two lots of blood taken from my groin, one absolutely pain free so when the next time came I was quite confident....silly me...different doctor...hurt like hell .....!!!

    Haven't read your profile yet, don't know my way around the site too good yet, but I'll have a good go.

    Nice having a chat, will be back soon. Regards, Val and keep up the funnies....!!!!

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  • Posted

    I do try to look at it could be worse !! You seem to have found your guarduan angel in that young doctor good job he was as swift and prove he's worth as a good Dr. I've seen a few young cocky ones and when I say I have a daughter of 36 and grandkids 18 down to one to be born March five in total. They say oooh u don't look old enough I say for a start -m 54 stop trying to pretend I look young and I've got knickersolder than u lot lol. Chat later Lorrainex
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  • Posted

    Hi .

    I too have COPD and spend 16 hrs a day trying not to commit hari kari on the miles of oxyen lead that seems to follow me round the house,trying to trip me up like a playful puppy.I also have numerous health issues which cause a lot of problems most of which can be sorted by a cocktail of drugs.The only one that doesn't come with a pill is my 17 yr old daughter with the enormous chip on her shoulder.I don't go out much in the winter but I do a lot of crafts which keep me out of trouble.Only the week before xmas I landed up in hospital for a week with a cold but apparently my sats go down dangerously low in a very short time so it doesn't take much for me to book a bed .Its so nice to find a site that isn't American, anyway with any luck i'll be able to find my way back again,it has been quite refreshing to read your chats so I hope you haven't minded me butting in .Well I'm off to bed but as you can see I don't do to much of that but heres hoping .night for now.Take care . Jeni.

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  • Posted

    Hi Jeni, welcome to the site. I think it's a marvellous site which i found completely by accident while Googling a question on Yahoo Answers. I have already made a couple of cyber friends in the few days I've been on here. (Second attempt to welcome you...pressed wrong key by accident and pffff....it disappeared...lol...!! Forever floating around Cyber Space...!!

    Glad you have a hobby to keep you occupied, we all seem to have them to get by and through the day, which can be long and boring if you don't have something to keep your mind off things.

    As you say, UK sites are in the minimum, most of the internet seems to come from USA, which have an entirely different outlook .

    Hope you have a good day today and with a bit of luck it won't be endless rain and you will be able to find your way back to the site (bookmark it or put it in Your Favourites), as you are most welcome. Regards, Val.

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  • Posted

    Hi Val,

    Thanks for replying to me,like you I came across the site by chance. I wanted some ideas on how people with our condition manage to loose weight as for us exercise is not easy.I couldn't help but laugh as my oldest daughter has not long come back from the states and I've got myself a bat mobile(mobility scooter) I find it a little embarrassing to go out on at present,it's only a bit of pride getting in the way, but she was saying that even the young people over there were hiring them rather than use the old legs, so I will comepletely fit in .lol. We are at present saving to go back to the States as we went in 2004 but we didn't know how poorly I was so and had the most horrible time, however because of the heat etc I decided I could do with loosing a decent amount of weight .So with a trim figure and the bat mobile the world will be my oyster whilst the girls are doing the rounds of roller coasters I can do a few museums, it won't be for a couple of years yet but its so nice to have something to aim for.Anyway I have rambled far too long so and I do competitions as one of my hobbies I need to do a few now as the closing dates are tonight. Sorry about drivelling on and I hope your day has been productive ,but any ideas on the weight loss would be very welcome.Take care.

    Jeni

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  • Posted

    Hi jeni and Val hope you both fine sorry I've been so quiet is very unusual for me lol but only Monday after goodness lnows how long in agony after dvt in leg and lung the pain was so bad I could hardly get out of bed and go loo,my GP thought odd how just the one leg was so bad sent me for xray if I read the results its horrid but basically gotta have new. Hip as bones crumbling away also because of clots have caused similar prob to front of leg have to remove damaged bone with some from other part of body ! Good luck doubt if There's much left lol got see orth docs as scan is needed as most pain is knee and shin ? Knee was clearish on xray but all this rambling just to say I've been off colour as gfp has put me on some weird tablet I take one a week?! So weird and side effects not nice will get used to them, just didn't want you to think I was being rude. Go for the bat mobile never to young or old I'm trying to avoid wchair at Month I haven't been food or clothes shopping for 3 yrs luckily have great son and daughter son lives with me and hubby I'm lucky in that sense anyway I'm off to go back to sleep. Thanks for yor messages hopefully feel better tommorow. Love Lorraine x
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  • Posted

    Hi Lorrain,

    Sorry to hear you are so rough and in such pain, I sympathise..hope you feel a bit better after hopefully a good sleep, Operation sounds gruesome, I feel for you. Lets hope it all turns out for the better and you can get some relief. Glad you have good support from family, it makes a world of difference, doesn't it?

    Speak soon and hope you're feeling a bit better tomorrow,

    Regards, Val xxx

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  • Posted

    THX Val pretty rough just get nasty side effects weird for 1 tablet a week. GP did warn me of side effects and it was the first tabket I'd taken maybe a reaction with other meds. I just woke 2am to take some meds. Chat tommorow hope your well love Lorraine xxxxxxx
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  • Posted

    Hi Lorraine,

    You so sound as if you are really going through the mill, I am so lucky apart from being fat and getting depression I don't suffer any where near as much as others.I really hope that the tablets side effects settle down.Oppps daughters have just turned I need to referee.Talk later

    Regards

    Jeni.

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  • Posted

    So sorry Lorraine,

    You would think having a 15 year age gap between children would be a safe bet. They are both good but torment each other mercilessly.Its lovely coming on here as another site I have been on, they seem to compete as to who is the illest. So chatting to Val and now yourself its nice to have a little sense of normality even thou we have a few problems.I do hope these side effects are a short lived pain in the butt , but take care for now and hopefully catch up with you when you are feeling better.Take care for now.

    Jeni.x.

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