Humming in left leg, muscles twitching all over, and issues digesting food

My doctor has already done a blood test and everything came back alright so I don't think its that. And yeah.. googling this online was an awful idea haha

Hi Caroline. I had axonal damage at first instead of demyelination or both. So when they do the emg they stick the needle in your leg or arm. Mine picked of axonal issues. Luckily for me my immune system kicked in and stopped the attack after three months and my next emg went back to normal and my reflexes were normal. In some people if you had axonal damage it may not completely repair but they can it can take up to 3 yrs or longer. Our nerves repair at a rate of 1mm to 5mm in a day depending on our bodies. Some people dony have a complete recovery in the axons. So you may still have fatigue problems walking twitches in the muscles numbness tingling etc. I had facial nerve issues and so my face stayed numb for 15 months until it started having brief periods it would fade. It comes and goes more now. I still have some muscle twitches but not as much as 18 monhs ago they were all over non stop after 7 mo they faded and now I may have 1 or 2 a day or none then 3 or 4 then none. I never know but hardly any. I hated them so much and not sure if they will ever completely stop since hundreds of people who had GBS still suffere from twitches many years later. I had gastroparesis tachycardia and postural orthistatic hypotension for 4 months in the beginning and blurry vision and weakness all over. I couldn't walk for some months and when I could I couldn't walk down a hall without sitting down. It was terrible. You sound like you had sensory nerve damage. That is why you have the sandpaper feeling. My feet still hurt. I have to wear shoes that cushion and support them well. Some days when I get out of he bed bottoms feel like I am walking on glass after a little while it gets better throughout the day. Hope you are well.

I agree other wise we think we have every thing . 😂😂😂😊🙄

No pins and needles feeling, numbness, or weakness. Blood work came back fine and my doctor is going to set me up with a brain mri to see what’s what.

In regards to the eating issue, probably about a month or two. I thought I became lactose intolerant within the past couple of years so I thought that it may have just been that but I’ve been trying to not eat any dairy and it’s still happening so I think it’s more than that.

I don't believe anxiety alone causes these symptoms but does make them worse. I strongly recommend strengthing your immune system. I was told by my neuromuscular neurologist that my symptoms are not being caused by a disease. One neuromuscular neurologist at mayo told me it was a autoimmune response to a virus and would eventually go away. Then my neurologist told me it was guillan Barre syndrome. The illness matched guillan Barre and the catalyst was flu and pneumococcal vaccine starting prednisone at the same time. 3 weeks later gbs. I hope you get to feeling better.

By the time 9 months later I saw the neurologist I have now it was to late for l.p. he said with my initial symptoms along with the first emg he was confident it was GBS with Miller fisher variant. Over a year I had 6 emg and at centers for excellence because I was scared of ALS. I was terribly ill in the beginning. I woke up and had numbness on the rightside of my fave with a feeling of pressure in my forehead skull. I became confused and had blurred vision. So went to ER tgoughr it was a stroke. Over the next few days it intensified and I was weak and had gastroparesis. I coukd barelu walk my legs and arms I voukd barely lift. I had twitches from my waste down all over my but to me constantly with night sweats tachycardia and orthistatic hypotension. It lasted 4 months I thought I was dying. I went to a ER 4 times each tine told it was a virus given nasuea meds then I went to mayo they said my first emg at the hospital showed axonal issues but that it was gone now and they thought whatever it was had been a autoimmune reaponse to a virus and that since my emg was now normal that whatever it was was improving no need to do anythung except go see a psychiatrist to get aomething for anxiety because I had sufferers a traumatic illness and that the anxiety was what July problem was now. That was feb2017. I am on Elavil 25mg and celexa 10mg. My twitching is now a few a day or maybe nobe some days. I had them everywhere jan2017 from leg arm shoulder abdomen buttocks it freaked me out bad. 7 months later they slowed not everywhere every minute if the day but in march I started taking alpha lipoic acid 200mg 3 times a day and magnesium coq10 acetyl l carnitine 400mg vit d 3 50000 units a week. My only lab that was bad was vit d it was very low 12. I still take the acetyl l carnitine and alpha lipoic acid and vit e. I drink Gatorade few times a week and pure cherry juice. I amped up my antioxidants because I read a study that alpha lipoic acid may help. I dont know if it really did but I just keep doing it. I am much better now if it really was gbs. I have read there isnt much you can do about the twitches if they are benign except exercise eat well and relax and eventually your nervous system may fix itself. It is hard to do when you go through the weird twitching. As long as you have no weakness you are fine. I have been improving since my initial incidence that is why I think it is possibke in had some kind of attack on my body from the vaccines and hoping. I will be ok in the future. The gbs matched all my symptoms. My neurologist said it is common to be misdiagnosed and that my presentation in the face first probably confused the doctors. Let me know if I can suggest anything or vice versa let me know if you find out what happened. Your in my prays. Hope and stay strong. I am 44 I was 43 when thus happened. I was scared because of my age. It will be ok take anxiety meds if offered you will need them and Elavil works great gor pain and sleep in low dosages. Best wishes.

How are you doing today? Please go to the facebook bfsrecovery and ask to be added to the group so.many people there are like us and they will tell you things that may help. I can tell you the GBS facebook sounds like the BFS when it comes to twitching. Many people after Guillan Barre develop muscle twitching. Mine have improved since my initial onset 11/2016. I may have one or two in a day or none just depends. I went from all over every second of the day so I feel better but I will still have moments even with a few that I will let my.mind worry. This is a terrible symptom to have. I can tell you what may help. Anxiety medication supplements like alpha lipoic acid omega 3 vit d 3 vit e acetyl l carnitine magnesium pottasium. Prescribed.meds would be Elavil celexa Gabapentin oxycarbazepine or carmabenzipine I think that is spelled right. Talk with your doctor. Exercise even if you don't want to. Talk about itdont keep it bottled up.