how u know your relapsing
Posted , 10 users are following.
im on month 15 with this virus. i got super sick in october 2017 with a fever and all classic mono symptoms that lasted about a week only. i tested pos for ebv. since then i have been continuously feeling run down. What i believe are my reactivating symptoms are rib pain, random pains, pain under right rib cage, odd knot feeling in stomach, sharp pains in lymph nodes all the way to groin, blurry vision. i just dont get how im experiencing so many reactivations (my blood work shows it too). i was healthy before this. im 19 and always bounced back from things and never get colds, havent thrown up in TEN years. i have been severely stressed for the passed 3 years so maybe it just got to me. how often do you guys experience flare ups and what are your symtpoms? i feel like i do 3 times a month maybe more. but wouldnt that mean im immune compromised? im just scared and thats adding to the stress and thats adding to the reactivations. ugh
0 likes, 47 replies
Guest
Posted
worst time of my life. my ex was horrible to me and stressed me out so bad for 3 years. i wouldnt eat or sleep and cry all the time. i believe its the reason im so sick now. not to mention he cheated on me with sex workers. my anxiety made me think this was HIV and ive tested 3 times and im ok. only thing thats postive is my EBV titers. i cry every day because im first scared that this ebv will never go away and that i have some serious disease hiding in my blood. im going to a new doctor this week so i hope he can help me
lori93950 Guest
Posted
im relapsing right now after 2 months of slightly improving . its hell !
Guest lori93950
Posted
im sorry. i know its really awful
Dodge81 Guest
Posted
sorry to hear you are still struggling nicole......I could usually tell when I was relapsing, I would get more dizzy and my legs would turn to jelly. I would then get pain in the right side of my neck. The next few weeks I would feel dreadful and then at the end as I seem to come round slightly I would get ulcers in my mouth. Now I still get slight jelly legs, pain in neck and still the mouth ulcers, but something feels different about it, it seems to be less intense now, the sickness feeling has almost gone, just seem to be mainly tired.
That's crap about your ex, but it sounds like it's good that he is an ex and you dont have to deal with that crap anymore. Focus on yourself only and just keep thinking one day you will get better. It's very hard to remain positive, but just have to keep fighting and take each day at a time.
Guest Dodge81
Posted
i get the jelly feeling as well as mouth ulcers too! my gums are also so sensitive. im sorry we have to go through this. and thank you, its means alot
lisa29739 Guest
Posted
I also get the mouth ulcers! Usually on the back of my throat. And the jelly legs. My symptoms are always the worst in the morning. Going on 19 months for me. So ready for it to be gone!
lori93950 lisa29739
Posted
gosh how have you got through 19 months ??? im only at month 11 and had enough !
are you doing anything supplements etc ?
have you got better and relapsed ?
craig07920 lisa29739
Posted
Hey Lisa / Nicole,
Hoping you are both doing okay today, definitely hoping that these mouth ulcers can settle down they are so frustrating. Here's a word of encouragement from the Bible for everyone going through sickness at the moment, something to hold onto in times of trouble:
"Worship the LORD your God, and his blessing will be on your food and water. I will take away sickness from among you…" Exodus 23:25
craig07920 Guest
Posted
Hi Nicole,
I definitely think that during the first 18 months especially mini reactivation episodes can be very common. This has hit you really hard I know Nicole and your body is just taking a little longer to recover fully - but it will recover - my experience was that the setbacks / reactivations became less intense, less long lasting and less frequent as time went on - I had one after about 21 month where my bloodwork showed positive for mono again and it frightened me so much thinking I would have to go through all that again - but thanks to God only it wasn't the case Nicole things did settle down within a couple of weeks and felt much better again even though felt very intense at the time. My main symptoms during the reactivation were low grade fever, fatigue and generally just feeling unwell.
And remember with every mini-reactivation your body is actually getting on top of the virus more and more and working towards full recovery so this doesn't happen again - and every day is another day away from the day of infection and towards full recovery.
Just so sorry you've had such a rough time Nicole, I still believe things are going to get better for you, just wish it wasn't taking so long and hoping and praying for a real turning point soon - hang in there better times are ahead. You will recover Nicole - truly you will - and you are going to be a much stronger and more resilient person for this tough experience. Thinking of you.
Craig
Guest craig07920
Posted
thank you craig, its so hard. but im hoping for a full recovery one day. hope your doing better.
craig07920 Guest
Posted
Thanks for your kind words too Nicole, I have been doing not too bad, God has been helping me. Just trying to take things one day at a time and to trust in God. It's not always easy I know.
Hoping very much for a better week ahead for you and that these mouth ulcers / gum sensitivity can really settle down. I still have faith that God is going to heal you completely from this Nicole. Hang in there and thinking about you.
Craig
Clidecjay Guest
Posted
Mine has been a hell of 14 months. This virus beats you down. My relapses are similar to Dodges. 1st my legs and groin lymph nodes hurt, then my right side of neck followed by throat issues. I try to just rest more and go with it now and 2-3 days it will subside. Just accept it is part of your life for NOW. Think positive, take vitamins, make yourself drink plenty of water(my biggest neglect) and try to not stress. You will be definitely be back to normal after this asshole gives up and it will! I looked back at my life the two years before i got this....STRESS was the main factor along with overworking. I was working 50-60 hrs at my main job, 20-30 more at my previous failing flooring business, dad passing, 2 daughters starting college, and also taking shots for low t which suppresses immune system. So.....it happened. With making my life more simple, prayer, hypnosis from john hall on youtube, and support from here just knowing im not alone in this journey I'm going to send this asshole of a virus off with a kick in his nuts. Sorry about that..not sure where that came from lol. Anyway...this may hang around a little longer, but you are young and will be back better thn ever this experience. CJ
josh46287 Clidecjay
Posted
So you do not recommend the shots for low T. I am 28 and am actually headed to the doctor right now for low T and have been told i have mono.
Clidecjay josh46287
Posted
ask your doctor and let me know what they say please.... mine said it aided to suppress my immune system and could have been a factor. I loved the shots. They gave me energy and better healing for soreness of my job along with the normal benefits.
josh46287 Clidecjay
Posted
He told me he would give me the ahots if i wanted but since i am 28 he doesnt recommend it since ive just had mono and thought i should wait a few months and see if it comes back up so we just agreed on that.
craig07920 Clidecjay
Posted
Hey CJ,
Really hoping you are seeing some signs of improvement and change at the moment, I really liked your words / advice about accepting it as part of your life for NOW, getting through this thing does require patience and humility and it's not easy I know. And as you say it's just about accepting that this thing can take time to bounce back from but that absolutely you will get there and that is going to be the ultimate outcome and the final score - this thing being defeated and getting back to a healthy and happy way of life again.
You're so right about stress being such a factor as well as pushing through too much. No wonder you have been stressed CJ with all those things you've had to deal with, working those hours would be exhausting for the healthiest, fittest young man let alone anyone going through this virus - definitely just stripping things back to a much more simple way of life that includes prayer and seeking God was something that helped me massively during recovery, this virus really puts things into perspective for the things that's important in life and often it's not work!
I'm believing that this is going to be a year of hope and recover for you CJ, hang in there and thinking of you.
Craig
Clidecjay craig07920
Posted
THANKS my friend. This hit me at age 50 so if i can be patient at my ripe old age hopefully these youngster can as well. This site and this world is blessed to have you. Wishing for you to be blessed with good health also.cj
craig07920 Clidecjay
Posted
You've given some great and wise words Cjay, you have plenty of life left in you at 50 don't worry about that - and you're going to be in good health and prosper again with God's help I do believe.
Thanks so much for your kind words for good health and blessings too - means a lot and any thoughts and prayers appreciated too as still recovering from some issues myself.
May God bless you Cjay and hang in there!
Craig