Posted , 6 users are following.
Ive had a constant headache and neckache for nearly 4 years. Have been to hosp and had xrays/mri/spect scan but still no help.they seem mire concerned with the weakness in my right hand/arm.
It all started 4 years ago. Also im constantly tired and now have an intolerence to alcohol(previously was party girl and drank my body weight!)
Have had previous back and knee surgery but told unrelated.
4 years of constant head in a vice and a rigormortis neck is driving me insane!
It was my boyfriend who found out about fibromyalgia and so far only 1 healthcare prof has said is poss.no one else listens or they say its too hard to diagnose. Any ideas?
it controls my life(have tried all alternative medicines)
0 likes, 20 replies
tiswas24537 beth_littlebear
Posted
lets face it you wouldnt want it done while a wake would we .
i started going down hill after a hyesterctomy it took 6 years to get diognosed and even then the meds arent from what iv heard much use .
i doubt if you have tried all alternative medincine as iv tried tons of stuff and i know theres more out there.
have you had a chriropractor have a look at you they might be able to help .with your neck .
there is a pain point chart on the net for fibro diognoses if you have most or all of them you defo have it ,
beth_littlebear tiswas24537
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Due to back surgery was told big no no to chiropractor.
Do hope you feel better soon.
tiswas24537 beth_littlebear
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that is trauma to the body , and as fibro is normaly brought about by truma stress or serious illness, then i think it very likely to be the case
no chriopractor proberly would be agood idea ,.but you can bet the neck problem is linked to your back .
beth_littlebear tiswas24537
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Have always believed its linked.
Could it still be fibromyalgia this many years on?
tiswas24537 beth_littlebear
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that makes them acountable ,
the ops caused pain stress to your body you have proberly had minor symptoms
on and of for years .i had my op in 97 and had minor problems since then now i was diognosed with fibro 2006 and have got worse since the stiffness being a reall problem
beth_littlebear tiswas24537
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Will keep on at them.thanku
tiswas24537 beth_littlebear
Posted
i found that infra red heat lamp very helpful
loxie beth_littlebear
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SteV3 beth_littlebear
Posted
I jusft wrote this to someone else, but it may interest you - regarding people that specialise in Fibromyalgia.
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Your arm locking sounds like "Rheumatoid Arthritis" which could be related to "Fibromyalgia Syndrome", and is normally diagnosed by a Consultant Rheumatologist or a Consultant Neurologist. Some hospitals do have "Consultant Fibromyalgists", but finding them in the UK is rare.
Rheumatoid Arthritis would be normal in a middle-aged person, but if you suffer from "Fibromyalgia" then it is more likely linked. All I have done is looked at your messages and noticed from a certain perspective, the symptoms do point that way.
If your doctor said it wasn't anything to worry about then get a second opinion from another doctor , or change doctors and get a second opinion. Even GP's know very little about Fibromyalgia, so it is best to get referred.
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Regards,
Les.
tiswas24537 SteV3
Posted
and i was about 45/6 when i was diognosed with fibro .
ihave to go to the hospital for a medical for my benefit next friday dreading it . as they have been turning people with terminal cancer i feel is it really worth trying. but if you dont then they win by default .
its all so unfair a system put in place to protect the sick and injured
now being run by a buisness to make profit , how this fair ?
SteV3 tiswas24537
Posted
What you want is to go to the assessment with a positive attitude, if I had known I would said request a home assessment - that way they see you in your own environment and how you deal with obstacles.
Remember ATOS Health Assessors are really no one that knows your body more than you, they haven't experienced what you have and do not even have the qualifications of a G.P. ATOS Health Assessors are either ex-paramedics that were bought off the NHS by ATOS, and offered an easy 9-5pm job and £30k, whereas a standard paramedic is on roughly £23-£24k. A paramedic doesn't know all the disorders caused by your disability, they only have one diploma behind them. Or it could be worse ATOS went as low as emplying nurses, physiotherapists and even nobodys without qualifications in Jobcentres!
The reason why you see many people getting put on lists that are terminally ill is because the data that is made during your assessment is changed by the DWP. This is why many people are fighting the DWP back by recording their assessments - then if they get a letter stating everything was very different, people are then phoning the DWP and stating that the letter you sent me saying I had no points and other details were all wrong - I can prove it, I recorded the whole assessment. This guarantees they look at your assessment again and this time they turn the award in your favor. Yes, that's what it's come down to these days.
Hope that helps..
Regards,
Les.
Regards,
Les.
tiswas24537 SteV3
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they have you always
SteV3 tiswas24537
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tiswas24537 SteV3
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tiswas24537 SteV3
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as i shall have to get up about 6.30 to even be able to move or focus my eyes.
so i wont have to act like a zombie i will be one .
SteV3 tiswas24537
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beth_littlebear SteV3
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Have another neurology apt next month so will keep on at them.
Thanku for your help and advice.
tiswas24537 SteV3
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have to let them know your recording them
les
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