HOT WEATHER !!

Bee70 · 2015-06-30T17:02:29.79+00:00

Hi AllHow are all Fibro People coping with the heat we are experiencing at the moment?I am finding it unbearable, as with already have heat in my body, the outdoors is unbearable.I was at work today and our office has Air Conditioning and it felt great. Until, I finished work and left the building how HOT it really was outside. I have a 30 min walk to get home and I was toasted by the time I got home.I am finding the pains in my hands are bad at the moment and I am also experiencing pains in my elbow areas too.Staying calm and positive I am getting on with my day.Stay cool and enjoy the natural vit D......

Bee70 TeresaJS

Posted 8 years ago

At the moment hands are so painful and weak to hold anything.

christine26761 Bee70

Posted 8 years ago

Feeling for you Bee..I'm the same and it's winter here..unreal isn't it..the IA really hates the winter and it loves the summer as does the Fibro..I've git one finger on my right hand that I can still use..hence my posts..lol..gentle hugs from over the seas..hope thing get better for you really soon...I've got special arthritis fingerless support gloves on....still sore, hot water bottle for each hand. Lol....Started taking tumeric tabs today...just couldn't get enough in my food...bit pricey..on top of the rest....here's hoping...be blessed :-) xx

kaz_40 Bee70

Posted 8 years ago

Hi Bee you have my every sympathy, I am going through exactly the same, I wish you could all see me trying to type pressing keys with a pen. hands fingers very painful. all day yesterday I had trouble gripping stuff, oh the joys of having fibro take care gentle hug thinking of you. hope your manging to keep cool

bronwyn97278 kaz_40

Posted 8 years ago

Hi all; I am reading your messages, and am concerned. Do any of you take Amitriptylline and any anti-inflammatories? These are what I find really helps when the heat hits us (the Amitriptylline for the Fibro pain, and the anti-inflammatories for the joint pain) otherwise if you find you can't take either of these, how about trying some steroid injections into the finger joints (other joints).....I had several over a period of a couple of years, going back at least 4 years, and don't have that problem, really, at all, now. (my Rhuemy would inject 3 joints at a time, and then I'd go back in 3 months and have more joints injected....fingers/toes/ankles/wrists/shoulders/knees/hips/ribs....you name a joint, I had it injected.....it is worrying to know that so many of you are hurting so, and am wondering if you are receivinng the good treatment that I am lucky to have had???....thinking of you all....Bron

kaz_40 bronwyn97278

Posted 8 years ago

Hi Bronwyn Im not on any tablets for anything my gp is concerned about me not being on anything. But Ive reacted so badly to everything Ive taken?I will have a word with her about steroid injections as hands fingers are really bad.Im in so much pain with them trying to type text hold anything is a nightmare at the min Im battling a really bad headache at the min, and Ive visitors coming this afternoon. I dont want to put them off as I never get visitors during the day.not feeling great today at all. never mind plod on. sounds like your being really taken good care by your health proffessionals mine arnt so good.thinking of you take care gentle hug

kaz_40 Bee70

Posted 8 years ago

I went to Able world on sunday and got me some aids I got a cup which has got 2 handles on. as I cant hold a cup with 1 hand. I also got some cutlery which is specially designed for people that are having trouble holding normal knife fork. mu husband has had to start chopping my food up. Ive also noticed its taking me forever to eat a meal now Ive got the headache from hell today, doing great between us take care hun thinking of you xx

bronwyn97278 kaz_40

Posted 8 years ago

Me back, Kaz; can I ask (what prob sounds like a silly...and going to be a Long winded answer) what have you tried, medication wise, and any natural therapies, like physio/pilates etc? I agree with your GP, there are so many new meds on the Fibro list now, as more research is being done, and new medications being recommended, that there May Just be something that could help????....only out of concern, as I Know that I couldn't/wouldn't be able to survive without same....even Gabapentin??.....talk again in morning.....actually may not get back as quickly, as have 2 of grandchildren over staying for a couple of days...school hols here......Bron

kaz_40 bronwyn97278

Posted 8 years ago

How lovely having your grandchildren over to stay that will keep you buisy

You name every tablet their is on the market Ive tried it. 2 months ago my gp tried me with a pain patch put me on a very low dose, the lowest she could go.I put it on, on the monday and by the wed I was very ill dave had to phone our local shrop doc as it was out of hours he said to take the pain patch off immediatly for dave to keep an eye on me for me to get in touch with my gp. which I did she said I am so worried about you and tablets the affect they have on you. Ive been taking Strong 600mg of Ibroprophen but they arnt agreeing with me now. Im going to speak to her see what else we can come up with. Im using a hot waterbottle Ive brought some bio freeze I grit my teeth through the pain my pain threshold has always been excellent but fibro pain is something else. have a lovely time with your grandchildren take care gentle hugs

kaz_40 bronwyn97278

Posted 8 years ago

Have had physio he cant do anything else for me tried accupucture. didnt work gentle hug have fun with grandchildren x

lisa52101 kaz_40

Posted 8 years ago

Hi Kaz, what a shame your struggling so much. Like Bronwyn, I too take Amatrptylin and find it really helps. I was until a couple of months ago on Naproxen but I had to come of it as it was really damaging my stomach, as anti inflammatorys often can, but they helped so much with joint pain. I also take pregabalin which is a similar drug to gabapentin. The rest of my fibro mess are also to help with OA such as fentanyl patches, so quite a mix. On top of that I to have steroid injections in my spine and hips and if they don't work I've needed a couple of surgeries. Again I have these options for the treatment of OA as opposed to fibro.

I do think we need to be pushy with our Drs, after all they're not the ones who are trying to live with it, we are. I really do hope you start feeling better soon, as I hope everyone who is struggling does.

Gentle hugs every one xx

kaz_40 lisa52101

Posted 8 years ago

Hi lisa Ive tried the tablets you have hun the reactions I had were very severe. my dr said shes worried about me where tablets are concerned. the ibuprophen I was taking is now upsetting my stomach and causing me have alot of reflux. Im sure something is out their for me to help me its finding it. my drs had me on everything its just seeing what else we can find for me. take care lisa get plenty of rest you need it after yesterday gentle hugs thinking of you xx

christine26761 bronwyn97278

Posted 8 years ago

Hi Bron, just reading these posts..I have taken Amitriptlyne now for about 17 years. .it's the only med that I get a good nights sleep with no pain or muscle issues..in fact it's the only prescription drug I take..I can't take any anti inflamitiory unfortunately....but I do take 2 Osteo Panadol 3 x a day.....just pray it was a bit warmer here..we actually have snow on the mountains...be blessed..have a nice day tomorrow:-)

Bee70 kaz_40

Posted 8 years ago

Today has been extremely hot in West London. My youngest son had his end of year 6 concert at school. It was 34 degrees centigrade in the school hall, luckily the doors were open and fans were being used. The concert was fab. My husband and two sons have gone to his parents for a BBQ, I decided to stay at home as my hands are in so much pain.

I just going through all the messages on this forum and then I will treat myself to an ice-cream to cool down.

Hope you are doing well. x

Bee70 christine26761

Posted 8 years ago

Gentle hugs to you. I hope you get some relief too from Fibro pains.

xx

kaz_40 Bee70

Posted 8 years ago

Hi Bee Hope it this weather cools down soon my husbands struggled at work today in Hope your husband and sons enjoyed the BBQ. I had a friend and her partner come today, my friends in a wheelchair unable to walk so we sat in the garden it was scorching hot wasnt agreeing with me at all. I was so relieved to get back in the house when they had left. Ice cream yum yum. I use to love going and watching my 2 boys in concerts and sports day.In a morning I have to go and put my hand under hot water. As it just so painful my thumb is normally bent over the only to way to straighten it is under hot water the hot water helps with the pain. Have you thought about a wheat bag that you can put in the microwave to heat up then put on your hands. I got some sunday when I went to ableworld I think they are £3.99.My back legs hands have been very painful today. hope the icecream has help you to cool down

take care hun gentle hug xx

janet26165 kaz_40

Posted 8 years ago

Hi Kaz. Just read the transcript of the fibromyalgia debate in Parliament today. Seems that they taking notice and are going to contact the NHS person in charge of chronic diseases. If you live in Berkshire you could be in luck they are setting up joint working between hospital and fibromyalgia support group to provide better care for fibromyalgia patients. It made interesting reading. I went to Parliament on the internet and then to Westminster hall. Hope you get some sleep tonight. Gentle hugs

janet26165 kaz_40

Posted 8 years ago

Hi 🙋 Kaz. Hope you managed to get some sleep. I managed between 1 & 2 hours at a time last night. Getting ridiculous. Seeing the GP in a couple of weeks after yet another blood test. Luckily I give it up quite easily. My dog is a staffy cross. He's a bit of a looney. Hope you had a lovely time with your friends. Apart from my husband I also seem to see no one during the day. Hope your headache is better today. Gentle hugs.

kaz_40 janet26165

Posted 8 years ago

Hi Janet like you I had an hour I was up most of the night with my dog. he was so unsettled didnt know what to do with himself because of the heat bless him. headache has eased but has been replaced with rageing earach

.aIve got to go for a blood test got to make an appointment today. its was lovely to see my friend yesterday her partner it was great to get caught up and have a good chat.A neighbour of ours has 2 staffies they are lovely dogs. hope you have a lovely day today and not in too much pain. hope it goes cooler today its killing the plants I brought sat? take care gentle hug

kaz_40 janet26165

Posted 8 years ago

Hi Janet thank you for that I will see if I can find it and read it we need better support and care unfortunatly I dont live in Berkshire.hi janet just got an hours sleep again take care gentle hug thank you for the info x

kaz_40 janet26165

Posted 8 years ago

Hi Janet I have just sat watched the video from yesterdays debate in westminister hall, I found it very interesting hopefully now fibro will be put out their more drs specialists will hopefully be better educated in it. hopefully research will be put into it to find a cure we can live in hope

janet26165 bronwyn97278

Posted 8 years ago

Hi Bronwyn. I have osteoarthritis as well as fibromyalgia. My then new rheumatologist took me off 4 different tablets that I was taking for the arthritis and left me with the etodolac when she diagnosed me with the fibromyalgia and started me in gabapentin. My GP started me on amitriptyline when I couldn't sleep. Unfortunately it stopped working in 2011after I lost my father. We then tried codydramol, which eventually stopped working and are now trying cocodamol, which again has stopped working. Due to see GP again in a couple of weeks. Hopefully we can sort something out then. I haven't slept more than a couple of hours at a time for the last few weeks. Hope you are having a good day. Gentle hugs

bronwyn97278 janet26165

Posted 8 years ago

Hi janet; how much Amitriptylline were you taking ( I have had to up mine to 35mgms per day......but know that the normal dosage can be upto 75)...I also take 800 mgs (400 twice daily) of Gabapentin, and with Voltaren and Pariet to protect my gastric lining......Do you live in the European countries where it is now in Summer monthes, with the heat.....I survived on 10 mgs of Amitriptylline for many years, but upped the dose in November, here, in Australia, when we had a Severe heat wave, and I have always found the heat to exacerbate my Burning Pain (Plus as you say, any extra stressors....I too first started with Fibro after nursing my Day)...and any extra continual physical exercise (like tonight my shoulder blades are burning....over tired and exhausted)......will be interesting what you find that works for you, now. I have tried Many other meds (Lyrica didn;t touch me....Cymbalta made me Cry all day)....also for the Osteo, I take Oxycontin 20mgs twice a day, so guess that is similar to your Cocodamol...............please let me know what you think works Best for you...am always open to what will help (especially like tonight...am going to have that Epsom Salts Bath).............

Bron

janet26165 bronwyn97278

Posted 8 years ago

Hi Bronwyn. I live in the U.K. I was on 10mg of amitriptyline. I also take 1200mg of gabapentin 3 times a day, I also take omeprazole to protect my stomach. Although I do have other gastric problems. GP has become more supportive since the diagnosis of fibromyalgia. I am no longer under the hospital as they said they could not do anymore for me, but if I had been referred in10 years time they would have known exactly how to treat the fibromyalgia. Nice only another 8 years to go. Take Gentle hugs

janet26165 kaz_40

Posted 8 years ago

Hi Kaz. How are you today? I managed about 4 hours last night in about 3 bursts. My Husband said I was thrashing about last night and the night before I was doing semaphore in my sleep. Must have been having some wierd dreams, but don't remember. Been shopping this morning, am now knackered for the rest of the day. Gentle hugs

kaz_40 janet26165

Posted 8 years ago

Hi Janet thank you for asking, Im not feeling well at all today. I was in so much pain last night I sat cried my eyes out my poor husband didnt know what to do with me from my ear to the left side of my head I was in so much. I went to bed and rested my head on the hot water bottle. I had a wheat bag on my left hand as I was in agony with that. I drifted in out of sleep. at 2am my husband did me another hot waterbottle. I didnt want to get out of bed this morning but charlie my dog needed to go out.I know when Im not well as I dont want to get out of bed. how are you feeling to day. I do my shopping on line now my mobility isnt good if I go out my husband has to push me in a wheel chair you take care have agood rest and a good weekend gentle hug

janet26165 kaz_40

Posted 8 years ago

Hi Kaz. So sorry to hear you're not feeling too good today. I am thinking that I am going to have to start doing my shopping on line as it is taking me longer and longer to do things. I also look after my husband who is disabled. It makes it interesting in the morning as to who is the worst. I also have problems with my ears and have had numerous lots of antibiotic eardrops'. Seen an ent specialist who told me it was part of the fibromyalgia and there was nothing that could be done. Have you seen your GP? Gentle hugs and hope you feel better soon 😊

kaz_40 janet26165

Posted 8 years ago

No havnt seen my gp I just put it down to the fibro, I had earache a few months back she checked my ears then they were fine you take care gentle hugs thank you Im hopeing it soon goes off xx

bronwyn97278 janet26165

Posted 8 years ago

Morning Janet; oh woopy do....let's fast forward to 8 years, and give me (all of us), some time to enjoy ourselves......today my Neck is driving me balmy....trying hard to Think...and not sure "how/which way to sit"....so I am going to write up a calendar for the next 8 years (that's 2023 right?)....and start counting down the days...and I'll be 65..so plenty of time left....actually you've got me all excited, for I was told this old Fibro will be with me forever.....Thankyou so much...now I'm happy.....

Hi Janet; THANKYOU....so I can now do up a calendar upto 2023, and start marking off the days......only 8 more years of this, when I thought I had to live with this forever......today's not much fun....even trying to write and get myself uplifted, is being a bit of an effort....can't think straight...neck seems to be a Bit lop-sided...and back end seems not to be able to find which part it says I can use.....happy days....Bron

bronwyn97278

Posted 8 years ago

Oh gosh, now I have made a big "stuff up"...wrote one reply..thought I had lost it...wrote another...now you've all got both plus this......see told you i was "all over the place today"......

christine26761 bronwyn97278

Posted 8 years ago

I've done that a couple of times..mmm?? don't know what happens, it just disappears on my screen, so I write another one..wouldn't have a clue if I type the same thing though, as I don't see it, yours came through on the same message with a 3cm gap.....lol...have a lovely day Bron..it's going to be quite nice down here, lovely when the suns shining, no matter hiw cold it gets...we have had a couple of days of frost nearly all day, but it's lovely and warm inside a good days fir watching Netflix-no download charges...can't believe how cheap it is and so great it is to be able to watch YouTube too, on the big panel it's just awesome..I love documentaries...sometimes I feel like I've been in another country on holidays...lol...be blessed..:-) xxxx

bronwyn97278 christine26761

Posted 8 years ago

Morning Christine; you really amaze me how you always sound sooo chirpy...............and yes; I, too, have been told re the Netflix....if I could only find the Patience/or someone to do it for me....hah...there are times when I don't like going out of my "safety" zone....I used to be fine..these days just can't seem to get the strength/time.....yes it was nice having both grandkids over, but am suffering today, as Harry is only 8, so am not game to let him out of my sight for long...hence no rests/sleep last two days......Courtney is different, as she is nearly 15, and does, also like her "me" time.....and then we Talk and Talk and Talk... took them both shopping on Thursday, so that drained me (physically) too...but better to have them than not.....Harry's mother is taking next week off to spend with Harry, as father is away......Courtney will come back ?Monday......3 of my own are coming for dinner...(Gabe, Daniel and Phillip), so need to find the energy to cook them a Decent meal....(and the trip to shops to buy some vegs etc to go with the chicken....Gabby wants Chicken and Almonds, as she says she hasn't had Home Cooked same for a Long time.......enjoy your day..............Bron

christine26761 bronwyn97278

Posted 8 years ago

Chirpy...mmm...like that one Bron...we have people over a lot for dinner and use versa...I use my slow cooker sooo much in winter..I made -(or should I say the slow cooker did, all night) make a lovely beef curry..all I had to do was: put some raw cauliflower in the blitzer, blitz it like rice..put it in the microwave for a few minutes..that's dinner done!! Looks like I've been slaving over the cooker all day..lol. My husband is such a helper, he gets all the things out I need..cuts the Vegies too...I cooked a large piece of pork in it all night with some apples apple vinegar spices etc..etc..I'll try anything once...beautiful..pulled pork...cooked the crackling and veg in the oven..yumm...I do love cooking but, I made 3 Massoukas yesterday...froze 2 mm....I'm making no cook desserts too at the moment....trying anyway....I must stop talking about food...

must be lovely for you having grandchildren to share your life with..we only have one here in Tassie..we have him Wednesdsys...sooo love it..he had a sleepover last night..he is nearly 3 going on 6 ...lol..know what you mean about watching the all the time..we go to an inside play centre in winter...by the time we have lunch out he comes home has a little sleep mum is home...it was lovely having him sleepover last night..he are all his dinner..lot if Vegies..all his dessert..so I said: Noah would you like a cookie now...he said: no nan...it's nightime....just making lovely memories ...be blessed Bron..have a lovely day tomorrow...hope your dinner with the family goes well..mm don't know weather I could cook different meals like that.

recon I would be making chicken and almonds for them all..lol.

pam_87693 TeresaJS

Posted 8 years ago

Hi you saw me on Twitter! I don't really do Twitter yes I have Primary Sjogren's, Hypothroid, Psoriasis, PsA, Hypermobility syndrome and POTS!

janet26165 kaz_40

Posted 8 years ago

Hi Kaz. How are you today. I'm still on the sore side. Stopped the statin on Friday night and can't wait for it to be out of my system. Spent most of last night with cramp in my jaw. Yet another joy of fibromyalgia. How's your dog, is he feeling any better for being on the antibiotics. Anyway take care and gentle hugs. Hope you have a good Sunday.

kaz_40 janet26165

Posted 8 years ago

Hi Janet Im having trouble with my jaw it was really bad last night it felt stiff is the only way to describe it, my face felt numb also. I managed to get 6hrs sleep last night which was good for me. as normally I either dont sleep or just manage an hour. Im in pain with back legs and hands. sorry to hear your feeling sore hope it soon eases for you. charlie still isnt good bless him all hes doing is sleeping, he just wants me to hold him. he goes back to the vet on the 21st june. hope you have a good sunday too take care gentle hugs

kaz_40 TeresaJS

Posted 8 years ago

morning Teressa Hope your not in too much pain hope you have alovely day and weekend take care gentle hugs xx

kaz_40 janet26165

Posted 8 years ago

afternoon Janet how are you today, hope your not in too much pain hope you managed to get some sleep last night. hope all goes well with your drive to manchester. I managed 8hrs sleep last night of which I was thankful for. My IBS has eased thankgoodness I think it was the stress worry over charlie. charlies isnt too bad today we had to nip out and took him with us he was very chaffey in the car non stop barking it drove us mad.? enjpy the rest of sunday take care gentle hugs x

janet26165 kaz_40

Posted 8 years ago

Evening Kaz. I managed to rest most of yesterday, but only managed about 4 hours sleep on and off last night.

The drive went okay to Manchester, it was one straight road from Liverpool, until we came to the turn off, then it was a whole lot of right and left turns. We then had to do the same back with my sonin law hanging onto the chest of drawers from the front seat while we were doing the reverse set6 of left and rights.

It was great fun lol.

I am absolutely knackered now and finding it hard to keep my mind on what I am actually writing to you Hope it makes sense.

Hope you have had a nice weekend and hope you manage another 8 hours tonight. Glad Charlie seems better today, they do like to make us worry.

Take care and gentle hugs x

kaz_40 janet26165

Posted 8 years ago

Hi Janet sounds like your trip to manchester was fun pleased it went well for you. Hope you manage to sleep better tonight.The trip out may help you sleep better with you being so knackered. I would chill relax for the rest of the evening. dave I had a ride out today it does you good to get out if you can. charlie seems alot better thankgoodness. enjoy the rst of your evening take care gentle hugs x

HOT WEATHER !!

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