Posted , 14 users are following.
it seems the more I learn about PMR the more anxious I become.
i am sure most of you have felt this way especially at the onset.
How do you deal with this on top of all the other discomfort?
about two weeks ago I had a couple of great days like nothing was ever wrong with me. I felt so good I made reservations for a cruise and then after I decreased my pred from 11 to 10 it went down hill.
Although I am back up to 20 and the pain has mostly subsided the fatigue has not. Is this how it will always be or can I hope for more good days then bad?
also, the mild headache is stressing me out. Am I suddenly going to go blind while I'm waiting to see a neurologist to rule out anything else.
I used to to hate the spots on my arms but they have become the least of my problems.
Off ft to my GP today. Sooner or later when they see me coming they are going to lock the doors😃. I am their only patient with PMR. I also have a good rheumy now who fully understands the condition.
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