HOT WEATHER !!

morning Janet how are you today? did you manage to sleep ok? I had no sleep at all I was up all night just very restless and unsettled. Im in alot of pain with my hands today  never mind plod on. hope you had alovely day and time with your daughter son in law yesterday. hope you have alovely day today and weekend take care gentle hugsx

Hi all; isn't that funny....for me the Hot weather is the worst....that's when I get the "burning" sensations....last November, when we had a heat Wave here, that's when I had to increase my Amitriptylline to stop the pain....and still find it's the only med/treatment that relieves that pain........Bron

Hi bronwyn the heat isnt helping me Im still in pain what ever the weather? take care thinking of you gentle hug

Hi christine Im in pain what ever the weather, the hot weather has never agreed with me, even before the fibro. hope your managing to keep warm we are in summer time in the uk we are in a heat wave, Im just about managing to keep cool. no sleep again last night Ive got a pounding head and painful hands fingers never mind onwards upwards keep warm take care gentle hug. seems funny saying to you to keep warm when we are boiling hot 

Lol..:-) xxx

It's unreal how the weather and Fibro works so differently for each of us...Amitriptylline is the only med I take and it works just awesome for me...as long as I get that good nights sleep I can cope with anything...Osteo Oanadol 3 times a day tooo...now that's a good over the counter one. Gotta say I really don't like too much heat...but that's just me...that's why Tassie is great weather..only ever has a couple of days 40* in summer??average is about 26....be blessed...have a lovely day..:-) xxx

Hi Kaz

Still NO sleep. Hope your day with your visitors went well and not too stressful.

Gentle hugs  x

Hi Bee wish we could both have some sleep, I had some last friday but nothing since. Had lovely time with my friend partner it was great to catch up and have some company. I dont normally get to see any 1 during the day I enjoyed my time with them hope its abit cooler tomorrow gentle hug xx

morning Bee how are you today hun hows your hands have they eased any. did you mange to get any sleep? I had about an hour Ive got rageing earache today hope its going to be cooler today take care gentle hugs

Hi lisa You reas my mind I was just about to message you. I was wondering how you were after yesterday. I thought you might be in alot of pain discomfort bless you really feel for you.If that wasnt enough to cope with hearing about your daughter her not being good having black outs that a worry for you, then to find yourfreezer door open food wrecked can the day get any worse no on second thoughts dont answear that 1. Monday 2am in the morning I couldnt sleep I started to think about fibro not a good thing to think about when this poem started going round in my head so I sat up found pen paper wrote it down. I was hesitent on putting it on the forum as maggers is a hard act to follow. but thought hey ho give it a whirl. I use to love poetry as a child. I hope your pain discomfort will ease up for you and hope your daughter will be go ok try get plenty of rest take care thinking of you gentle hug

 

I know, rubbish day, and your right I never say that phrase. It tempts fate far to much. I know things will settle for me in a few days and fingers crossed it will put the inevitable surgery off for a while. As for my daughter, again it's a lifelong condition and she too will have good times and bad. I wish she didn't have such hard times when they are bad though. 

Following Maggers really is a tough act to follow. I too write poetry but I think I'm a little to nervous to follow Maggers. I take my proverbial hat of to you, maybe one day I'll follow you both. 

I really feel for you too, having such a painful time. Have you tried hydrotherapy. If there was something I wish I could do on a regular basis, that would be it. You have to be really careful not to do to much so as not to trigger the extreme tiredness, but the affect on muscles and joints was heaven for me. Bless you for your concern for me, it's been very much appreciated. 

Very gentle hugs for you xx

Hi lisa I havnt tried hydrotherapy yet I think we can have it at our local hospital for so many weeks same as we can get accupunture for 12 weeks free.I agree with you we have to be careful what we do so that we dont make matters wose fo ourselves. I feel for your daugter and what she has to endure bless her. rest up take care gentle hugs xx

I do hydrotherapy myself..once I learnt what to do at the hospital,, I just use our local resorts indoor heated swimming pool a few times a week. I've been doing it for years...it's the only real excersing that I can do..soooo good for you..some days I can only go in 1/2 hour walking up and down...but the doctor says that's really good for me too....gentle excersing.., just sitting in a pool and having water lap around you is very good for circulation too..be blessed Kaz..:-) xxx

Thank you for sharing that with me christine much appreciated have a good day take care gentle hug

My local hospital will only do 6wks at a time, but I recently found out that as long as you don't mind the process, you can just keep being referred at the end of each course. I going to see my GP as soon as I can get an appointment and get another referral.

Hi Christine, I tried to do the same thing as you, but found the water at my local pool far to cold. It would be so good if I had a better pool to go to as any excercise would be good in the water. I could go as often as I felt able and far more convenient than traveling to the hospital. 

So glad you have somewhere local. 

Gentle hugs 😊

ours do it for 12 then thats it people have been complaining about it, each hospital seems to be different by what they offer. Ive had pounding head all morning its starting to ease off thankgoodness as it was making me feel sick how are you doing have you managed to get some sleep and rest? gentle hug take care

Thats good your hospital letting you keep being refered  

My friend and her partner stopped an hour it was good to see them and have a chat catch up   I dont normally get to see any body during the day so it was nice x

I would be lying if I said it was a good day today 😔 Funnily enough I've just come back to bed to try and get some sleep and noticed all my emails. I thought I would respond to all of you friendly people, leave the rest and then try to get some rest. 

Im glad your headache has started to ease, how was your company or are you still waiting. 

Thanks for asking again. Talk to you all again later. 

Sounds like you need the very gentle kind of hugs today. 😊

It was lovely to have some company weve been friends since 1994. 3 years ago she had a stroke shes now in a wheel chair bless her it was great to see her and have a good chat. Im going to get me a drink Im drinking loads you take care and get some much needed rest gentle hugs I need them loads today how Im feeling

Hi Lisa

Please do share your poetry with us. Maggers won't mind and it will be nice to hear your words of poertry. 

Gentle hugs  x

Hi Lisa,

Poor you.....gentle hugs to you. 

That's alot to go through but people around are helping wherever needed. Your daughters boyfriend must be a godsend for you as you can rest assure that she is not on her own.

Freezer products can be replaced, but ever so annoying freezer door not quite shut......easily done.

One day at a time  x

The one I use is indoors and heated...I just couldn't use an outdoors pool..even in summer here...brr too cold...you could always use a wetsuit..keeps you very warm..but just imagine the look ..lol....mmm..be blessed..have a lovely day..:-) xxx

Thanks Bee, I'll give the subject some thought. 

Re.. My daughter. I'm so glad she has someone who looks after her so well. I found out this evening that the fan they have wasn't keeping her sufficiently cool enough so he went out and bought an actual wind machine 😃 how's that for devotion? I really do feel much more at ease that he's there for her.

Ahh bless him hes a gem sounds very loving caring young man bless him how thoughtful to go out and get that for her. hes taking really good care of her which helps to put your mind at ease.take care lisa thinking of you gentle hugs