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Hiatus Hernia/ reflux

Posted , 8 users are following.

linda3737
linda3737

Hi everyone just got back from seeing my specialist after having test over past 2 years 3 endoscopies and the 24 hour monitor test to be tild they can do nothing for me due to the 24hr test showing that my oesophagus (food pipe) is only working 40 per cent and the op would leave me unable to swallow food or liquid.. Come home with very mixed feelings had a good cry as I am now left just the same pain and all problems   and unable to take my meds for my osteoarthritus in my hip and knee.They now want me to have another endoscopy and biopsy test to see how inflamed . 

0 likes, 34 replies

34 Replies

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  • lynne90477
    lynne90477 linda3737

    Posted

    Hi Linda,

    So sorry to read your post. I too have been suffering with chest pain/reflux for the past year had umpteen tests including 2 endoscopies and PH manometry. I have been told (after my 2nd manometry) my LES is too tight and surgery is not an option. I have seen 5 gastroenterologists - they all seem to pass me on from one to the other as though they dont know what to do with me and still the pain continues.

    I do feel sorry for you if it's any consolation I think I do know how you must be feeling. Would definitely try for another opinion and keep on mythering your GP - there must be something they can do for us!!

    Best wishes,

    Lynne

    • linda3737
      linda3737 lynne90477

      Posted

      Hi  Lynne so sorry you are having similar problems its hard when you are suffering and nothing can be done I do know from research that in some areas/hospital you can have op to strengthen your oesphagus muscles. But my surgeon does not know were he said , I am East of England Can you not have your LES that it too tight stretched or released to make it not at tight. We will just have to hope 

      Take care

      Linda

    • ruby05760
      ruby05760 lynne90477

      Posted

      Many years ago my daughter had the old method of Hiatis Hernia repair which the method was to insert a pipe in the stomach to repair the tear. She still has to take Nexiam but has not had the symptoms you all mention. I must stress though, it was a terrible op & took her awhile to get over but it did stop those awful symptoms. Good luck with your efforts .
    • lynne90477
      lynne90477 linda3737

      Posted

      Hi Linda,

      Apparently my LES is not always tight but spasmodic which means surgery would not help - tablets prescribed just made it all worse and so I did wonder if maybe I hadn't been off medication for long enough before I had the manometry test. Anyway, I have been referred to a Professor for a second opinion- my appointment is not until January which seems an age away.

      Best wishes,

      Lynne

    • linda3737
      linda3737 lynne90477

      Posted

       Hi  Lynne, it will seem ages away but sending best wishes that they can do something for you

      Linda

    • lynne90477
      lynne90477 linda3737

      Posted

      Thank you Linda. It seems there are lots of people out there suffering like us and I have found this forum to be very assuring.

      With very best wishes,

      Lynne

  • wanda39848
    wanda39848 linda3737

    Posted

    Take heart. I too have had  all the test imaginable. I also was told not operable. I did consult with a gastroenterologist professor and she told me that all the swallowing problem and stomach up under my ribs etc is not at all hiatal hernia related. I have been told IBS. Now IBS covers many things. It is so called because they know that there is a bowel problem with no real answere. From the words of the professor IBS is actually an intorerance to certain foods and not everyone ha the same intolerances. It is mainly  matter of trial and error which can be very time consuming. The main list of food intolerances are certain grains, sugar, dairy of all kinds  nuts eggs and a lot of red meat. I now have rice milk (BUT NOT SOY RICE MILK), they also recomend almond milk but that can be a pain also because of anyone intolerant to nuts. I have a recipe book written by Sue Shepphard called low fodmap diet. So many fruits contain different sugars such as polyols and others that I cannot think of off hand. No citrus fruits. 3 months of probotics does help repair the damage to the eosophagus and he stomach lining from the acid reflux. Also some herbs. I have taken Slippery elm (Shelp Line)and probotics from the refrigerated section of the pharmacy. I am sure that you will benefit from not having an op.It woudl do you no good. An hiatal hernia is associated with the food intolerance only from the bloating pushing the bowel up high into the chest cavity. Hope this h elps.
    • linda3737
      linda3737 wanda39848

      Posted

      Hi Wanda

      Thank you for your reply will definately look into what you have said and do the research

      many thanks

      Linda

    • ruby05760
      ruby05760 wanda39848

      Posted

      This sounds like a lot of sense to me & definitely worth a try.
    • lynne90477
      lynne90477 wanda39848

      Posted

      Hi Wanda,

      Thanks for your post will definitely look into this. Also I have been taking Aloe Vera Juice which I think has helped a little although I am taking that many tablets don't know which are working and which aren't!!

      Best wishes,

      Lynne

    • wanda39848
      wanda39848 ruby05760

      Posted

      To all of you who have read my last posting. If you get upset and find yourself hyperventilating this draws the bowel one up inside the other and then creates a redundant loop in the bowel. I am going through a rough time at the moment with my young sister who has had 2 strokes this year an the stress that it is casing is making my acid worse. When this happens it is hard on the bowel so was advised by the professor to take coloxyl tablets with senna also movicol ,If you speak to you gastroenterologist about this he may be more explicit thatI can be thropugh these pages. As I said I am now 76 yeairs young and have had it  since birth. Apparently it is genetic, the inability to tolerate certin foods. i have never been a drinker, but have smoked. These makes the acid worse. If at any time anyone would like to ask me questions about any factors relating to this would be only too happy to try to assist.

       

  • wanda39848
    wanda39848 linda3737

    Posted

    Don't waste your time and money having this done again I had several of these and there was never a variation in the resuts. Of course the oesophagus is only partially working because of the bowel pressurising the stomach and blocking off your windpipe. Do you find yourself sometimes almost choking on you excess saliva. I have a half glass of water with around 1/4 teaspoon of bicarb soda and that makes you able to belch and sometimes dislodges what is blocking the base of the throat I sometimes get that my feet are too sore to walk on and that is the excess acid that builds up in the system . As I have just put on another posting I would be only too happy to answer any questions that one may ask. I sometimes feel that I know almost as much as the GP about  these matters. GP's I feel are only good for toe aches and then they cannot fix it. Jusyt pass you off as being hyperchondriac
    • linda3737
      linda3737 wanda39848

      Posted

      Thank you Wanda for all your advice and offer to help with any questions.
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