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Hydrocortizone not working on PMR so great after all

Posted , 10 users are following.

DebbieHurts
DebbieHurts

I'm the gal who went to the endocrinologist to see how to reduce my prednisone for the rhumatologist who thinks I don't have PMR, and was put on hydrocortizone instead of pred.  Almost a month later I had a SED rate and other stuff taken and my inflammation has gone up from the high 52 to 63.  Painwise I have been suffering a lot, though just on the cusp of being able to take it.  Talked to the rheum. and she said she still wanted to do MRI of my brain, neck, shoulder, before going back to prednisone.  What is your guys' take on this?

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  • DebbieHurts
    DebbieHurts

    Posted

    Experiment after doing my lab tests:  Sunday I took 25mg of prednisone and Monday I took 20mg.  Monday I felt so well, I even ditched the walker for a short time.  My shoulders, arms, legs all felt much better.  I was doing a few things and thinking up some creative work.  The stone hard pain in my whole body felt as if it had been lubricated and I could move.  That tells ya something!
    • Anhaga
      Anhaga DebbieHurts

      Posted

      That's a pretty positive response to the pred!  Are you going to stay at a higher dose for a little while?

    • DebbieHurts
      DebbieHurts Anhaga

      Posted

      If my dr will prescribe some for me.  I haven't heard from her yet.  Darn.

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