huge discomfort blow left rib

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31/2 yrs ago I had a mild stroke. The morning after I felt a small discomfort on my left side just below my rib. The dr looked and felt but could see or feel nothing. Said it may just go away. Gradually the discomfort got worse and now is sometimes unbearable. It is always present and has indeed reduced my quality of life to a great degree.

I have had CT scan, virtual colonoscopy, endoscopy, chest xray and ultrasound. All negative. I have seen a neurologist and 2 x gut consultants, again nothing.

After all that NOBODY has the slightest idea what is wrong. (this is a time when everybody seems to give up on a patient!)

The discomfort is just like as if someone is pushing their first firmy into the area immediately beneath my left lower rib and I tend to be automatically holding my hand, with some pressure on it, all day for somekind of relief.

Is this a nerve or a gut problem, or anything else and perhaps npthing to do with my stroke after all?

I now have to 'get out of my pram' to get any further tests done. Doctors switch off. Have you tried to push treacle through dry sand?!

I am 67. Has anyone else suffered this problem please?

James

7 likes, 222 replies

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  • Posted

    Do yourselves a favor and find a solid NaturoPath Doctor (ND). They very often can pinpoint and resolve problems that western medical doctors cannot seem to resolve. Have an open mind. The body is well understood by ND's and their abilities and training are often overlooked or disregarded. I, and many I know, I have experienced resolution to long-term problems with the help of a good ND. My brother is right now in the ER at a hospital for the second time with same symptoms all of you are describing. Has had all the same tests. Traditional Dr.'s have not been able to diagnose let alone resolve his problem. He is getting worse by the month. I may have finally convinced him to try another route - the ND. If we learn anything I will post it here. These days my primary care physician is not a medical doctor, rather an ND. If you live in the U.S. you be wise to use an ND first - not last. Western medical diagnostic tests are great and helpful and not to be left out of this equation, but in the end we are left with more questions than answers. Share you medical analysis with an ND, then let the ND explain the cause of your problem. If you live in or around Michigan, I would recommend Dr. Randall Tent. Hope this helps someone, and I pray He and Dr. T will help my brother.
  • Posted

    I look forward to more posts about what your brother may learn. I will consider your advice to look for an ND... I'd been wondering if I might benefit from that. Thank you!
  • Posted

    Most of this thread covers the same issues and its something GP's dont diagnose, there are reasons... Pain in the ribs below and above left side, does lead GP's and Hospital doctors to do the usual tests.  These symptoms 9 times out of ten are dismissed after the usual barrage of tests.  Reading the thread, I would be seeking the help of a immunologist/rheumatologits for autoimunne disease that can affect most aears of the body..I used to think mine was my spleen, heart, small bowel. On sevral occassions my GP kept asking did I know what it was , I was furious, as if I would visit a GP if I had the answer. I liased with US Doctors and got the answerrs in days without being seen. The pain I  was describing was costochondritis, IBowel Disease ,andcollagen vascular disease.. I too was told I had a stroke, but I got the Head CT scan and sent it to the USA, where they came back and told me Polychondritis.  Amazing, they even studied my blood results for the UK where they were said to be normal, they were not.  You really need expert eyes on medical issues and GP and Hospitals dont give the time or are they experinced in looking outside the box.  Autoimmune disease is rarely diagnosed here, as it cost more to treat than Cancer due to its life long effects..
  • Posted

    My reply was deleted , as I put a link in it to the burden of drugs that cause autonomic dysregulation and said google a name. 

    I would concentrate on autoimmune.rhemautology that encompasses costochondritis, then ask a good autoimmune.rheumatologist in mixed connective tissue disorders about Polychondritis Ehlers Danlos Syndrome, Churg Struass syndrome. All affect connective tissue, lungs, intercostal muscles, eye's , ears, nose, neck, spine and digestive trac. Some can be more vascular and brought on with exertion, as tests like CRP ESR and rheumatological tests wont show them unless they are active. If the disgestion and pain behind the left rib cage is in place and does not go away, a Good gastric emptying scan shows up slow motility transit through the small bowel, a upper endoscopy is of little use and will cause more permanent medical problems with the ospheagus and connective tissue. Anyone with cervical throacic spine issues and disease should not have a upper endoscopy.  Find a hospital that comprehensive in everything and make sure everything is under one major hospital, I can not place any Doctors names on here or hospitals, but look at US states like Minnasota, Cleveland as both have clinics and welcome paitents , by staring with on line questions on existing conditions and then invite you from there, they will not accpet paitents unless they can help, and contary to popular belief, there costs are not as high as Private costs in the UK.  Good luck and best wishes

  • Posted

    Thanks Chris

    Moderators do not seem to understand the terms and conditions. They seem to delight in working against us on here.

     

    • Posted

      I think their blocking programmes for weblinks are just too basic to differentiate between spam and legitimate links.  It's annoying isn't it because often people have gone to the trouble of doing all the hard work researching stuff and found valuable info and pasting the link is the most efficient way of us going to see that info.  Oh well, luckly people like Chris are patient enough to put it all into text for us.
  • Posted

    Well done Loxie. Yes they are quite narrow minded to do that. We do all we can to share information then uninformed people who should not be moderators delete it. If they were looking for information they would think twice before deleting. Unfortunately it is arrogance and power and the inability to understand that makes them do it..

    I am sure that there is a site here somewhere that deals with the problem that they have! 

  • Posted

    Loxie nicknames.

    Sometimes its hard to get the help we all need, mine was a lone struggle and I never lost the belief that an answer and diagnosis was out there. You can always find a few helpful things out there as Mom would say

    You just have to keep going and trying , amazaing what you can find and help you can get.  My digestion was prro with left sided pain, and I learnt even a normal looking spleen did not mean it fucntioned properly.  I was for proving I was not an anxiety case and was fed up wuth the usual tests and found even CT scans could not be read properly.

    I learnt to eat correctly to help, funny that , as we all think everything is healthy that we are told. Its not always the case  and some veggies hurt me as I found out Paleo Mom .

    When a community can share information it help and we all learn from each other and thats the way Medicne should work, I kind of think of it as "team inspire"   as you learn more.  Health ,well its like  tap  of running  water, sometimes you need to "healthtap" and research to get some help

    • Posted

      I so agree with you Chris.  I detemined for myself that my under rib pain was food/digestion based but it was purely by accident.  All my doctor would do was to say take painkillers or indigestion remedies.  I have a range of low level but debilitating health issues now and my doctors will never look at it holisticly and see if there's one overriding problem causing all the little niggles.  I get a four minute appointment and am only allowed to talk about one issue at a time but I really think they're all related.  I'm slogging away trying to find info online etc to see if I can find a 'source' for all these symptoms.  I am looking into adrenal gland issues, as excess cortisol can mimic other problems, and also be the cause of dysfunction in other areas such as thyroid (tests on thyroid function do not take into account that the thyroid may be working correctly but the body isn't able to absorb what's produced - so you get a 'normal' reading but it still may be causing problems).  My GP group surgery is so overworked, they really just want to write a prescription, or fill in a form for a test and get you out of the chair and door as quickly as possible.  Oh for the chance to sit and actually talk through all the little issues to see if they link together and find the REAL seat of the problem. So fed up with being unwell and being told there's nothing wrong even though its getting worse.
    • Posted

      Hi Loxie, yes you are quite correct, thyroid tests are to simple and never address the key issue on -the adrenal glands are part of a complex system that help regulate the endocrine system. The correct test is a ACTH , but its only valid if the cortisol level is not supressed first with a Cortiside . ACTH is drawn in a Hospital not a GP's surgery. The issue you could have is the GP wont like the ACTH tested, as it leads back to them not following the correct diagnostic pathway. You would need a Endorinologist appt. Conditions like Hashimoto Thyroid are well know to link to IBD, chrones disease and costochondritis. A gut hormone panel blood screen helps and  that tests VIP, PP, GASTRIN, GLUCAGON, SOMASTATIN, NEUROTENSIN, all endocrine.

      A well known neurologist worked on children with autism and found a diet to help them and its now widely used for other conditions. the Diet is called "Gaps" . a book to look at is called the Paleo approach to reverse autoimunne disease and heal your body.  Try reseaching healthtap for informed help, you will be surprised. I had a brilliant Gastro Doctor who had me on a liquid diet to help and he helps anyone, as its is passion in life, he got my gut working first and then progressed from there.

      I agree with Nicknames Dr's write presriptions and assume there job is done, what they never realise is they dont take the prescriptions or have the condition. Another thing that may help, blood pressure tablets can cause conditions that give terrible pain under the ribs, most blood pressure tablets are ACE inhibitors, and can cause angoendema and intestinal angioendema. Drugs like Ramipril can affect people, but the GP's rely on simple kindey function tests, but should do ACE blood tests as ACE is a product of the lungs as well as kidneys. Good luck

    • Posted

      Thank you so much Chris for all your information.  It really helps to have someone like you who has done so much hard work and research.  I am more aware now I can find info out myself and not just rely on a hard pushed GP but sometimes it's a minefield and one link leads to another and so on until i'm lost in unhelpful techie info.  You've given me some great references to go off and look at.  Really appreciate your guidance. thank you.
    • Posted

      Your welcome Loxie. I have been round in circles many times without help and trying to link the symptoms, and as I made one part of my condition better another would flare, and with no help early on , it was a minefield as the internet is full of information.

      After seeing 4 neurologists, 2 ents, 3 cardiologists, 4 gastoenterologists, and a immnuologist, dozens of scans I was lost. I had one person who helped and was insistent I was been lead up the garden path with numerous tests when the answer were not being disclosed. Everyone can doubt your condition, anxiety, stressed, pyschiatric, and so on. 

      I had one brillaint Doctor overseases who had me list every prescription drug I was given, and each time he said dont take it. He made me work some issues out and said if I studied the medications, I would find answeers , and virtuallly all antichollingeric drugs, he then said look at the burden on the autonomic nerve and the dysregulation they cause.  "Anticholinergic Burden" One neurologist was speechless when I refused more of his drugs and when I said why, the look on his face told a story. I did the same with a gastroenterologist and that caused an issue. The cardiologist was dumstruck when I explained my heart condition and what was making it worse with the drugs I was being fed like most betablockers,  3 of them never even examined me or did the basic tests of listening and ascultation tests. The GP's avoided the autoimunne/rheumatologist at all costs and it was that refusal that made the Gastro overseas Doctor tell me what to do and not to keep putting up with issues like I was. He stopped the Salicylate drugs, aspirn and Ibufprofen I was being givenand he knew I could not tolerate wheat based foods.  The relief I got from stopping them only took  2 days, as they had caused my stomach terrible problems. My BP came back to normal without all the drugs, that does not mean it suits all.  When the mixed connective tissue was indentified , my condtion had progessed sa far there was no reversal, but with help I learnt about biova and its biovaflex and astaxanthin in certain holistic health supplements like "jointformula" that helps the ligaments, tendons and muscles , for the pain I started on DLPA as the gastro doc knew this indside out and had been a leading light in its pharmokentics proertys which showed you could not over dose, how it was not toxic and it worked better tham morphine. I was off the NSAIDs and using every intergrative type of medicine, holsitic, diet, therapys .  The answer were there , but I was never going to be given them as autimmune disease costs to much involves different medical doctors. I found the internet overwhelming at times, but knew the USA had dcotors who would help and be straight saying you cant cure everything, but you can manage conditions better and take control when you understand. My views and opinions have always been the same never dismiss a persons condition, dont throw drugs at them, look at the underlying condition dont treat the symptoms find the cause.  Years of heartache and even family doubting my health cuased headches , and when a GP does not take the time and listen, its not good. The asy rout is to note everything and work together, so the person does not keep comming back to the GP, and I have met a couple of UK Doctors high up in medicne who disagree with GP's holding the keys to a persons health, as they have lost some of there referring onto other sections of medicine powers they had. One told me most cases these days on serious illness and long standing conditions are diagnosed in A/E. 

      Best wishes and hope I did not overload with info

    • Posted

      Quite a few things in there struck a chord Chris.  I've never been able tolerate NSAIDs at all, nor paracetamol and my GPs have become frustrated and annoyed at me that I refuse to take them for my arthritis pain.  They do work on the pain/inflammation, however they wreck my body not just acid reflux but exhaustion, diarrhoea, sleep problems etc.  They just wouldnt believe I had such an adverse reaction to anti inflamms and one said I was being silly as Ibuprofen was 'harmless' - I gave up arguing.  I also ditched my statins as they were wrecking my muscles and aggravating the arthritis - again I got short shrift from the GP who actually said I'd be lucky if I didnt have a stroke that day as my cholesterol was so high.  I take joint formula supplements like biotin, hyularonic acid and MSM and they help amazingly with the joint problems but some of those also give me gut discomfort and the under rib pain occasionally comes back.  As you've said, years of battle with local doctors causes untold stress and anxiety, yes and headaches, which is why I now think all that stress has caused adrenal problems which are making me ill all over again.  Vicious circule it sure is.  I'll spend some quiet time googling all the info you've given and see if I can find a 'simple' straightforward data link to go shove up my doctor's nostrils!
    • Posted

      I had a look at UK based specialists.  One thing you said may  help with your GP, Sleep distrubance . That can easily be OSA (Obstructive sleep apnea) caused by connective tissue cartlidge, ear inflamtion, sore throat through muscles. It would pay you get ask your GP for a complete copy of your medical file, that way you can spend time and identify drugs given that have not helped.

      A paitent as the right to ask for a consultant of there choice with arthritis, as some forms are not indentfied properly. Here are two specilaists in this area and both are there on choose and book from a GP.  Dr Ellie Korendowych MA BM BCh PhD MRCP

      Consultant rheumatologist, medical director

      Dr Ellie Korendowych  or Professor Neil McHugh MBChB MD  both at Bath royal nation hospital for  rheumatic disease including connective tissue. The first also practices privately at BATH if you look, you could explain to your GP everything has been tried, now lets ask a specilaist who actually coveres your conditions, and make the case the first also works with immunologists.

      Adrenal dysfunction is one a GP wont like, but you are correct.. I found even when I was young I could not stand alcohol, which was another indicator of connective tissue and bone.. Acidosis is not nice and causes damage to the intercostal muscles in the rib gage where the pain is.  I was fortunate with the doc who helped me, as he had my diet down to liquids and completey alkaline to reduce the inflammation in my chest muscles and I took Nexium Gradual release as its better than any other if you use acid reflux meds as its a  gradual release pill and works 24 hours , not like others that are short term fixes. 7 days of this can  combat the acid, which means the pain  in the ribs cage subsides.

      There are many theories on statins, and I took them , but I was given simvastatin in the UK, in the US, I was put on low dose Crestor daily (rosuvastatin calcium) it helped and then after a month, I was switched to Vit B3 and coenzyem Q10, Despite what most people think American Doctors are not keen on long term statin use and wont prescribe simvastatin . Vit B3 can give a flush, so I was taking mine in small doses 50 mg daily.  My cholestrol levels fell and I was taught diet is the best way, exercise was out due to my condition.

      Adrenal dysfunction, just ask for a endocrinolgy appt sighting the Thyroid blood test is not useful, as some conditions are hypothalmus, pituitary gland, parathyroid gland all are afected by arthritis, as it does affect the cervical spine and face bones, similar to the thymus, pineal glands.. The Gut hormone I referred to previously is linked to the endocrine system. 

      One of my key issues was vision and pain behind the eyes and eventually in the US I saw a Ophthalmologist , its standard when you have arthritis to see a Ophthalmologist as it does affect the eyes and give headaches . 

       

    • Posted

      Loxie,

      I am wondering if this a common issue with Doctors in the UK? I'm in the US and while there are definitely some crappy docs here, our appointments last much longer than 4 minutes. And that's crazy that you can't go through all of your symptoms at one time to find the underlying issue. I hope you've gotten some relief since this post.

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