how u know your relapsing

aw thank you so much for your reply, its all so true. never knew ebv could cause all this. i have been eating well but need to cut my carbs... i love pasta and bread lol. hope we both can heal

yea, its a rocky road

i struggle daily

i cut out pasta/bread 6mos ago

i only eat maybe one piece of toast

its sprouted whole grain high protein "Ezekial" brand bread-

the carbs were making me more tired-

so gotta counteract this thing

i cant wait to be human again and eat fun junk food!.....

healing blessings to you....

Hi Starr,

Just reading your post really made it hit home to me how much you have suffered this past six months and a reminder to me too of how tough I found things when going through it also - I was also at the end of my tether and bothered with worry, fear, anxiety, pain, distress. It was just the most awful time and I really do empathise Starr, and thanks so much for your kind words but it's really only God I know that brought me through the virus as I was in a terrible place with it and just want to encourage you that there is hope and healing from this thing with time.

It sounds like you're making a real effort and doing everything right with diet, it's so hard when you are doing so much and still feeling so unwell I know. But honestly Starr, it's often just a time factor with this thing - at 6 months things were still really rough for me, I was also worrying that it could be something more serious or sinister, this virus can take you to some dark and frightening places - please be assured that mono does get better and it can be VERY normal for it to take longer than 6 months - everyone is different some people seem to recover quicker than others. Reading a lot of stories it seems common that the period between 9 and 15 months is a very common phase of change, recovery and improvement - hoping very much it won't be as long as this for you but just a reminder that things with things really can and do in the vast vast vast majority of cases get better, even if it were to take a little longer.

Hoping for a better week ahead and just take each day at it comes - you just can't look far ahead when dealing with this thing (or anything really). As the Lord says today's trouble is enough for today. I really loved your words about faith over fear! Hold tightly onto that Starr!

Craig

It sounds like you have such great knowledge of foods and healthy eating Starr! Thanks for sharing this with everyone and of course if there's any foods / tips that you find helpful or that should be avoided for folks with this virus would be great to hear of because diet is such a factor in recovery and your body coping with the virus and maximising its ability to kick it out!

Craig

yes we do everything we can to beat this i too am on many supplements eating healthy and resting . but boy am i sick of babysitting this horrible virus !

timing is different for everybody but i sure hope this is over soon .

and yes praying is all we can do !!

thank you for your encouragement!

ive been struggling more this last wk especially-

tingling /my skin hurts

upper body mainly

its making me fall deeper into a pit

i keep thinking something is now brewing with new symptoms-brought on by taking that elderberry?....

i give up

i have done all i can

this new symptom is alarming

dr google says its many bad things....

im feeling really stressed at 6mos.....

tough line to cross here

thank u for all of your words-they help me so much as i am at the end of my rope here-

it could be an array of things too

side effects from anti virals now taking effect- im weaning off of those-or vit B12 lacking

?

the bad stuff says MS/Guillane_BARRE

that vaccine i got 6six weeks ago i feel changed things around and it concerns me where it left my system at....

i have been through a ton in this life and powered through with GOD

this is completely unmanagable for me

its strange feeling so challeneged

i can usually get through anything!

but ive always had my health

so this is something new to master and i am failing at it

i try with food/all i can

but not sure what this tingling /dry painful skin

means?

anyway

im seeking thearpy now for all this

its taking its toll on me-being so sick for so long and changing new syptoms are freaking me out

so if i can muster up the energy to go to a counsler to pass the time

i think that could be good

you have the best things/advice to give

i thank you!

i will persevere but this virus makes me /not ME*

i feel like im drifting further away from who i was

its scary....

i feel very broken by this-

i wish GOD would speed nature up....

yes

this thing is sending me into uncharted territory

i am lost....

babysitting!

ha

funny

so true

praying;

ive been harrassing GOD

i told HIM i was going to bug HIM until i get well

-:-)

i too am a very strong woman but this thing can beat you down ! it gets you physically mentally

i find having a routine helps .... i get a coffee do errands at 2.30 go for a short walk around 4.30 eat dinner around 5.30. i know not very exciting

some days i dont know how i make it out of the house ....im so dizzy faint tired but i make myself .

this whole ' resting ' thing is getting to me ! so if i rest every single day alot for the next month ..will i be better ? see there is no answer to this thats why its so awful .

i went to church the other day and cried at gods feet begging him for mercy . i was doing a bit better but relapsed . like you its so frustrating to me my friends and family that nobody can fix this

yes, i have been independant my whole life-even married

my husband deploys-im alone for months at a time

im not used to being weak/& almost...foolish! this virus is makin' a fool outta me!

im running out of tissue from being such a baby ive never cried so much in my life-what is wrong with me?!?!.......

_good to know about your routine-

ill have to start a better routine as well- glad you have that to keep you feeling "normal" everyday

im sorry its hard for you

interesting how your symptoms are a little-different than mine-

i dont walk to exercise-youre lucky-

only out of neccessity do i walk-nothing extra

my low back/legs are really weak pain sore the works- but feel better the more i REST?! lol

everyone seems to experience this in their own way^^_physically/emotionally too

i understand you/daily activities fully......

im lucky to get to store,and do maybe one more small errand

then im at home resting resting rest rest rest ughhhhh

its enough to drive ya nuts- rest-schmest-:)

i was doing better but body tingling/skin hurting is a new twist-

its almost unbearable/comes and goes for the last wk-

started after i took three doses of Elderberry which is suppose to kill EPV

i had a reaction to it or something?

anywho

keep on keeping on i guess is all we can do

i guess

nature is slow but deliberate !!!

or better yet nature is slow,yet everything gets accomplished

lets keep praying

we'll get there.......

have a great night!

yea

i keep praying too

i wish there was a cure

there has to be a solution

it just hasnt been worked on or funded

this should be solved

i talked with my step mom

shes in her 60's

had mono at age 15

ruined her thyroid

ok so that happened in the 1950's/60's and still

NO ANSWERS/CURES/SOLOUTIONS

what the heck?!?!?!

thats wrong

its just wrong

its 2019 people.....

Hi CRAIG

yes, thank you!

im blessed with a mother who was way ahead on this health movement-

i really want to be well so i can help others and tell them every single thing i did

ive heard you have to create an environment in which this virus cannot thrive

eating clean

now if i can get my stress under control...-:-|

i think that would be the clencher!

i do not wish this on my worst enemy.....

yes please share if something is working for you . when i got this my diet was sooooo clean but i was working out like a maniac . but ill try anything to get this under control. doing loads of supplements celery juice ....

so agree !! its never talked about in the media yet so many people are suffering . its a crime that more research hasnt been done .

yes i will

basically this roller coaster is tough to predict what is effective or not

but i have found pasta is bad-makes me more tired same with breads only a slice of whole grain/sprouted ezekial brand every day/other

or steel cut oats otherwise my only carbs are from fresh fruits

raw juices/veggies/nuts/eggs/seeds/

fruit/whole plain yogurt/kefir/organic as much as possible all things-oraganic heavy cream helps keep my weight stable*

whole foods only basically

the raw juices squash my fatigue

but i do them all day

16oz celery first thing

8oz fresh Oj after

8ozfresh carrot juice

4oz ginger/beet/fuji apple

plus 2oz shot of fresh raw wheatgrass

daily

that combination helps

mixed with whole foods salads/fruit

a ton of water

5-6/16oz glasses

but my mechanical issues are what keep me limited

the rest is off and on fading it seems......today at least**

raw juice really keeps you nourished too!......

eggs are bad for ebv they actually feed it i learned. it sounds great what youre doing but do you not have the fatigue that comes with this ?

i mean what you are doing requires so much work i can barely peel a banana .

Definitely Lori prayer is our lifeline, just to know that God hears us and when struggling or suffering we are not alone and that God's ways, thoughts and reasons are higher than ours and that He loves us, cares for us and is working for our good - so we have nothing to fear.

I know it's hard sometimes to comprehend when going through the hardest of times, sometimes all we need to do is just ask God for 'Help', it doesn't need to be any long wordy prayer - He hears and answers a sincere cry for help from the heart.

Still thinking of you Lori - hoping this week has started off more settled than last week. Remember just take things at your pace right now.

Craig

Hi Starr,

I totally agree I wouldn't wish this virus on my worst enemy either, I think unless you have been through it it's hard to understand and comprehend the intensity and the suffering you go through physically, mentally and emotionally with it. For me it was a life-changing experience and reminded me how much I rely on God for everyone and need His protection, kindness and love to look after and guide me all my life and that I can't do anything without His strength.

Glad to hear that your mother is supportive and good on the health movement front, I was very lucky too Starr to have amazingly supportive family, friends and work colleagues during the time I went through it - their encouragement helped me so much and so grateful for that thanks to God only.

And absolutely Starr I want to encourage you that you ARE going to make a full recovery - there IS life after mono, this thing doesn't last forever (even though it feels like it at the time I know) and your body has amazing powers of recovery and resilience, it just takes time though. For me, I remember after about 6 or 7 months thinking I could never see my body being able to handle any kind of stressful or even normal level of busyness and activity again as I felt so fragile and everytime I seemed to try I just felt unwell and fatigued and suffered for it in the days afterwards.

But your body does get to the stage where it is equipped to kick this thing out for good, where you can go and do things you enjoy again, be active and not feel terrible during or afterwards. Truly it will come Starr, your body just needs time to figure out how to keep this thing in check but it absolutely does get there and you will overcome it and get back to full health with some more time - so hang in there and I'm trusting in God for your FULL recovery still. He wants you well!

Craig

Definitely agree Lori....a good and healthy routine can really help. Just about finding the right balance with that, not expecting too much of yourself and just take things at a pace that's right for you, and not beating yourself up if there are days or times you need to rest more or are unable to keep to the routine because that can happen too during recovery.

Craig

Hang in there Lori....God can fix this and He will....just hold tightly to your faith right now even though it's hard to understand what's going on right now, your confidence in God will be richly rewarded...

thanks craig...yes im losing hope after a bad few weeks ..its getting to me and just want to be back to normal .

thank you craig ..yes ive been too dizzy to do my walks and i was doing so well . hopefully it subsides and i can get back to doing the nice long walk i worked so hard to build up over the last few months .

Dizziness is an awful and frightening thing Lori, I very much hope that this settles down soon. The stress this virus causes just adds to everything and can really heighten the intensity of the symptoms, just remember some of the simple deep breathing techinques and the 'STOP' and take a breath idea, and tell yourself 'God is with me and looking after me'. Sometimes just these things and saying these things aloud even when not feeling like it can help calm me down in moments of real panic and bring some peace.

Hang in there Lori, this tough few days is going to pass and fade away and be replaced by progress and steps forward again...

Craig

thanks craig ...yes no dizziness today but after a good day yesterday had a horrible sleep so dealing with the fatigue and uneasiness today ...its something every day .

That was good you had a better day Lori, hoping things can be good today too and remember be kind to yourself and take heart as God is fighting this thing and is going to pull you through!

Craig