Huge, complex cyst with septations and nodules
Posted , 6 users are following.
I have a 17cm complex cyst with septations and nodules. The gynecologist yesterday became visibly concerned when she read the radiology report that said nodules and immediately sent me to get a CA-125 test. Im 24. The cyst has grown rapidly and she said it is most likely germ cell cancer that is borderline which means that once its taken out, I should be fine. Of course I have to spend the next month sitting around worrying while they send me to different people and finally set a surgery date. I wish they would just schedule surgery and an oncologist could take it and the ovary out. It is terrifying to say the least, I feel sick to my stomach. If anyone has had anything like this, please let me know.
0 likes, 23 replies
Guest grace62251
Posted
Hey,
I have 9cm cyst which looks simple- I only found out last weekend as ended up in a&e in so much paand I'm only 23. I had the CA 125 blood test and mine came back within the normal range.
I am awaiting a ct scan and then I'll see the doctor again and find out what is happening.
I can understand to a certain point and I'm are you will be ok! I know it's hard all the waiting and that's what I'm really struggling with is all the waiting right now.
grace62251 Guest
Posted
Yes, the waiting is the worst. You're incredibly lucky that its simple. Honestly, you're fine. I am the one that has the s****y prognosis. Do they want to operate? Good luck and keep in touch. Being in touch is helpful.
Guest grace62251
Posted
I have only been told from ultra sound it looks simple and that's what is on my discharge paperwork to me and my GP. I am still so worried it's cancerous even though so far all my bloods normal including tumor markers but doesn't stop me from worrying- I think it's the whole waiting thing and knowing I have this 9cm cyst in me which I want out asap! And yes it's looking like I will be having an op.
I'm concered as they want ct scan but don't know why they would want one?? Medics said it's unlikely to be cancerous but I'm still so worried despite bloods are back and medics are saying it looks simple.
I really hope everything is ok with you. And please stay in touch!!
Xx
grace62251 Guest
Posted
Try not to worry. You're going to be fine. You have nothing at all to worry about. Believe me, I hoped I had nothing to worry about for weeks and I have continually been given all the things to worry about. I don't know why they would want a CT scan either, try to get out of it, that amount of radiation is terrible for you.
Guest grace62251
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My GP said it was because then they know what the cyst is when they operate. Xx
Guest grace62251
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Xx
veebeeb grace62251
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veebeeb grace62251
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grace62251 veebeeb
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Guest veebeeb
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Reading yours has helped me a little. Not sure if you saw my post, I have a 9cm cyst they said from ultra sound looks simple, I had CA 125 tumor markers blood tests and all in normal range but I'm still worrying so much. I need to have a cyst scan and then I'll see doctor.
But I am getting pain when I go for a wee- so my tummy
Hurts when I go- is this just because of the size of it?
I have found this forum so good
So far! I wish you a good recovery and keep us updated about your results!
It's good they got it out whole!
Xx
veebeeb grace62251
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veebeeb Guest
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veebeeb
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Guest veebeeb
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I have IBS as well. I've only had this pain when I wee in the bottom of my tummy a few days so I'm guessing becusse my cyst is 9cm that it is pressing onto my bladder now??
I have to have a ct scan in 2 weeks which still waiting for an appt and then back to see doctor- they have already said about draining it or having a op but won't know until I see the doctor again.
All normal bloods are normal range and even CA 125 tumor markers and the other bloods with that are all in within the normal range which is good. And hosptail said it looks simple which is on my discharge paper work and it says simple on the paper work which went to gp but I am still so worried about it being cancerous. I have been getting myself into such a mess.. do i really need to if bloods all normal ect ?
Just don't understand why I got to have ct scan xx
Guest veebeeb
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veebeeb Guest
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tar2017 Guest
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ca125 is not a reliable diagnostic tool, that's probably why they are doing further tests. you markers could be elevated due to infections, benign conditions ect or completely normal even if something is wrong... so the blood work doesn't say much, i guess they only do it as part of a routine and to try and pinpoint what it could be. it's good that they investigate further, it may just be that they worry about other complications with your cyst due to its size rather than it being cancerous. Try not to worry, I'm sure you'll be fine, a simple cyst is very good news and don't read up online. You only get yourself worked up.