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Hi would appreciate any information

Posted , 9 users are following.

pat38625
pat38625

Hi, just diagnosed last month with PMR and am on 20mg of pred.  I have noticed a vertical indentation from the top/hairline running down my forehead.  It's not another wrinkle or line but definately an indentation.  It's been there for a couple of weeks now and it has got longer in size.  I have used search engines but really cannot find an awful lot about it.  

0 likes, 25 replies

25 Replies

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  • barb30898
    barb30898 pat38625

    Posted

    Pat,

    it's me, again.

    when I was looking for my indentation, I forgot where it was, and, this afternoon, It reappeared ( I was looking for it in the wrong place)

    mine is on the meeting of the upper and lower jaw.

    i think it's probably due to taking pred. And I doubt my doc would be able to tell me anything.

    Please let me know what your doc says.

    thanks,

    barb

     

    • pat38625
      pat38625 barb30898

      Posted

      Hi Barb, this indentation thing seems to be catching lol.  I surely will let you know as soon as I find out.  
  • carey93012
    carey93012 pat38625

    Posted

    Hi there! I stumbled across your forum when searching for answers regarding my own forehead indentation. I do not have PMR, but a few months ago I noticed an indentation on the left side running from my hair line to the inner edge of my eyebrow. I have had an x-ray with zero skull abnormalities, but am showing I am lacking sinus tracks on the left side of my head. I have an appt with an ENT and a dermatologist to see why this is there or if it correlates with my sinus tracks. Have you found any answers regarding yours? Would love any feedback. Thanks!
    • pat38625
      pat38625 carey93012

      Posted

      Hi Carey, I'm just getting to you now.  The indentation is still there and I had mentioned it to the Rheumy 2015 and he didn't know.  So I have no answers.  My skin is so so fine/thin on my forehead.  The rest of my face is fine, very few wrinkles may I add.  If you get any answers please let me know.  Regards Pat

  • ms.33418
    ms.33418 pat38625

    Posted

    Hi pat38625

    Did you ever receive help with this, my daughter has the same thing and we are desperately looking for answers? 

    Thank you.

    • pat38625
      pat38625 ms.33418

      Posted

      Hi ms.33418  I had forgotten all about the indentation on my forehead, so I had to get a mirror and look and yes it is still there.  No answers, definitely not a crease.  I do hope you find some answer/s and please let me know if you do.  All the very best to yourself and your daughter.  Regards Pat
  • gatorsxray
    gatorsxray pat38625

    Posted

     You could be describing en coup de sabre. It is said to be caused by Frontal linear scleroderma, but I have one too, also started while on prednisone for my polymyositis.
  • nancy15228
    nancy15228 pat38625

    Posted

    Sorry to hear that.  I started at 20 mg in Nov 2017 for dx of PMR.   I am down to 12 mg

    over the course of the last 6 months, my skin has become thinner and my veins are bulging or look that way because of skin... I have not had anything like this happen but it does not sound unreasonable ....with this medication...it is not from frowning?

    sleeping a certain way?

    • gatorsxray
      gatorsxray nancy15228

      Posted

      No, it is more of an actual dent that looks like a hatchet strike into the frontal bone at the hairline running vertically down toward the eyebrow. Mine is only about an inch and a half long, but I've seen photos of people with ones that run 5"-6" long. If it is actually caused by linear scleroderma, there usually is no hair growing in it once it gets above the hairline. Google search "en coup de sabre" and you will get a better idea.

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