How I cured my vulvodynia
Posted , 116 users are following.
I see so many posts on here about constant or provoked vulva pain that I thought it might be useful if I explained vulvodynia and how I cured mine. Vulvodynia literally means vulvar pain and is a condition of the nerves in that area. The nerves have become hyperactive and hypersensitive due to trauma which can be chemical or physical in source or due to infection. I think mine was due to persistent thrush infection and the many remedies I tried to cure it, including home remedies such as bathing in a bath with some cider vinegar in - that made my soreness much worse (chemical trauma). Vulvodynia can cause itching, sore or burning sensation and this can be continuous or provoked (only happens when the area is touched). The nerves are so hypersensitive they register touch as pain and the usual way to diagnose it is to touch around the vulvar area with a cotton bud and where the touch registers as pain then that is the affected area. It can involve the whole of the vulvar area or can be in a horseshoe shape toward the posterior (which may also involve the perineum) or the anterior or can be offset to one side. The pain is a form of chronic neuropathic pain because it stems from nerve damage as opposed to nociceptive pain which is caused by tissue damage. Neuropathic pain can be very hard to get rid of. It took me 1.5 years of determination and the occasional disappointing set back to cure my vulvodynia. Probably more like 2 years to get back to normal.
Ok, ready for a long story about how I cured my vulvodynia:-
First I saw a gynaecologist. He took a biopsy of the painful area and confirmed no diseases or cancer. He put me on amitriptyline and steroid cream. These slowly worked for a while and made me comfortable enough to have a long overdue smear test. I had the smear test and the pain came back full force - back to square 1. By that time I had used the steroid cream for as long as is recommended and had stopped it (long term use not recommended). However, desperate to get rid of the pain I tired it again, but this time the cream stung me and made the pain worse. The gynaecologist gave me lynocaine cream to numb the area, but that stung me and made me worse. Nothing was working and in the end the gynae said that he could not cure me he could just help me managed the pain. Well, I wasn't going to put up with that for the rest of my life. So I did some investigating to find someone else who could help me and found a dermatologist consultant in Oxford who specialised in vulva pain. I also found some medication on the internet, made in Italy which is a gel is specifically for treating vulvodynia. It calms down the overactive and hypersensitive nerves. Saginil gel - you can order it direct from the suppliers, epitech, on their website. You can do this because it is not classed as a medicine because it is made of natural plant-based ingredients. It is expensive, as is the post from Italy, but I am so pleased I bought it because it was the only thing my skin could tolerate there and it did make a difference - it reduced the pain so that it was bearable and I could function better with daily life.
i saw the dermatologist and she told me all the things that she had found worked to get rid of the pain, but nerve pain is difficult to get rid of so she suggested I try them all and stick at it. i was surprised because, appears from upping the amitriptyline dose to 50-70mg a day (I was on 20), the rest of the things were what you would class alternative, or natural, cures. They were: western acupuncture, physiotherapy, chiropraction and manual desensitisation. Now, different things work for different people because there are different causes for the vulvodynia: infection, physical or chemical trauma, hormones, trapped nerve in back. I knew mine was caused by repeated and persistent thrush and the various treatments I tried to get rid of it (including cider vinegar - ouch! No!). So I didn't see a chiropractor because is didn't thing it stemmed from a pelvic nerve problem, however, from what you describe, yours might. I did do yoga exercises that free trapped pelvic nerves. I bought a book on pelvic floor exercises and did those, rather than see a physio. I did the manual desensitisation - this is where you stroke yourself very lightly in the painful area, using non-irritating lubricant (I used oil based lube by yes, or coconut oil), just once the first day. Then each day you gradually build up the strokes in number and pressure. The idea is that you are retraining the nerves to register touch as touch and not pain. So, massage yourself there just enough so as not to cause lasting pain afterwards. I built it up until I could do 100 strokes of fairly good pressure, then I moved into inserting a finger, then two, then the tip of my husband's penis and then gradually out him in a little further each time, until I could get most of him in, then starting moving with him in, again gradually building it up each time. I also found a GP that also ran a Western acupuncture clinic. Western means that they leave the meddles in and pass electricity through them. That was what really worked for me - each time I went I just got better and better. Apparently the amitriptyline and the acupuncture work well together to dampen down those hyperactive and oversensitive nerves. I upped the amitriptyline to 50mg as day, very gradually by 5mg every 1 or 2 weeks because it caused side effects so my body needed to adapt to each increase.
Finally, there are the changes to how you live. No tight clothes, no sex (until you are ready), no exercise (I gradually built that up too but walking just a short distance and gradually increasing it - never do an amount that cause she lasting pain). Go knicker free if you can - I work mainly from home so was able to go around with no knickers on and baggy jogging bottoms or a skirt. Sitting also caused problems (I work at a computer) so I got a ring shoved cushion form woman to use after they have given birth and sat in that so that there was no pressure at all on the sensitive area (dame for driving the car). Coconut oil was soothing (raw, cold pressed, organic coconut oil) so I applied that externally and internally with a clean finger after every time I went to the loo (I carried a little pot in my hand bag so I could apply it while out and about with an organic, pesticide and bleach free cotton pad). No scented products on that area, in fact I didn't wash there at all, I used coconut oil to clean the area and when showered I used organic, nasty chemical free and scent free body wash and shampoo and conditioner (because stuff runs down). I also washed my clothes in scent free, kind-to-skin laundry detergent and conditioner. Toilet paper has bleach in it, so I got some tissues that were bleach free and used those to wipe after doing a wee.
The key is to be persistent, try everything, gradually build things up, stick with what works, be determined, don't give in. The consultant dermatologist was very impressed with me because I was so determined and didn't give into urges. She said she had many women who just got fed up with how long it was taking and just went for a long walk / bike ride / horse ride or had sex and put themselves back at square one again. It does take a long time - it took me 1.5 years of all that stuff in my message above to get to being pain free. Even now, 5 years later, I still apply coconut oil after every time I go to the toilet, use tonnes of oil based lube during intercourse, go around the house wear no knickers. I don't want it to come back. I am also still on 50mg amitriptyline a day. At first I was afraid to come off it because the consultant dermatologist told me, you may be pain free, but if you come off it too soon, the pain can come back. So it is best to wait a few months after being pain free. Then menopause set in and I got hot flushes and my GP told me to stay on the amitriptyline because it helps with hot flushes. My body has adapted to it now. I hope to reduce the dose sometime (gradually, by 5mg very 2 weeks, just like I built it up). I still do pelvic floor exercises - the book I got was called 7 steps to pain-free sex by Claudia Amherd. It is mainly about vaginismus, but the exercises apply to vulvodynia too - just don't do them sitting on a juggling ball (ouch) do them standing up first, then lying down, as it advises in the book. Gradually build up the exercises, doing more and more each time. Again, don't do so much that it causes an increase in pain or lasting pain - cut back if that happens.
Also, you need to get some organic, chemical free sanitary towels for when you have your period (no tampons).
13 likes, 1041 replies
Clariver Suki_girl
Posted
hello again Suki. just a quick line to say there is a new book on vulvodynia coming out soon, called viva la vulva. (there is another book with the same title) and will let you know the publication date.good to hear you are doing well, as am I. I tried giving more info but the post was deleted! anyone wanting more info re the book please contact privately. very best wishes and thanks for all you have done over the past few years to help us all.
alicia64607 Suki_girl
Posted
Oh wow what an inspiring read! I am close to tears and I fear for my relationship so much! Could you please tell me who you saw in Oxford?
Suki_girl alicia64607
Posted
I don't think I can post her name on here. I tried to private message you but I think you have messaging turned off.
alicia64607 Suki_girl
Posted
I have no idea how to turn it on and I am desperate to know! Haha ... This has finally given me some hope!
Suki_girl alicia64607
Posted
I still have no vulva pain. I never fully came off amitriptyline. I was gradually reducing the dose but stayed on 20mg to help me through menopause (enabled me to sleep through the night sweats). My GP said I may as well stay on it because my body had already adapted to it. I then reduced to 10mg but got rheumatoid arthritis and was told to stay on amitriptyline because it would help with the joint pain and sleeping at night so I went back up to 20mg.
Crazyitch Suki_girl
Posted
Hey
I had an yeast infection for almost 4-5 months. Due to the delay in diagnosis, apart from itching, I also experienced pain. Now I experience an itch now and then which sometimes feels like a sting. Initially, it was on my labia minora but now it's mostly where my pubic hair is. Can it be vulvodynia? Lasts a few seconds and sometimes when I am preoccupied it doesn't even bother me much.
Suki_girl Crazyitch
Posted
I have never heard of vulvodynia being where the pubic hairs are. By the very nature of the name it has to be in the vulva area. and is usually a sore, burning sensation. It could be some other issue with the pelvic nerves unrelated to the thrush infection. If I ever get nerve twinges in the pelvic area I do some yoga stretches designed to free up the pelvic nerves.
Crazyitch Suki_girl
Posted
Well, how long do these nerve twinges last?
Suki_girl Crazyitch
Posted
With me, just momentary until I can do some stretches. It is difficult to say in your case if we don't know the cause.
LadyMercia Suki_girl
Edited
Hi Suki_girl
I'm new to the site but found your post very helpful so thank you for sharing.
I developed the problem a few years back after repeatedly thinking it was Cystitis. I have suffered on and off since and was using Optilube up until recently, when after applying I had a reaction, so thought I'd give your Coconut oil a try. Sadly after applying three times during the day and gaining relief the first two times, the constant pain is back to how is was.... Did you have issues when you first started applying Coconut oil?
Today I have been prescribed another cream by my GP which I'm advised to try for a week or two and then it'll have to be medication (which so far I've managed to avoid).
Just wondering if my flare up of the last two weeks has anything to do with my second dose of the vaccine?
Best regards
Samantha
Suki_girl LadyMercia
Posted
I have never had any issues with coconut oil. I have not heard of the vaccine causing such issues.
If you are trying the medication free route have you tried acupuncture, manual desensitisation and saginil gel?
LadyMercia Suki_girl
Edited
Thank you for your swift reply.
I have this evening been looking into acupuncture and any recommendations in the Oxfordshire area would be very greatly received.
Wondering if perhaps stress caused my flare up?
I've taken on board your comments regarding the steroid cream as that's what my GP prescribed today so thank you for sharing all your knowledge. It's lovely to be able to get help and advice from someone so aware of this horrible condition.
Have you heard of 'Optilude'? That's what I was advised to use by a specialist at the Churchill Oxford a few years back.
Thanks again & best wishes
Samantha
LadyMercia
Edited
Oh & thank you Suki_girl for the book recommendation which I've ordered.
Suki_girl LadyMercia
Posted
Dis you see the consultant dermatologist who runs a vulva pain clinic at the Churchill hosp? that was who I saw.
Suki_girl LadyMercia
Posted
have you tried saginil gel? it is not a steroid cream, it is made from natural anti-inflammatory plant extracts that moderate the inflammatory response and nerve activity.
Suki_girl LadyMercia
Posted
To find a qualified medical (western) acupuncturist in your area you need to look on the British Society of Medical Acupuncture website and search for a practitioner in your area. Traditional (oriental) acupuncturist can be found on the British Acupuncture Council website. I always choose someone who has a medical background (nurse, physio, GP) and a qualification in acupuncture.
LadyMercia Suki_girl
Posted
I'm not sure who the specialist was at the Churchill but I think she was part of the GUM clinic. Funny how the Optilube worked up until recently....
I have looked online for the cream but am worried of getting a reaction.
Thank you for the Acupuncture info which I will research in more detail.
For the last two nights I've tried to slept with the ice pack but the condition is so horrid my sleep is terrible and I'm totally exhausted!
You must have spent years researching and understanding so thank you so so much for helping me and the countless others on this forum.
LadyMercia Suki_girl
Posted
I've found a lady on the website who is about 25 mins drive from me. She's a GP with a certificate & diploma in medical acupuncture. I'm going to drop her an email now.
Thank you again.
I'm super grateful!
LadyMercia Suki_girl
Posted
And I've ordered the cream you recommend via the supply site; a bit expensive but I'm willing to give anything a try. Like you said, it's finding what works for us as an individual.
Thank you again, I cannot stress how much you are helping!
Suki_girl LadyMercia
Edited
My GP recommended it - it was like s miracle cure of one of her patients. it wasn't quit as dramatic for me but it did help soothe the pain and made it more bearable.
LadyMercia Suki_girl
Posted
Anything is worth a try.
Am waiting for a reply to my email from the lady so hoping I can get an appointment next week.
I'm going to take some of the coconut oil with me next week when I have to travel to London on the train and hoping if I only use a little it will help with sitting down.
Your advise to wear no knickers at home is helping too.
Thank you
Suki_girl LadyMercia
Posted
I always stood on trains. I just had a thought. My 18 year daughter has now got vulvodynia but not from infection, from nerve trauma due to endometriosis. She uses weed and, while it is working, is completely pain free. I wish I had used it to give me some relief, but I didnt know where to get it from then.
LadyMercia Suki_girl
Posted
Weed as in Cannabis?
Suki_girl LadyMercia
Posted
Yes. It really helps with pain, particularly nerve pain. Certain strains are better for pain than others.
LadyMercia Suki_girl
Posted
I'm an ex smoker so that's not going to be an option for me sadly....
Out of interest, did your GP refer you to the specialist at the Churchill?
Thanks again for answering all the questions.
Suki_girl LadyMercia
Posted
Have you tried Yes oil based lubricant? That is nice too.
LadyMercia Suki_girl
Posted
I haven't yet but I had made a note following an earlier post of yours. Are the water based ones no good? A bit concerned using more than one cream/treatment at a time. I'm going to use the steroid cream for the next 7-10 days as directed by my GP (I've used super small amounts so far & only twice), and then I'll try all of your suggestions.
I'm guessing the acupuncturist doesn't work weekends as I didn't get a response to my email, so I'll try her again Monday.
Thanks again
Suki_girl LadyMercia
Posted
The water based lubes stung me and made my condition worse. Like many women who have vulvodynia I found my skin in that area became very sensitive to many creams and ointments. Everything except coconut oil, yes oil based and saginil gel. Steroid cream worked for me for a while then I became sensitized to it and it made me worse.
LadyMercia Suki_girl
Posted
I'm hoping that won't be the case with me but we'll see I guess....
Did you feel like you always needed to pee? I also find the first pee of the morning feels like it has woken up the nerves. Could my bladder be a contributing factor at all? The pressure maybe??
Did you use the coconut oil, yes oil all in the same day? I mean mixing & matching throughout the day or one one day and another the next?
Sorry for all the questions & thanking you in advance for answering x
LadyMercia Suki_girl
Posted
I see that you mentioned private message, is there any other way we could do that to communicate?
I feel like you should have a support group. I don't use social media so unable to communicate via FB or Insta.
Thank you again for all your knowledge.
Suki_girl LadyMercia
Posted
I did not feel the need to always pee. Are you sure you don't have a UTI? have you been tested?
LadyMercia Suki_girl
Posted
Yes the GP checked my urine on Friday and I'm just dehydrated. I have the test kit at home to check regularly.
Suki_girl LadyMercia
Posted
My daughter and I were just saying the same this evening, that I need a support group. This discussion thread is nice because it is positive - it is about me sharing my positive experience of becoming pain free and others also sharing their positive experiences. There was one person who was negative one time and I private messaged her to please not put bad news on here - a positive state of mind is important for recovery, you will not get better if you think you are not going to get better. You mentioned seeing a therapist. I say a psychosexual therapist, but only once. It was good to get it all out and have a good cry and have her tell me I was doing all the right things, but I only needed that once.
LadyMercia Suki_girl
Posted
Yeah, support group would be so good lol.
I'm trying to stay positive & continuing to pray for healing.
Not seeing a therapist, hoping to visit the Acupuncturist when I can speak to them tomorrow.
Thank you again
sarah1212 Suki_girl
Posted
does her vulvodynia appear during menstruation from the endometriosis? I cant help to ask because i notice i get worse around my period. or did she just start having vulvodynia symptoms now, after the endo trauma. Nonetheless, I'm doing much much much better now. I'm slowly returning to life prior to vulvodynia. The only thing bothering me is occasional nerve flutters around my crotch area and inner thighs. And small bits of pain if i do a motion very quickly.
Suki_girl sarah1212
Edited
My daughter had the endo first then, as her pelvic floor became tense due to the pain, the vulvodynia started. She has had the endo surgically removed and us now having physio to improve the condition of her pelvic floor muscles. It seems to be working. Acupuncture also helps her alot.
sarah1212 Suki_girl
Posted
Hello Suki!
I know both our reason for our pain is due to inflammation of the foreshetta skin. Its called vulvar vestibulitis as i mentioned before. I can piece together that mine was caused due to infection like yours. I saw an article saying that this only happens to women with a rare gene causing a chronic inflammation in the vulvar glands when infected. Have you heard about anything like this? Or does it just seem like a pile of crap. I know my problem stems from chronic inflammation but I just thought it was due to a overactive immune response. Do u have any info on this from when you had it and what the specialist told you. My inflammation is 75-80% better but still here. I'm just following what you said and how it took you 2 years to fully get rid of my inflammation.
sarah1212
Posted
your* inflammation
Suki_girl sarah1212
Posted
I have never heard of that genetic thing. The human body has an annoying tendency to overdo the inflammatory response to infection which, in itself, causes problems. For example, the inflammatory response of the lungs to the Covid-19 virus which is what gives people the shortness of breath and dangerously low blood oxygen levels. Perhaps some people natually have a greater tendency for an overactive inflammatory response, just as anyone can have a greater tendency for anything. Inflammation is just the body doing it's normal response to infection, but unfortunately if it carrys on for too long it can traumatize the nerves which then become over sensitive and over active causing neuroceptive pain which is notoriously difficult to ge rid off, requiring multiple methods and lots of time.
LadyMercia Suki_girl
Posted
After a week of improvement I feel like I'm back to where I was six weeks ago when my flare up started...
Coconut oil was helping until today, I'm red at the sides of the hood (not sure the correct name) and I'm emotionally exhausted!
I have left comments in page 33 but no responses and could really do with some support....
sarah1212 Suki_girl
Posted
That definetely clears things up. Just a matter of time till my response fully calms down. Also explains why i have nerve pain here at there. All slowly going away, just taking time.
sarah1212 LadyMercia
Posted
I'm sorry to hear that, I am not too sure what your cause for your pain is. It seems like youre at the beginning of your journey. When i would use creams i noticed if i applied too much it would give me a reaction if i used it a lot. Sometimes you just need to give yourself a break. When i was really bad i used saginil gel. It was the only thing that didnt give me a reaction. Now ive worked my way up and dont need creams. You'll get there too. The beginning was hard for me and i had no hope. Always in the discussion waiting for a reply and reading it over and over to see if i missed anything. This condition has a mental aspect to it. It made me very depressed and anxious in the beginning because I was reading everything on the internet. If thats you, please stop. You will only make it worse. If you can find a distraction, it will help u so much. Focussing on the pain just intensifies it. Know that this will get better, you just need to do everything advised till you get a bit better. You'll have hope and keep going till youre completely better.
LadyMercia sarah1212
Posted
Thank you for seeing my post & replying.
I've suffered with Vulva pain and flare ups on and off for 10yrs+ and it was put down to Vulodynia and Interstitial Cystitis after me thinking I always had Cystitis. I've always managed it with the numbing gel I was prescribed back then (OptLube with contains 2g Lidocaine) but 6 weeks ago I had a flare up and the gel stared to sting. 3 weeks ago I reluctantly started Amitriptyline and am currently taking 17.5mg (I break the tablets up), I've had 1 Acupuncture session with a GP but it's not Western and too early to tell, and I'm using Coconut Oil and have been for a week but it made feel worse today. I got the book Suki recommended and have been working my way through doing pelvic floor exercises standing up and the relax tech plus some yoga moves that were also recommended. I got the cushion and Saginil gel but have only used it once as I'm scared! I'm working from home due to Covid so have been walking around with no underwear as suggested and I've even changed my loo paper to Bamboo!
I've just had my period and wondering if my hormones are changing and making things worse for a bit?
I know stress makes things worse... it's funny as for the last 10+yrs I just had a flare up for a day or two and on only one other occasion when the flare up lasted a week and I'm pretty sure that was stress related. This is the longest I've suffered and not felt better, hence the medication.
I take an ice block wrapped in a tea towel to bed and put that between my legs to help me sleep, along with the medication.
I'm 41 and although I know you can go through the change at this age my GP doesn't think I'm at that stage as my period cycles are regular.
Sorry it's like an essay to read, but I will add that I have super sensitive skin and guess this is a factor too?!
Thank you again for reaching out.
Suki_girl LadyMercia
Posted
Hi Samantha. I an sorry if I missed your original post. I usually reply but I have had a lot going on in my life a the moment. I must have missed it. I know that toy are not happy about it, but amitriptyline is necessary and toy need to be taking 50-75mg. Once you are on that level by adding in acupuncture the two will work together to dampen down the over activity of the nerves. I know others who have been unable to find western acupuncturists but still found benefit from traditional acupuncture. Everything else you are doing (cushion, pelvic floor exercises, yoga, bamboo based loo paper, no knickers) will be helping too. Just remember to take things slowly, don't try to rush it and don't overdo the exercises. Small, gradual increments. I have very sensitive skin in that area and the only things I could tolerate were coconut oil, Yes oil based lube (have you tried that?) and saginil gel. The saginil gel doesn't always work immediately for everyone, sometime it can take a while to have an effect.
Hormones definitely played a part in the multiple factors that contributed to the onset of my vulvodynia. I was beginning pre menopause (my periods had become irregular and very heavy).
LadyMercia Suki_girl
Posted
Thank you for replying.
I just have to take Amit increase super slowly as every time I go up a dose I experience a tinnitus spike.
Yes perhaps I'm overdoing the exercises & making myself worse!
I've another acupuncture session this Friday (my 2nd) & a 3rd booked for the end of the month & will see how I feel. In the meantime I'll look again for electro western by expanding my search area.
I'll buy some Yes oil lube too.
Thank you again for reaching out!
sarah1212 LadyMercia
Posted
Yes, I also have very sensitive skin. I'm not too sure on your cause of vulvodynia because I think mine was due to infection. If you've had this before and its went away, I wouldnt worry too much. When mine started it was full force for a few months. Do you know what caused your previous flare ups and why they went away. Maybe theres something that youre missing that may be causing you to react. Some reasons of vulvodynia that are not caused by infection are tight muscles, antibiotic use, sexual injury to nerves in the area or just injury to that area in general, hormones, hormonal birth control, and hpv. Perhaps these can be the reason for yours. But who knows, it can be due to many things. You just need to find what works for you to help relieve your symptoms.
LadyMercia sarah1212
Posted
No idea how or why it originally stated back then but I repeatedly felt like I had a water infection but nothing showed in my urine. Ended up seeing a lady at a GUM clinic whom sent me home with leaflets on unexplained vulva pain and the Optilube to use as & when.
I think & I'm guessing here, that mine is Stress, Hormone & or Sensitive skin related, or a combination. I've stated a Vulvodynia diary to see how it changes on different days of my cycle & what I'm eating (not that I think it's diet related) & what solution I'm trying too for that day.
I took your advise & gave it a day off yesterday by not using any creams. I also cut right back on the pelvic floor exercises & did more yoga moves instead.
What I'm experiencing at present & I'm cycle day 9 is warmth, burning & slight stinging along with such dryness.
Sadly my acupuncturist has to self isolate so my session this week has been cancelled!
Thank for taking the time to read & respond.
sarah1212 LadyMercia
Posted
I agree when you say that it may be stress related. Mine came along at a very stressful time in my life. Stress causes a whole bunch of issues including hormonal issues. So this can be a multifactorial thing. For me, I had an infection, and my body had an overly inflammatory response. So stress, nerves, and inflammation can be intertwined. Maybe my body would not have responded the way it did if i was not suffering with so much stress and anxiety. So yes, I do think hormones and stress could be a cause.
LadyMercia sarah1212
Edited
I've experienced a super stressful 6 months so I'm putting it down to that & hormones.
This evening I tried the Saginil Gel & hoping it offers some relief.
It helps to have someone to talk to so thank you again.
LadyMercia sarah1212
Posted
I don"t think the Saginil gel is helping nor the coconut oil... I'm completely lost as what to try next.... I don't seem able to use anything & am in a constant feeling of warmth in the whole vulva area yet it's not hot to touch?!
My GP wanted to refer me to a specialist but the first available appoints are not until Feb22. I'm at my wits end... if someone can reach out....
sarah1212 LadyMercia
Edited
On my worst days, the only thing that made me feel better was going without underwear and airing out my vagina. I would keep my legs apart and let my vagina breath. I did this for about 3 consecutive months. This helped calm my nerves. For me, I needed rest. My nerves needed to relax. If you cannot use creams and oils just dont use them. I stressed myself out on what to do next and how i could help myself just like how u are doing. For me, resting and allowing my vagina to relax was my best cure. I'm still not perfect right now. I notice im worse on days that i have more activities. If i have advice for you, lay low and get some rest. Let your body to relax.
sarah1212 Suki_girl
Posted
Hello suki, since 5 months i have held myself back from sex. I have tried clitoral stimulation and it did not cause any pain. A month ago i tried just inserting fingers and i was not in any pain. I tried 2 fingers and there was a bit of pain. A few days ago i tried having sex, I only was able to fit just the tip inside before having to stop because it was painful. Its been a few days and I've had pain here and there due to attempting having sex. It aggrivated my nerves. Before trying to have sex I did bot have lasting pain after doing anything sexual. So i knew to stop. I want your advice. Do you think i should keep trying or should I just stop doing anything sexual for a bit longer. I tried having sex again a bit too early. I feel guilty for aggrivating my nerves again.
LadyMercia sarah1212
Posted
Hi Sarah1212
I had my 2nd acupuncture session & this time it was Western/Medical/electro, and I was just wondering if it's normal to feel worse a day or two after?
I'm pleased to report I've been feeling more positive this last week after taking your advise to air out the area; it really helps! I've also been seen & examined by the 'Vulva Pain Management Team' @ my county Hospital & I'm now under their care as well as my GP's.
Is there a way we can communicate privately?
Hoping you're well?
Best regards,
Samantha
sarah1212 LadyMercia
Edited
Hello Samantha,
For me, my vulval pain would not be so harsh after acupuncture and i would feel relief after but then it would come back again after a few hours. But, I also had needles put at the top of my head to help calm my anxiety, that did cause me to feel drowsy for a day after. That would be what would make me feel worse after the acu sessions.
Thats great to hear. Airing it out was probably the best thing that worked for me. You just need to let your vagina relax.
I'm doing well. I had a bit of a set back last week because i tried having sex too soon. Bad idea. It caused a flare up. I'm doing better now though. Remember, sex also aggrivates the nerves. So be sure to wait till youre ready. Its a work and progress. I've had a few moments where i thought i could handle more than i could, resulting in a flare up.
For sure, we can chat in private. I can send you my email or vice versa. I also want to send my email to suki as well. Due to the private messaging option being disabled.
LadyMercia sarah1212
Posted
I have tried 3 times unsuccessfully to post details but they've all been deleted by the moderator - sorry!
I'm going to try social media instead.
LadyMercia sarah1212
Posted
Hi Sarah - Are you on social media?