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Hiatus Hernia/ reflux

Posted , 8 users are following.

linda3737
linda3737

Hi everyone just got back from seeing my specialist after having test over past 2 years 3 endoscopies and the 24 hour monitor test to be tild they can do nothing for me due to the 24hr test showing that my oesophagus (food pipe) is only working 40 per cent and the op would leave me unable to swallow food or liquid.. Come home with very mixed feelings had a good cry as I am now left just the same pain and all problems   and unable to take my meds for my osteoarthritus in my hip and knee.They now want me to have another endoscopy and biopsy test to see how inflamed . 

0 likes, 34 replies

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  • ruby05760
    ruby05760 linda3737

    Posted

    Shame Linda, so sorry they surely can do something! I also take anti-inflamatory for Arthritis but take Nexiam to offset it & don't know why they need another endoscopy when you've already had one! Can you not get another opinion?  Wish you luck Ruby.
    • linda3737
      linda3737 ruby05760

      Posted

      Hi Ruby the specialist said I cant take any anti inflamatory because my stomach is inflamed they are doing another endoscopy to see how bad  and if there is a bug he said also to check the cells as they can change and become canceous  but he said that is rare. He did mention about getting another opinion      Linda
  • leeleeleelee
    leeleeleelee linda3737

    Posted

    Hi Linda,

    Really feel for you.

    Keep perservering; you will get some answers in the end.

    Just out of interest, has anyone looked into any immune system problems as an explanation?  Arthritis and sever gastric problems, mouth ulcers, dry mouth etc etc could all be a sign of an underlying immune problem such as Lupus...  

    Just an idea.  

    Hope you are feeling a bit better soon.

    Lee

    • linda3737
      linda3737 leeleeleelee

      Posted

      Hi Lee, I have rhemotoid arthiritis which is i remission at moment and also have fibromyalgia along with osetoarthiritus in hip and knee. I understand if they cant op because of my oesphogaus been poor but dont know how I can continue with the pain, did explain that I cant take antiflam tablets for other conditions but they said its funding etc because I asked why cant they repair the poor muscles first. The only think he said was I was a bit young to have the weak problem in my oeshogaus only working 40 per cent and asked if I had ever had a small stroke ?. Very upset at moment but will have to come to terms with the pain  thank you for replying    

      Linda

  • clareybear
    clareybear linda3737

    Posted

    Hiya, 

    I'm the same is you. Same problems for over 2 years.  I have got an appointment on the 18th of Nov.  Seeing another consultant for my hiatus hernia and bad reflux. I am hoping I can have an operation to sort this out.

    • linda3737
      linda3737 clareybear

      Posted

      Hi Clarey all the very best for your app in November hope you get a positive outcome

       

      best wishes

      Linda

    • clareybear
      clareybear linda3737

      Posted

      Thanks linda, 

      Will let you know the out come. Am only 37 yrs old, hope they can operate or something. 

      Kind regards

      Clare

  • Glennie68
    Glennie68 linda3737

    Posted

    Hi Linda,

    Really sorry they won't do anything. I would definately be asking for a second opinion as sometimes a new Consultant will have new ideas. My original Consultation was with a locum - and a very poor one at that! I am waiting for my second consultation in December. Wish you all the best!

    • linda3737
      linda3737 Glennie68

      Posted

      Hi Glennie

      Thank you will just have to hope for the future

      Hope all goes well for December

      Linda

  • bianca75058
    bianca75058 linda3737

    Posted

    Hi Linda... sorry to hear that your condition is so bad currently sad Maybe get another opinion, there has to be something they can do!
    • bianca75058
      bianca75058 linda3737

      Posted

      Good luck, those tests and the waiting for results are exhausting neutral Please let us know how it goes and what the results are.
    • linda3737
      linda3737 bianca75058

      Posted

      Hi thanks should get test done within next 6 weeks they said, hope i dont have to wait as long as last time for results
    • linda3737
      linda3737 bianca75058

      Posted

      HI 9 months, told them dont like endoscopy especially when they take biopsy and I will not be waiting this long next time otherwise will take it further 
    • lynne90477
      lynne90477 linda3737

      Posted

      Hi Linda,

      Just a thought but if you are to have another endoscopy ask for sedation - this made my second endoscopy much more bearable.

      Best wishes,

      Lynne

    • linda3737
      linda3737 lynne90477

      Posted

      Hi Lynne this will be the 4th each time I say I will have sedation but scared because I dont know what you feel like why sedated
    • lynne90477
      lynne90477 linda3737

      Posted

      Hi Linda, I think you are very brave having repeat endoscopies without sedation! Was dreading my second one but I was not aware of anything happening until it was all over - just felt a little sleepy afterwards.
    • linda3737
      linda3737 lynne90477

      Posted

      Hi Lynne silly question what is like do you go to sleep or are you awake with sedation can you remeber or feel them doing it and do you do the choking as well while they are doing it. So when you go home you cannot remeber anything at all, dreading it again sory to ask so much but also scared of sedation incase I am awake but cant move 

      Linda

    • lynne90477
      lynne90477 linda3737

      Posted

      Hi Linda,

      Just a little needle in the back of my hand and the next thing I knew it was all over! Didn't feel or remember a thing until it was all over and the Doctor told me he had found a small hiatus hernia.

      Lynne

    • linda3737
      linda3737 lynne90477

      Posted

      HI Lynne thank you might be the better option as it hurt last time

      Linda

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