1. Community
  2. Bones, joints and muscles
  3. Ankylosing Spondylitis

I am 28 year old. I am feeling like I don't want to continue my life.

Posted , 14 users are following.

manikandan38288
manikandan38288

6 years before I have diagnosed for AS. For the past 6 years I have struggled more about my back pain. Recently, I lost my job, since that I have occupied by full of negative thoughts. Even, there is a chance to get my job again, my mind is not thinking about the job instead it's thinking about the loss. Additionally, I am feeling the pain worst now, I am a unmarried guy, so I am thinking like why should I continue this life with this kind of pain. Also, I am feeling like I don't have any support. Any suggestion will make me take a better decision.

Thanks

2 likes, 38 replies

38 Replies

Prev Next
  • jillian41791
    jillian41791 manikandan38288

    Posted

    Hi again Manikandan,

    I feel the same as you do about lack of support, especially my husband so I reckon I'll be better off living on my own but not sure how to do that but I need to just look after myself for now and even if it means living on my own for a while. Perhaps we aren't speaking up enough about our needs and to the right people. I wish I wasn't so stubborn and also have pride. But I'm going to have to forget about that for now, bite the bit, and accept the challenges, one at a time.

    Lack of funds is my initial problem.

    I'm starting a new Med next week. I'm having to inject twice a week with Humira.won't like it but I need some improvement badly.

    I've never had to do this before, so it will be a challenge.

    How are you going yourself Manikandan-

    ..Do you have some encouragement for me?

    Perhaps we can encourage each other..what do you think?

  • agneus96992
    agneus96992 manikandan38288

    Posted

    Hi,

    Don’t give up. There are alternative treatments available for this disorder. Ankylosing spondylitis can be also cured by yogas and physiotherapy. Did you ever try such treatment methods? I had taken treatment under the best physiotherapist in dynamic physiotherapy & sports injury clinic Burlington for Ankylosing spondylitis. After the physiotherapy treatment, the doctor suggests to me some simple deep breathing exercises to enhance the lung capacity. Physiotherapy helped me to keep good posture. An ankylosing patient should be aware of the use of heat and cold techniques for pain relief. All the best.

     

    • jillian41791
      jillian41791 agneus96992

      Posted

      Yes Agneus, I don't intend to give up:- I believe I have Gd support in my drs, rheumatologist, counsellors and various family members and am increasing my pro-activeness with my ankylosing Spondyloarthritis and fibromyalgia:- I'm pretty sure you have the wrong discussion...

      ..I do have good and not so good days but try to get Gd nights sleep, use positive thinking, diversional thought therapy , hydro when. I can, counselling when I require it and listen to my body to try not to over-do-it.

      Heat works with me for relief during winter and cold will when warm weather finally gets here. I do laps in pool to increase my fitness and lung capacity and relaxation therapies when I need to.

      I'm told it can't be cured, just managed and the earlier we get onto it the better off we be.

      Hope you are right!

    • jillian41791
      jillian41791 agneus96992

      Posted

      Agnes, Jillian again, seems I made reply mistake..sorry bout that- I didn't read correctly but I'm hoping mandikandan will come back to join in our conversation..

  • courtney_56601
    courtney_56601 manikandan38288

    Posted

    I am hoping that you are continuing your life. Please do not become a victim to your AS . Fight it at every cost.

    I too have had AS for all my life now 55years old and have no regrets. Get a good Doctor Rheumetlogist and pain management specialist. I have been on Enbrel for 12years and celebrex with prednisone and I'm living life.

    Yes I have flare ups and can't cope or want to end this life but then I see the beauty in my family the stars the ocean the sun. You must see with your eyes again not the AS eyes! .

    Get the help yo need . For my depression I take Cymbalta and abilify. They really help. You are needed on this earth . . Promise me to see the doctor and don't take no for an answer. Ask and show what I'm on .

    Let me know how your doing. Courtney

    • peter21326
      peter21326 courtney_56601

      Posted

      JIllian and Courtney,

      ?  I just wanted to drop a note to thank you two personally for the wonderful job that you have been doing to uplift and encourage Manikandan in his depression with this ugly disease.  It's very difficult to help someone that you dont really know via a medium such as this forum but you both have been very caring and dilligent in your efforts.  May God bless you for your care and whatever the outcome with any one person your efforts are greatly admired and appreciated by all of us.  Take care.

    • jillian41791
      jillian41791 peter21326

      Posted

      Peter, I acknowledge your very kind compliments to Courtney and myself and accept them honourably and also appreciate other people who have assisted me as I am still pretty new at all this AS and fibro stuff!
    • gloria55119
      gloria55119 jillian41791

      Posted

      Hello, can I just say a few words to add to Peters...we are all traveling on a very long and bumpy road here...and this forum has certainly given us all some personal strength to keep going. When the baggage gets to heavy to hold on to...friends here help us carry it on to better days...thank you all, you have given so much. Your words here have given me and many others...hope. Love to you all...Gloria
  • jillian41791
    jillian41791 manikandan38288

    Posted

    Hi there Mandikandan,

    What medication does your Rheumatologist have you on because when I don't keep up my Panadol osteo at 6am, 12 noon and 6 pm then everything turns into a struggle .

    I have learnt that our subconscious remembers pain and responses to it and other thoughts and feelings that we've had in the past and easily repeats it and even intensifies and extends it sometimes so that's where relaxing, breath work,

    Diversional thought therapy, repeating positive affirmations, regular diet and moderate exercise and seeking support from others is required...

    • manikandan38288
      manikandan38288 jillian41791

      Posted

      Recently, I have admitted in mental hospital. Now, I don't have confusion to take my decision. I'll die soon . Thanks

    • jillian41791
      jillian41791 manikandan38288

      Posted

      Manikandan. You are stronger than you think you are. I know you are because you are a really caring person and knowledgeable and have lots of skills and good work ethic and have been to Dubai..I think you like to travel as well and would like to do the family thing... you have lots of good qualities.

      When I don't take pain relief as often as I should, I fall in a heap pretty quickly and then depression clouds my ability to think positive thoughts. At that moment it is winning but I get back on track and won't let it beat me! You can do it too. You are number ONE and it will improve. I know many people with AS and much worse and from even 13 yrs old..they've gone on to play sport, have families. Since you've just had to stop work, I believe you are just in the initial stages of AS.

      Since I've stopped work, moved away from my husband to reduce stress and concentrate on me and my treatment and my new life, I feel much more relaxed. I've even devised simple schedule to eliminate unexpected stress and anxiety and I TAKE things ONE DAY, HR at a time if I have to.

      You can do this too. If you want to!

      Put reminder on your phone, or make sure to be involved in positive outcomes with your help to IMPROVED QUALITY of life.

      I am pleased to hear that you have seeked help. Time to stop being angry about it. I was like that and still are on occasions but Help I am happy to ask for now.it was really hard at first because I am so stubborn.

      I discovered I'm my own worst enemy.

      The people who have had AS for many years haven't had the knowledge & resources that we have these days to reduce the effects, causes, symptoms, professional support etc..we can reduce the pain through changing our ways of thinking ( I'm working on it , most of the time and it is working..)

      I'm thinking how I can turn things around and what I can do while I adjust. Study something..time to use brain more and not the body!

      I bet you are good at Maths. Most blokes love Maths..what things did you use to love doing in the past Manikandan!

      I'm writing myself a list and plan to do as many as I can. My new medication 'Humira' is beginning to work now, even after only 2ND needle. Totally worth it!

      I will be waiting to hear from you. Jill

    • jillian41791
      jillian41791 manikandan38288

      Posted

      Manikandan, please start a new discussion.

      Let me know that there are people there who care and you have decided to let them.

  • Maton
    Maton manikandan38288

    Posted

    Hi, sorry about your situation. I've been struggling for more than 30 years with AS from my neck to my feet. I've had surgery on my neck and now have a 6 inch metal plate applied to it. I can't get into it now for reasons Beyond My Control. just letting you know temporarily at least to hang in there. I will get back with you and let you know my story and hopefully I'm not too late. If I can make it for 30 years surely you can make it for another week at least till I get my head straight. Talk to you later. David.

    • gloria55119
      gloria55119 Maton

      Posted

      Hello everyone...it saddens me to know how so many of us suffer so much...but where there is life there is hope. It takes sheer guts and bravery to continue when life is so hard for us all. I just had my 70th birthday and that means that for more than half of my life I have suffered immeasurable pain. But there are good days....and thats what I live for...plus my family who love and need me...Prayers and love to you all. Gloria
  • kay72736
    kay72736 manikandan38288

    Posted

    Hi Mani.  It's terrible how you are feeling. I hope the worst is passing.  Everyone is giving you such good advice.  Remember who will miss you and that you will change their lives for ever.  Their is hope, with As their are good days even when the disease is not the only problem.  Kay

Back to top
Prev Next

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.