How would you describe the GERD related Lung Irritation/cough?

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I am trying to determine if what I have is related to GERD.  I had one appointment with an ENT who put the probe down my nose and into my throat.  He said "It looks terrible down there" and put me on proton pump inhibitors.  I never filled the prescription because I have had *zero* symptoms related to GERD ... and I had recently been stressing out about something very badly.   Figured it would just go away.

Coincidentally (??) three weeks later, I started getting this hollow feeling in my lower esophagus / middle of my chest.  Its nearly impossible to describe.  That's the best description for it:  impossible to describe!  For the last three weeks it has been really bothering me. 

Its like an inflammation in the center , down just below the collar bone area, but sometimes feels inflamed and irritated further down and out to the sides a bit.  Definitely my lungs.  I had an X Ray after only 5 days and it was 100% clear.  But honestly it feels like when I had pneumonia - just very very subtle.  I dont HAVE to cough ... but I want to cough because it feels like something is there, and needs to be dislodged.  Again - its so hard for me to describe.

Is the GERD cough more like "Oh damn I just swallowed and it went down the wrong pipe so i MUST cough this fluid up?"  Or is it moreso a chest / lung inflammation that just kind of sits there as you inhale and exhale, and annoys you mentally?

How would you describe the GERD cough / lung issues?  Have you noticed that it gets worse on days where you are very run down and tired?  And worse in the late evenings when your body is tired?  Slightly better when you are rested.  Maybe even better if you exercise?

I have a tendency to assume the worst, so Im paranoid about lung diseases.  To date I still have zero GERD symptoms. 

OH:  The PPI's do absolutely nothing to improve it.  I've just developed diarhea from them now. 

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  • Posted

    I want to clarify, I don't cough at night at all.  Its only when I am up and about during the day.   Right now it feels very weird when I inhale ... like inflammation down deep into my chest.  sad
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  • Posted

    So you go see an expert, he looks inside you and says 'its terrible' and gives you some meds to make it better. You can't see what he saw, are no expert in the area and decide to ignore his expert advice, why?

    The problem with acid reflux is that it can be doing harm without you even knowing, that is why the meds are needed. You can't see what is happenning inside you, just because you don't feel anything doesn't mean there isn't a problem.

    I use to always get throat problems. I put it down to my job, always talking to people. As soon as I went on the PPI never a throat problem again.

    You normally take a PPI for about 8 weeks and then further tests are needed if you take it long term.

    I would return to taking the PPI, you can't tell whether they are working or not because you can't see  inside you. Are you sure the diahorra is caused by the PPI. Even if it is, unless you are running to the loo every 5 mins keep taking them. It could be something you have eaten and not even related to the PPI or just your body getting use to the PPI.

    What is the point in seeing an expert who takes the time to give you a proper examination and then ignore their help. Take the PPI you could be amazed at what they do and start reading the good stories about PPI's instead of all the negative ones

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    • Posted

      Thanks for answering absolutely none of my questions, but instead spending 7 paragraphs focusing on 1 sentence I wrote that has absolutley nothing to do with this thread. 

      Why I do what I do is not your concern.  And it has nothing to do with why i created this thread. 

      Maybe if you bothered to read past the sentence that gave you the heart attack, you'd see that I took the PPI's and they did no good.  Did you even bother reading the whole post?

      Anyone else out there have any input on the big huge bolded text at the top of the page (the thread title)

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    • Posted

      To answer your questions:

      1)  I didnt take them initially because I had no symptoms of GERD and (i am repeating myself here) I had just gone through a month of severe stress, where I could feel my stomach over-producing acid.  I was not the least bit surprised that my esophagus looked bad, because I had inflammation going on all over my body at that point.  I decided that the absence of the stressor and calming down would resolve it, and it did.  Completely.

      2)  How do *you* know the lung inflammation is from GERD and PPI's will help it?  Especially when I specifically said that they did not help?  That is why I am here.  I am asking what the cough / lung inflammation from GERD is like.  To ascertain whether my chest inflammation (which quite honestly feels like an infection) is even from the GERD.  If its not, I am not going to go on powerful PPI's which have adverse effects spanning months and months (have you done the research?  you'd know this).  PPI's are only supposed to be prescribed in appropriate cases, but studies show they are overprescribed and cause numerous problems in people who never should have taken them.  THAT is why I am being cautious rather than blindly listening to an "expert".

      3)  As far as your worship of doctors:  I have found that 9 out of 10 doctors don't know as much as an informed patient does, on any given topic at any given time.  I have proven this countless times, over and over again in personal experience with doctors.  I do medical research for a living, so I know what I am talking about.  I don't just blindly listen to doctors.  If you do, you are in for a world of hurt in the future, because they are misinformed on a regular basis.

      4)  PPI's have been shown to cause C Difficile disease, something I have dealt with in the past, and I know what it feels like.  Its starting to come back on the PPI's and I am VERY apprehensive to keep takin them if they are not necessary.  Once again, why am I allowing you to hijack this thread and make me explain myself?  Were you aware of the dependence that PPI's cause?  Taking otherwise normal acid-producing people and making them forever over-acid-producing, requiring years of PPI's after just a 3 month course?  Were you aware of C Difficile overgrowth?  Do you know about the bacterial overgrowth and pneumonia that PPI's can cause?  Are you aware of all the other adverse events caused by PPI's ? 

      So that is why I am not just listening to the expert, and in fact being an educated, proactive patient with a brain.  As mentioned, if all you do is blindly listen to doctors, you are going to find yourself in some pretty terrible situations health-wise.  I have dodged countless disasters by double checking doctor comments and avoiding pitfalls that would have put me in very bad situations.

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    • Posted

      We cannot diagnose your complaint, all we can do is give opinions. I don't have C Diff and I took PPI's for about 7 years. We are all different. Perhaps you should go back to the medic who wants to put you on PPI's and take it up with them.
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  • Posted

    Your symptoms are classic GERD. You are lucky, the medic confirmed it. Many of us don't have that luxury. I hope you get your problem sorted.
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  • Posted

    Hi, I must say I had had the same syptoms as you in regards to the constant cough it used to feel like I needed to cough up from the bottom of my feet, I also suffer with throat clearing to. It's been going on for just under 5 years, like you the medication I was given did nothing to really help.. I was told by the gp that it was a post nasel drip I was also told I have silent reflux I've also been told it's all in my imagination.. To be honest the doctors have given me nothing that really helped with my symptoms I ended up chewing gum which helped better than any tablet I was given I also use a antihistamine nasel spray which I found helped me.. I'm waiting on results for the bravo capsule test this tests the ph levels that may be escaping the stomach but this is just to confirm that I do actually have silent reflux.... I'm sorry I can't give you something to stop it, I've spent years cutting out certain foods from my diet with no relief, I also still don't drink tea or coffee with caffeine in.

    hope you feel better soon. 

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    • Posted

      I have had the same, for years. I recently stopped taking the PPI meds and started taking probiotic tablets, two a day. Problem has vanished as long as I don't eat large meals. It seems an imbalance of gut bacteria can cause problems.
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    • Posted

      Yes I eat small meals I've even done the meal replacement shakes if I'm really bad. Where do you get the probiotic tablets from?? 

       

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  • Posted

    Hi Bob . Wow we have same thing. For 9 months I have felt the same like a blockage in the throat. Went to two ENT's who stuck a tube down thoat up nose, said there was nothing wrong....meanwhile felt like I had something stuck in my throat and bad reflux..... A few months ago went on Somac twice a day didn't work so last week had an endoscopy which showed inflammation of gut an oesophageal region . Last few days my reflux has stopped and lump in thoat subsiding . Besides that I changed my diet. I now feel after wanted to almost kill myself that I am almost on top of this. Stay positive x DiDi
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  • Posted

    Hey Bob

    I have exactly the same thing. I had a bad cold about 3 months ago. now The last 3 months ive had this very thick phlegm at the back of my throat and the back of my throat looks rough but it doesnt feel like a sore throat. Also my lungs kind of hurt on occasion like the pleghm or post nasal drip is going back there and annoying me. Also my fingers occasionally tingle.  I noticed cause i was paying attention i do have bad heart burn a few times a week and occasionally a sour taste in the back of my mouth.   So after much research and thinking i had lung cancer i came upon the notion of Gerd...... Your symptoms are exactly mine. So heres what i did - i lifted the back of my bed by 4 inches and then slept on a few pillows. I actually feel a little better because of that. The minimmal ammounts of acid dont drip to the back of my throat as much. Gerd can immitate alot of things so its confusing but now i think i found my issue. the dang feckin acid! BTW i agree that doctors know things but its up to the patient to find out what they have and pass it along to the doc. I find docs alot of times dont know nearly as much asn an informed patient and in the end your life is in your hands. dont trust your doctor. What other kinds of symptoms did you have?

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  • Posted

    btw for me gerd is phlemg falling into your lungs and causing irritation. or sleeping and some acid comes up and then a tiny bit goes to the lungs. thats where the irritation comes from. ive had the same thing and i found out about gerd and it all seems to make sense. acid and pl;ehgm. is bothering the lungs. feel like pneumonia but nothing to cough - throat clearing works better.
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  • Posted

    Just wanted to update everyone.  I cured myself.  Here is how I did it.

    1)  The "menthol" cold sensation in the throat/chest was indeed a result of acid irritating my esophagus.  I determined this by going on 20mg twice a day of the Prilosec. 

    2)  The side effects were powerful (horribly dry eyes, cramping muscles, the introduction of "insufficient acid" symptoms like duodenal pain etc) but the relief it brang was undeniable, so I suffered through the side effects for as long as I could at 20/20 per day.

    3)  Daily I would sip aloe juice from whole foods (inner gullet only - do not drink the whole leaf version) after meals.  Helps heal.  Totally changed my diet to avoid any tomato sauce, rice, and hard crunchy foods.  The goal here is to let the tissue heal while you suffer through suppressing your normal stomach acid.

    3)  I tried tapering several times and it was a complete fail.  Instant return of symptoms.  So I began learning about how to properly taper. 

    a)  I did 20/20 per day for about one solid month.  No tapering.

    b)  I then started trying 20 once per day.  And seemed to be okay.  You will experience some rebound of symptoms, but if they are mild, give it a solid week to settle down and it should

    c)  After about 2 weeks I bought a gram scale.  One that goes down to 0.001.  Its a GemPro model.  This enabled me to open the capsules and measure out in detail.  I started measuring 15mg once per day and stayed on that a couple weeks.  Still no return of symptoms except always during the first 5-6 days. 

    d)  At that point I began a very very slow taper.  I measured 13mg once per day and stayed on that two full weeks.  At this point i was about 2 months in to the whole process but I had already managed to drop from 40mg a day to 13mg a day.

    e)  After two weeks of 13mg I dropped to 10mg.  had some noticeable rebound of symptoms, but again - gave it a solid week before worrying.  And it calmed down after a solid 7-8 days.  To be safe, I stayed at 10mg for a full two and a half weeks.  Just to let things calm down and stabilize.

    f)  Now three months in, i dropped to 7mg for a week, then 6mg for a week, then 5mg for a week. 

    How did I do this?  The gram scale.  I measured the 20mg capsules at 0.168 on my scale, so I knew 20mg = 168.  10mg = 84.  5mg = 42.  So at this point I began measuring exactly 0.42 on my scale (5mg) and continued that for a week.

    g)  I then slowed down significantly.  The closer I get to zero the slower I am going to go.  I did 4mg for a full week and a half.  Had some rebound and that passed.  I am now at 3mg and am halfway through that week.  Up to this point I have no problem with recurring symptoms though I periodically feel them creeping up on me.  THis is always a sign to continue current dose a little longer. 

    I hope to be off the med entirely within a month.  I believe that the tapering issue is why people stay on these meds "forever".  Doctors are a useless joke of zero information in most regards, and in this regard as well.  They advise nothing about this, and wouldn't have the first clue about buying a gram scale and tapering at a proper rate.  So a lot of people suffer on these meds forever.  Hope this helps someone.

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