Posted , 8 users are following.
Just wondered how long it can take to get a diagnosis? My daughter is seeing a consultant tomorrow, are there any tests we can expect tomorrow. Only asking as I am getting huge pressure from school for a diagnosis.
Thanks
0 likes, 11 replies
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steelctygirl Mrspiggy
Posted
RF
CCP
ESR
CRP
ANA
Once you have the results your Doctor will go from there. Good luck to you.
Gloria814 Mrspiggy
Posted
She will get blood tests as outlined by steelygirl and possibly xray if one particular joint is afftected. Almost everyone of my blood test came back neg for RA so it was confirmed with xray and MRI of my hands which showed multiple erosions of the bone. From what I understand the CCP blood result is generally the one which leans toward the diagnosis but it is also the doctor examination and the eval of your dau signs and symptoms. It can take some time for accurate diagnosis
Best of luck with the appt tomorrow
timothy11402 Mrspiggy
Posted
You didn't say what the suspected diagnosis is. Is it RA? And why does the school push for an RA diagnosis?
A good rheumatologist will usually diagnose RA on the spot, before confirming blood tests. They are trained to look at multiple tell-tale signs that add up to RA.
I hope they find whatever is ailing your daughter. I wish her all the best and you, Mom, also.
Mrspiggy timothy11402
Posted
Thank you. It has been so stressful. She's had 2 underlying problems for a few years. I've put all her medical notes together and am convinced there is a connection! I think it is her muscles rather than joints. Luckily we are seeing a very good consultant, she mainly deals with the rare cases.
She had abdominal surgery in March and they found adhesions which they had not suspected, cause unknown. School think it is in her head, relations with me & them have broken down now! I need her to be out of pain no child should have to suffer this long in pain, I have tried so hard, always phoning round different hospitals to get her appointments as soon as I could. School have used this against me!
timothy11402 Mrspiggy
Posted
Sorry to hear of your daughter's pain and suffering. She has a good advocate in you.
Too bad you can't fire the school.
Best of luck to you both.
morffede27 Mrspiggy
Posted
Gloria814 Mrspiggy
Posted
loulou282 Mrspiggy
Posted
tony35673 Mrspiggy
Posted
I was diagnosed on my first visit to the Rheumatologist, blood test were done and they just bore out his diagnosis. That doesn't necessarilly mean the diagnosis is correct, the Rheumatologist may change the diagnosis along the way. Mine did: originally diagnosed with RA a couple of years ago and then a couple of months ago he revised to to PsA. Just a subset of RA really, there subsets to subsets to subsets in this disease. No cause, no cure and sometimes, as in my case, no treatent that actually works. I had a two lung lobes removed three weeks, when I saw the Rheumatologist a couple of days ago he was excited and hopeful the lung cancer was the cause, so once the tumour was removed my symptoms would disapear or at least improve. No such luck, although hard to tell at the moment whilst I'm on all the meds for the lungs.
Gloria814 tony35673
Posted
Have not heard of that before but that would be great if your pain was better controlled./ symptoms properly managed
tony35673 Mrspiggy
Posted
I'm fine. Unfortunately, removing the tumour did my RA/PsA no good at all, it's back.