Humming in left leg, muscles twitching all over, and issues digesting food

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Hello all!

So i'm new here and just wanted to get a second opinion from here regarding what i've been experiencing.

So a few months ago I started experiencing this random humming in my left leg. I just shrugged it off cause it was really random and nothing seemed to cause it.

Fast forward to 3 weeks ago and I have been having constant and random twitching all over my body. About 75% of the twitching is in my left leg (the same one that has been experiencing the humming feeling) but I have also been twitching in my arms, right leg, abdomen, back, and a few other places. I went to my doctor last week and he gave me Gabapentin to try. I stopped after about 10 days because it didn't seem like it was having any effect other than making me feel physically and mentally awful. My doctor recommended giving it a try and if the issue persisted that I see a neurologist and have a brain MRI to check things out. 

I have not had any sort of weakness or anything in my left leg or anywhere else on my body that i've noticed. I am still running 3+ miles a day and not seeing any changes in that. Additionally, I have cut out alcohol and caffeine from my diet for about 10 days and have found that it has still been happening so I don't think that either of those are causing it.

The final symptom that i've been experiencing (that I don't know if its connected) is an issue digesting food and the urge to go to the bathroom directly after I eat. I was reading that this could mean that my body is not absorbing nutrients and that could be the cause of the twitching but I doubt that since, for the most part, it is isolated to my left leg.

Finally, i'm in the last 3 weeks of graduate school and i've been working a lot so i'm not sure if stress can cause something like this but I figured i'd include that as well.

I'll be setting up an appointment with the neurologist this week but I figured i'd come and get some additional feedback regarding my symptoms. 

Thanks to all of you!

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  • Posted

    I hope it is just a magnesium deficiency. Get aome over the counter magnesium and take it see if it helps and or Gatorade. You may need to see a neuromuscular neurologist for a emg. You can try a facebook site called BFS recovery many people there with same symptoms. I hope it goes away and it is just something simple. I have had these twitches started all over 18 months ago then afyer 7 months they lessened but never went completely away. I was terribly ill when it started after 2 vaccines. It was theorized I had guillan Barre miller fisher variant but was lucky it hit nadir and stopped mild axonal damage now I have normal emg. Some people say it can be anxiety but if your not normally a anxious sufferer then not likely. Good luck.
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    • Posted

      My doctor has already done a blood test and everything came back alright so I don't think its that. And yeah.. googling this online was an awful idea haha

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    • Posted

      Great suggestionswhat do u mean axons ? Permanent damage . Cause been 3 years this July and I still have numbness in my part of my legs to my feet . Sandy paper feeling so strange I feel it more by laying down my feet are up I’m not walking on them I’ll turn different ways I can feel the nerves inside my feet doing wiered things . I know so well about how I had flue shot and paralyzed , life support . Waiting for neurologist takes a while they should of not s**t my file specially when I still issued . Funny I check on google. Please let us know what is going on with you good luck .
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    • Posted

      Hi Caroline. I had axonal damage at first instead of demyelination or both. So when they do the emg they stick the needle in your leg or arm. Mine picked of axonal issues. Luckily for me my immune system kicked in and stopped the attack after three months and my next emg went back to normal and my reflexes were normal. In some people if you had axonal damage it may not completely repair but they can it can take up to 3 yrs or longer. Our nerves repair at a rate of 1mm to 5mm in a day depending on our bodies. Some people dony have a complete recovery in the axons. So you may still have fatigue problems walking twitches in the muscles numbness tingling etc. I had facial nerve issues and so my face stayed numb for 15 months until it started having brief periods it would fade. It comes and goes more now. I still have some muscle twitches but not as much as 18 monhs ago they were all over non stop after 7 mo they faded and now I may have 1 or 2 a day or none then 3 or 4 then none. I never know but hardly any. I hated them so much and not sure if they will ever completely stop since hundreds of people who had GBS still suffere from twitches many years later. I had gastroparesis tachycardia and postural orthistatic hypotension for 4 months in the beginning and blurry vision and weakness all over. I couldn't walk for some months and when I could I couldn't walk down a hall without sitting down. It was terrible. You sound like you had sensory nerve damage. That is why you have the sandpaper feeling. My feet still hurt. I have to wear shoes that cushion and support them well. Some days when I get out of he bed bottoms feel like I am walking on glass after a little while it gets better throughout the day. Hope you are well.

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    • Posted

      Have ups and Downs. Stress doesn’t help. 39 years old with a wife and 3 boys. 6-3, and 8 months.   I’m hoping for some answers soon and nothing to serious. 
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  • Posted

    Hello,

    Congrats on School hope you succeed on your journey to a great life. Read your story , what do you mean buy humming? Twitching think you definitely need to see neurologist. Has your doctor not send you there yet and most of the time it takes a few months . I’m in Ottawa still I was there then after awhile they closed my case but because I still have twitching , numbness , sand paper feeling in my feet there sending me back I had gbs. Was in hospital a year . Question do u feel any tingling in your body like pins and needles ? Do you feel any weakness I n your legs body ? Any numbness? Have you had any blood work ? Mri , cat scans ? And how long have u felt you have this eating issue hun? 

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    • Posted

      By humming I mean like a very subtle and constant vibration. It’s only in my left foot.

      No pins and needles feeling, numbness, or weakness. Blood work came back fine and my doctor is going to set me up with a brain mri to see what’s what.

      In regards to the eating issue, probably about a month or two. I thought I became lactose intolerant within the past couple of years so I thought that it may have just been that but I’ve been trying to not eat any dairy and it’s still happening so I think it’s more than that.

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  • Posted

    Make sure he does blood work to . Very strange maybe the setting thing could be an ulcer. I’m know doctor could be or a digestive issue . Do you have any pains around your stomach ? Keep that mri appointment get him to do blood work  also who knows maybe they are related maybe there not . You know just like me you find you have 1 issue then u find out u have 2 or 3  lol. Sound your doing every thing right so let’s hope that the mri shows what ever is wrong hope you will be ok for sure .Have you been laying on that one side more? 
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  • Posted

    I’m in the same boat you are Kyle. I just found a doctor that is willing to help me.  Had about15 viles of blood drawn today. Had mri of t spine today. And getting c spine and l spine tomorrow.  IBS issues with twitching everywhere. I’m also getting small cramp like feelings. In different parts of my body. 
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    • Posted

      Kenny with the IBS I would check into celiac disease it can cause twitches and etc. Kyle may need to have that checked also. Try a celiac diet see if it helps while your waiting for results.
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    • Posted

      Thanks. But My GI doc said that he would have seen that in my ct scan or the colonoscopy and he ruled it out.  Also did a stool sample. He again said anxiety. Funny thing is I’m pretty calm or as calm as I can be by going through this. When I saw my doctor yesterday for the blood work she actually said that for the doctors to stop at anxiety and depression was garbage and not fair. 
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    • Posted

      I don't believe anxiety alone causes these symptoms but does make them worse. I strongly recommend strengthing your immune system. I was told by my neuromuscular neurologist that my symptoms are not being caused by a disease. One neuromuscular neurologist at mayo told me it was a autoimmune response to a virus and would eventually go away. Then my neurologist told me it was guillan Barre syndrome. The illness matched guillan Barre and the catalyst was flu and pneumococcal vaccine starting prednisone at the same time. 3 weeks later gbs. I hope you get to feeling better.

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    • Posted

      By the time 9 months later I saw the neurologist I have now it was to late for l.p. he said with my initial symptoms along with the first emg he was confident it was GBS with Miller fisher variant. Over a year I had 6 emg and at centers for excellence because I was scared of ALS. I was terribly ill in the beginning. I woke up and had numbness on the rightside of my fave with a feeling of pressure in my forehead skull. I became confused and had blurred vision. So went to ER tgoughr it was a stroke. Over the next few days it intensified and I was weak and had gastroparesis. I coukd barelu walk my legs and arms I voukd barely lift. I had twitches from my waste down all over my but to me constantly with night sweats tachycardia and orthistatic hypotension. It lasted 4 months I thought I was dying. I went to a ER 4 times each tine told it was a virus given nasuea meds then I went to mayo they said my first emg at the hospital showed axonal issues but that it was gone now and they thought whatever it was had been a autoimmune reaponse to a virus and that since my emg was now normal that whatever it was was improving no need to do anythung except go see a psychiatrist to get aomething for anxiety because I had sufferers a traumatic illness and that the anxiety was what July problem was now. That was feb2017. I am on Elavil 25mg and celexa 10mg. My twitching is now a few a day or maybe nobe some days. I had them everywhere jan2017 from leg arm shoulder abdomen buttocks it freaked me out bad. 7 months later they slowed not everywhere every minute if the day but in march I started taking alpha lipoic acid 200mg 3 times a day and magnesium coq10 acetyl l carnitine 400mg vit d 3 50000 units a week. My only lab that was bad was vit d it was very low 12. I still take the acetyl l carnitine and alpha lipoic acid and vit e. I drink Gatorade few times a week and pure cherry juice. I amped up my antioxidants because I read a study that alpha lipoic acid may help. I dont know if it really did but I just keep doing it. I am much better now if it really was gbs. I have read there isnt much you can do about the twitches if they are benign except exercise eat well and relax and eventually your nervous system may fix itself. It is hard to do when you go through the weird twitching. As long as you have no weakness you are fine. I have been improving since my initial incidence that is why I think it is possibke in had some kind of attack on my body from the vaccines and hoping. I will be ok in the future. The gbs matched all my symptoms. My neurologist said it is common to be misdiagnosed and that my presentation in the face first probably confused the doctors. Let me know if I can suggest anything or vice versa let me know if you find out what happened. Your in my prays. Hope and stay strong. I am 44 I was 43 when thus happened. I was scared because of my age. It will be ok take anxiety meds if offered you will need them and Elavil works great gor pain and sleep in low dosages. Best wishes.

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    • Posted

      Thank you for that response. That was very helpful. And I’m happy you are getting better. It’s such a shame that we live in such a fast pace world and when things like this happen we forget that it’s such a slow recovery. agin That was very helpful. 
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    • Posted

      How are you doing today? Please go to the facebook bfsrecovery and ask to be added to the group so.many people there are like us and they will tell you things that may help. I can tell you the GBS facebook sounds like the BFS when it comes to twitching. Many people after Guillan Barre develop muscle twitching. Mine have improved since my initial onset 11/2016. I may have one or two in a day or none just depends. I went from all over every second of the day so I feel better but I will still have moments even with a few that I will let my.mind worry. This is a terrible symptom to have. I can tell you what may help. Anxiety medication supplements like alpha lipoic acid omega 3 vit d 3 vit e acetyl l carnitine magnesium pottasium. Prescribed.meds would be Elavil celexa Gabapentin oxycarbazepine or carmabenzipine I think that is spelled right. Talk with your doctor. Exercise even if you don't want to. Talk about itdont keep it bottled up.

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