Hip pain
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Hi. I've been diagnosed with PMR since sept 2016. Started at 15 mg prednisilone now down to 6 mg. Over the last few months have had terrible pain in one hip and sciatica. I have mild arthritis in that hip. I am having private osteopath treatment Dr referring me for HSBC physio but said it could be months before I'm seen. He says I have Pitformus syndrome and sciatica and bursitus. Treatment is working. ...slowly. my question is. has anybody else had this and do you think it is connected to PMR. Should I up my pred to see if it helps. Any advice please
0 likes, 26 replies
Twopies christine1953
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ptolemy christine1953
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liz12234 christine1953
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EileenH liz12234
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liz12234 EileenH
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Michdonn liz12234
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Liz, I believe you always must keep a bit in reserve. I didn't the first time around and learned my lesson. I now take the amount that is necessary to control my pain. Then when I am stable I inform my Rheumy and get told I am a bad boy. ?? Thinking positive!
EileenH christine1953
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When mine is bad I do raise the oral pred - but I also almost always get steroid injections for the bursitis and therapeutic massage to remove the knots in MPS and then I need less pred. I also tend to have to wait a few months tp get a physio appointent so I always put in a request long before it becomes a problem.
christine1953 EileenH
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Hi Eileen. After 4 appointments with osteopath I wasn't any better so decided to up preds to try and see what what PMR and what wasn't. Immediately felt some relief. The osteopath asked me to get updated x-ray on hip to be able to move forward with treatment. When I mentioned to Dr. I had taken higher dose and why, he was not impressed. Told me that the piriformus and bursitis PMR are not connected !!!!!!! ! and to go back to lower dose. I so want to ignore him at least until next x-ray which is on Mon. Any advise ?
EileenH christine1953
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Any advice? Find a new GP who knows a bit more about PMR or who is willing to learn! Even my rheumy told me yesterday he always learns something from me - and he is a world name in the field!
Bursitis is an integral part of PMR. Piriformis tends to be associated with myofascial pain syndrome - but MPS is found more often in people with PMR. The trigger points in MPS are concentrations of the same inflammatory substances that cause PMR except in PMR they are systemic, in MPS they cause areas of inflamed and hardened fibres which can be felt as knots in the large muscle groups. They irritate the surrounding muscle and also local nerves - you can have piriformis affecting the sciatic nerve in 2 forms: one where the nerve is actually through the middle of the piriformis nerve and one where it is the MPS doing it. And you can't really tell which is which. Physios probably can - I;ve yet to meet the GP who could. Even an orthopaedic specialist couldn't get it right for me. Said it was wear and tear in the spine and I'd have to live with it. Hence my scepticism about doctors on the subject! The Pain Clinic doctor here got it right though - and sorted it.
christine1953 EileenH
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Thanks Eileen. All your info was so helpful. I've got x-ray on Monday and will show your comments to my osteopath. It all so makes sense when explained. I'm not lowering my dose until I am ready. I'm feeling so much better. I'm afraid until I got this illness , my Dr was exceptional. He still is but knows nothing about PMR and I have been in pain for months and fobbed off with pain killers but who can tell if I changed GP would I get one that knows the best treatment. Nope I've decided I'm on my own with a little help from friends here.
EileenH christine1953
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tracey81846 christine1953
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EileenH tracey81846
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tracey81846 EileenH
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veronica81435 tracey81846
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Same here mines started at age 44 🙁 I’m 50 now and still cannot shake the dam disease it off . Just got digonosed with GCA last October .
veronica81435
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EileenH tracey81846
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Then it is time your rheumies got up-to-date with the subject. The guidelines say "over 50". I was still 51 when the symptoms started and I also had "normal" blood markers - like about 1 in 5 PMR and GCA patients.
ptolemy tracey81846
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tracey81846 ptolemy
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ptolemy tracey81846
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