How many of you have experienced fever for an extended period of time (2+ months) with Mono / EBV?

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I am beginning to feel pretty hopeless and stressed to the brink of exhaustion, worrying that this is either something else, or that it will never end. I hate having fevers more than anything, I always have, and with this mono, for 4 months now, every day, I have had a fever. It's usually low grade, not going above 100.00, it's usually 99.5-99.9. May not be a fever, but it is higher than normal and i certainly feel feverish. It's pretty scary that my doctor even seems puzzled, the only comfort is hearing others stories... has anyone else had a low grade fever for this long? Thanks. I am 21 by the way.

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  • Posted

    Hi Clayton,

    Absolutely I want to reassure you - I had low grade fever constantly throughout mono and it took me a good while to get over it. The first 6 months really were so tough and draining and I do empathise with your experience and mines was similar - the intensity did lessen after that, it was probably about 9 or 10 months before I seen a major breakthrough and turning point - that doesn't mean to say it will take as long for you, everyone is different, but I just want to reassure that this can be very normal what you're going through and you absolutely will make a full recovery and the low grade fever and all the symptoms do COMPLETELY disappear with time.

    It's so hard to live through each day feeling so drained and unwell when going through it Clayton, all you can do is just cope with each day and rest as much as possible and be kind to yourself right now, take time out from work / studies / any stressful activities and allow your body the time and space it needs. It's awful I know when you just want to be well and get on with life - but it will come Clayton, full recovery will come. I'm shocked at how many doctors don't seem to fully grasp and understand that mono is so nasty and can take an extended period of recovery, but that this is normal and people do get fully better after that - and 100% you WILL make a FULL recovery Clayton I truly believe it. I went through the same, and don't give up hope because you will get better, even if it's not today or tomorrow or immediate, recovery will come with time, and there is most likely nothing else to worry about because this sounds like classic mono to me. But of course always wise to keep checking in with the docs and having bloods monitored etc.

    I was the same Clayton thought at one stage this thing would never get better, scared me so much, but God got me through and healed me and He will get you through and get you fully better too.

    As probably I've said before, taking vitamins and herbs really helped me during my recovery. A good strong multi-vitamin per day (Immuance here in the UK was one I have taken and found good), a B complex vitamin per day (great for nervous system and energy levels), higher doses of Vitamin C (1000mg-3000mg per day) and immune boosting herbs like oregano, siberian ginseng and echinacea.

    Thinking about you Clayton and remember there is hope, you will get better and message any time feeling worried or down or low - the low grade fever is AWFUL I know but it doesn't last forever, it really doesn't and don't panic if it takes a little while to get fully better but you definitely definitely will. Hang in there and remember rest and talk to someone close that you trust about how you're feeling too if you can, that's so important during this Clayton.

    Craig

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  • Posted

    Hi

    i havent posted on here for a while, i got glandular fever last JULY 2017, and to be completely honest with you it took a year to go. CRAIG is amazing on here he really helped me though it.

    I had exactly the same as you, and its so so so so scary! I was at my dr's like all the time i was sure it was cancer. BUT you know what it wasnt, it was this horrible virus. LOW GRADE lasted for me around 8-10 months and every time i get sick now my glands come up, i had lymph nodes up for the full year they were the last things to go along with other things some others had some dont, this virus affects us all differntly but what seems to be the same it take bluddy months to go! i dont come on here very often if you would like to chat anymore add me on fb rosanna baggalley xx

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    • Posted

      Hi Rosanna,

      Oh it is so good to see a post from you and to hear that you have been doing much better - goodness knows you deserve it the long road you have been through with this thing! Thanks so much for the kind words you said about me Rosanna, it's only because I know how badly this virus affected me and how much support and encouragement and reassurance and advice I needed from others throughout it. It really was one of the worst things I ever went through and I know you can totally empathise with that Rosanna.

      Yes absolutely the low grade fever was horrible for me too, I hope so much you are feeling better and better as time goes on Rosanna. Just remember one day at a time still and you will still continue to feel even better than you are now as time goes on - even in another six months or year you will look back and say blimey I've made even more progress and feel so much more like my old self again!

      Do keep in touch Rosanna let us know how you are doing over the coming months - a great post of hope and encouragement for others in the worst or darkest place with this thing right now - there is light at the end of the tunnel and don't panic even if it takes a bit of time because everyone on here reading this will get there and make a FULL recovery with time and thanks to God's goodness!

      Craig

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    • Posted

      Hi Rosanna,i finally managed to get on here !! lol i know you did try for me,but i managed it in the end,nice to hear from you on here,well you know what i mean lol,nice that youve popped in and doing better now,did your neck eventually go off,i know you were having a lot of trouble with it same as i was,mines finally gone now,its been the same length of time for us both hasnt it,what a journey !!! im doing a bit better now too but still not fully there but i also have ME/CFS to contend with, had that for a lot of years before i got gf, its been really tough having to sit back and watch the world go by,i had 4 bad relapses with my gf and the last one was a few months ago so praying that thats the last one as each time it takes weeks to get back up again,if i dont hear from you hope you have a lovely Christmas and continued health xx Diane Randles

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    • Posted

      Sending hugs and best wishes to you both Diane and Rosanna from north of the border in Scotland, believing that a year of movement, breakthrough and recovery is ahead for both of you x

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  • Posted

    Hey Clayton! I'm on month eight of glandular fever and finally seeing big improvements. I'm not at all fully better, however, I am now having four out of seven good days a week. I completely sympathize where you're coming from, that constant fever feeling was the worst and just thinking you would never get better but honestly it will go! Only last month I was in hospital as I was so ill with glandular fever, however, my body suddenly took a huge leap forward after such a bad relapse, its such a weird virus, almost has a zig zag motion, where you go back and fourth and then suddenly your body will take a huge positive leap! I still get that fever feeling on my bad days, however, I no longer have it the majority of the time, now just the fatigue and the sore swollen glands! The thing which really helped me to speed up recovery was changing my diet, I barely have dairy anymore, have no sugar, eat the healthiest meals and take loads of vitamins and supplements and have not drank alcohol in over four months. I'm 23 and was a student at university when diagnosed, so I can completely sympathize with how much this virus ruins your life, as you just can't socialise with your friends, drink alcohol or be a normal young person, I got so low! But just stay POSITIVE and do every thing you can to boost your immune system! I'm currently struggling with depression with my glandular fever just out of frustration of not living a normal life but trying to remain positive as I am seeing big improvements finally!

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    • Posted

      Hey Jess,

      What a time you've been through - the mental health side thing of glandular fever is absolutely awful and I went through the same kind of period of depression at the frustration and longevity of it all too. Just want to encourage you Jess that you will come through that, things will get better physically and mentally. It's so hard to go through and just wanted you to know I'm thinking about you and still believing you will get back to full health again with time - you really will Jess this thing does get better and go away completely (eventually!) and remember just take it a day at a time and just be kind to yourself, rest lots and remember that God knows the bigger picture - hang in there!

      Craig

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  • Posted

    hey Clayton – I got mono July 2017 and I still get intermittent low-grade fever’s as well. Usually around 99.4. It’s usually when I’m having a flare – I did find that I have a chronic sinus infection called Marcons. It’s basically a staph infection that is antibiotic resistant. We think that’s part of the reason I keep getting a low-grade fever is because my body is trying to fight off that as well. Maybe something worth looking into – I didn’t have any sinus infection symptoms so it was a bit of a shock.

    I totally get your anxiety though – every time the low-grade fever comes back I get freaked out that I have lymphoma. It’s a really annoying frustrating symptom and I’m so sorry you’re dealing with it. I would try to relax though – it’s almost never what we think it is.

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  • Posted

    i never got the fever but now on month 7 so i know from much reading that this virus can take a while to go dormant . you are young so should be over this soon . i know its boring and horrible but try and rest as much as you can eat healthy drink loads of water . its a terrible evil virus and just try and think positive and know that although its uncomfortable now it wont last forever and youll be better soon and will get back into having a great life !

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    • Posted

      Wise words Lori and Lisa, absolutely Clayton just want to encourage you that you will get better - you will get through it and back to health again, the low grade fever does pass with time but for now just hang in there and take things slowly, one day and step at a time, and don't put pressure on yourself or expect too much right now. Just cope with resting and allowing your body that time and space it needs. Thinking of you.

      Craig

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  • Posted

    Hi clayton,

    I had low grade fever for about the first 8 or 9 months. I am now 15 months. Everytime I have a mini crash or have a very bad night sleep it returns.

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    • Posted

      Just to reassure that this is normal Kay, this happened with me with the low grade fever too, every time I had a bit of a crash or felt a bit more stressed you could start to feel it trying to bit again, but it doesn't keep going that way always want you to know this, eventually this dies off and you don't keep getting these kind of episodes. I thought my body would never be able to cope with stressful situations again without feeling like that, but God turned all that around and made my body resilience return and yours will too Kay - I know at 15 months you must be absolutely 'scunnered' to use a good Scottish word, but remember there is still hope, recovery and a life ahead when you are free from this horrible virus and its symptoms.

      Craig

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    • Posted

      Glad to know what I am going through is normal Craig. For most of the past year I have got my knickers in a twist thinking I might have cancer or something.

      At what stage in your recovery did your anxiety and depression (if you had them), disappear? Mine is only mild at the moment I think but I want it gone completely. I never experienced any of these things prior to 15 mos ago.

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    • Posted

      I know the feeling lori. I feel my mental health as deteriorated so much.

      Today for instance I found myself snapping at people at work. I really don't like who I have become at the moment. Prior yo 15 mos ago nothing bothered me at all. How can this virus change your personality like that?

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    • Posted

      I am still trying to figure out if work has been a hindrance or a help in my recovery. Some days I feel like if I wasn't working I would have recovered by now and others I think it is a great distraction as otherwise I would be moping around at home watching the world go by and being even more depressed. So many questions but no answers.

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    • Posted

      Oh Kay,

      I know it's the absolute worst when you get those thoughts and worries about something more serious or sinister, it really is a dreadful cycle and experience to go through and it takes so much out of you. I went through that too like you and so many others on the site worrying about other illnesses and going from one google search to another only to find more scare stories which only heightened the worry and stress.

      It was only with time and hindsight able to look back and see that this is how the virus goes and it is normal to have that low grade fever and many nasty symptoms for such an extended period Kay, and that it does get better and go away with time. When going through it though it's virtually impossible to see that, I know that because I struggled so much to see a way out - only God made that way out.

      It was really hand in hand with physical improvements and starting to feel a bit better that the mental health side and depression started to lift for me Kay. Just seeing some change gave me a new hope, and I do hope and pray so much that a positive change is happening in your circumstances. I remember around the 15 month mark I had started to feel better but still not back to my old self really - the next year after that was a lot more positive, more improvements and confidence returned bit by bit - still some blips but nowhere near as bad as before and overall was able to start returning to a more normal life again. This is going to be your year Kay - the year I hope and pray so much where God works out all the detail of this thing and gets you feeling much stronger and better physically and mentally again.

      Thinking of you and hoping for a good and stress-free weekend ahead for you!

      Craig

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    • Posted

      Hoping so much for a good weekend and period ahead for you Lori, I like your descriptions about the low grade fever that it's like all your wires are crossed! Remember this won't last forever - and I do empathise Kay also with finding that balance between work and keeping yourself busy and not doing anything at all. I had to manage quite an extended phase return during work, after 15 months I was still only working 10 hours per week, but within the next year I got back to 3 or 4 full days and eventually back to full time. So if you are able to even have some kind of working hours / pattern that allows you that it would be great, but I do understand not all employers sadly are so understanding in this respect.

      Craig

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    • Posted

      Kay,

      You've been through a dreadfully draining and stressful time, and when trying to keep working and cope with normal daily life and stresses through that is not easy, so don't beat yourself up if finding it hard to tolerate or be as patient with people as you'd like - there are reasons and be kind and forgiving to yourself, we all just live and learn goodness I also see so many things develop in myself in terms of moaning to close family / friends and being so selfish that I just don't like either during this time I've been through too. You are a good person Kay that's very clear for me to see and your kind and caring heart comes across in all your messages and how you've helped me and others on the forum - so remember that next time you're feeling like beating yourself up!

      Craig

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    • Posted

      Thank you very much Craig for your detailed msg. I do feel confident now that sometime next year I will be a great year for me.

      If I can get the anxiety and depression to lift as well as the sleep to be continuously good, I know I will feel remarkably better. I am not sure if it is the sleep causing the anxiety and depression or vice versa. What a vicious cycle this is.

      I wish you a lovely weekend too.

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    • Posted

      That was awesome that you were able to adjust your work hours.

      For me it was more difficult as I didn't have proof of a diagnosis when I was at my worst so I had nothing to bring to my employer to justify taking time off or reducing hours.

      The only option I felt I had quite honestly was to either keep working or hand in my resignation (which really wasn't an option when I had a mortgage to pay). I managed to work 45 hours a week throughout 😦

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    • Posted

      Aww thanks for the kind words too Kay! Oh of course not having a diagnosis and having to take time off work is not easy of course, it must have been so hard to go all that time not knowing what was going on. I am amazed you were able to work 45 hours per week, for a fit and well person that is exhausting but when going through glandular fever I can only imagine how hard it must have been!

      I do hope you can get some good rest this week Kay put your feet up relax if you are able to!!!

      Craig

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    • Posted

      Yes definitely Kay, I do hope and pray God gives us the strength to keep going and get through the tough times. He has been helping us this far and is not gonna leave us I believe that for sure. Hoping you managed to get a good sleep last night and can have a relaxing weekend.

      Craig

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    • Posted

      Oh Lori so sorry to hear you had such a tough day. I just hope you are feeling a little more settled by the time you get this message. I'm still thinking about you Lori, just wish these awful lows and bad days would stay away and hoping so much for a better weekend - Lori you are going to get through this and sending you my thoughts and prayers today.

      Craig

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