I am a little angry and disappointed

I just noticed that many things I am writing is  always being moderated lately.  I dont believe I had this problem in the past.  I also noted that one of my posts were deleted.  I dont think I am doing anything wrong but its possible I was reported by someone who dont like my subject matter.  The moderator never contacted me of why or even made suggestions for what is suitabe or not in my writing.  I looked at their agreement and I do follow their mehods.  Maybe I write too much much and conttext is more of a personal nature.  Since I dont know how to contact you by email, I dont know where to turn.  I cant find a way here to do so.  I cant mention my email address here and you wouldnt either. Maybe there is a way we can establish contact using facebook.  Once we xan, then we can send private messages.  If you use facebook, maybe I can look you up there.  I know there is private chat.  You can look me up as Mel T and should bring up my timeline.

I heard of him and he is a Christian writer.  He writes meaningful stuff and is wirthwhile reading.thanks for the recommendation.

Hi Mel,

I have commented before but there is an FAQ section that answers all of your queries regarding Private Messages, moderation, contacting me etc.

http://patient.uservoice.com/knowledgebase/topics/59133-discussion-forums

The only post by you that has been deleted was simply because it was a duplicate post. Some posts will go for moderation due to content but will be approved as long as they are not breaching T&Cs.

Regards,

Alan

Thank you emis moderator for your kind reply.  I do feel much relived that it wasnt me.  I will tone my comments down and not write very lengthly subject matter.  I know this a closed forum for members and is a way to project yourself, either being positive or negative about your particular predictament.  In no way do I reflect this upon others for sympathy or people feeling sorry and asking somebody for help.  I think it is in how one comes across in explaining various situations.  Yes, of course it is Ok to releasee some of the frustrations you encounter and ask for advise whether something should be considered or not.  I have been to forums where individuals hit bottom and cant live with themselves resulting in contemplating suicide.  Many reach out and includes me.  You dont want to see anyone to commit suicide.  Many of the respondents reach out to give them hope and resources where they can go for help.  When others do no follow these suggestions, do nothing and continue to complain over and over again of their woes, then that is another matter and you would be surprised how many would not communicate any further.  I like when people tell me that you have given good advice and been very helpful and turn their attitudes around in a more positive  manner.  I feel good that I helped someone.  On that note, thanks for commjnicating with  me.

best to you,

mel

Some people don't like him because he thinks everyone should be forgiving of others, and he has a lot of money and lives in a big house.  He actually hopes that everyone can live like this through the blessing of God.  Of course that doesn't happen, but I don't hold it against him. 

Mel,

I read why my was being moderated cause I guess I must of hit the period instead of comma so it thinks you are sending a link or address but I know that's what I did wrong.

I'm hoping I don't have to retype it to you. Ugh

Sleepless night in Ct.

Cindy ( Cynthia)

Hi Cynthia,

I got some sleep last night so I felt better today. It's 12;15 in AZ which makes it 3 am where you are..  I usually stay up until 2:30 am. But a lot of times, I end up staying up all night long.  And take cat naps of 1 1/2 hr here and there during the day.  I usually fall asleep after I take a tizanidine.  Somehow, during the night, I am usually able to make it without much pain medication. I always hope that I can sleep in late the next day because then I can make it through the day on what little pain medicine I have. It's kind of a crazy plan.  I like staying up at night because I have the place to myself.  My boyfriend and I sleep in separate rooms.  He works, but when he's home, I drag myself out to the living room and try to spend some time with him.  Hope you are able to get some sleep.  I know you will feel better if you do.

Linda

Linda,

No sleep here went to sleep at 1:30ish up at 3 still up gonna try n go back to sleep, hopefully lol

Talk soon

Cindy

Me too, I've been chain watching Breaking Bad with an ice pack on my back.

Hope you get some sleep.

Linda

Hi Cynthia,

Well, I wanted to cry when I read your story about how you were hurt, and then the hot tub therapy - how STUPID of that girl.  I bet she has no idea to this day how much she has hurt you.  I had a bad weekend, mainly because I'm so low on painkillers (I used extra at Christmas when I visited my granddaughters and overdid it, so I used "extra" while I was t here, but I don't get even one day extra any more like I used to with my old daughter, so now I'm short. I can pick them up Tuesday, so I was planning to be there Tuesday am at 9:00 when they open, but NOOOOO, they're out, they get them in Tuesday at 1:00 which means I'll get them between 3 and 5.  And I'll have none for Tuesday.  I wanted to SCREAM - NO, You're murdering me! Your're murdering me. But, all I could do was so, okay, thank you.  I could not bring myself to smile, except maybe a little pathetically.  So today my foot neuropathy was out of control - you know - with the burning hot needles that explode out of your toes.  I said I could write a song about it "Great Toes of Fire!", and we started cracking up. Next thing you know, I said I should start a suggestion that's just for writing humorous things about dealing with chronic pain. There's quotes in pininterest and a few blogs.  I came up with some silly names, and I'm trying to pick onel. Looking for ideas and comments, suggestions?

I don't know, they brighten up your day (sometimes, not all the time I know), but I have a few names like:

Chronic Pain is no Joke, but since we're here...

Whining and Dining with  Chronic Pain

I can't remember the other 2, I think I like these 2 best.

I think I like the 1st one best for the discussion I'm thinking about.

Any ideas?

Hope you sleep good tonight. I slept 4 hours last night besides 2 prescriptin sleeping pills. I'm trying my boyfriends prescription tonight.

Take care,

Linda

Hi Linda,

I am so sick I can't even move, I was about to go to the hospital the other night migraines so bad nothing will touch it, I have frova I felt like I was hoping they would work but no, I'm seeing bright lights when I close my eyes I can't even eat or drink anything just hope this goes away soon before I do end in the hospital, my stomach hurts.I hope it has nothing to do with this dumb stimulator, now that I think back to all the bad I think I should get in touch with the rep and see what's up. If it can be from the stimulator, I'll keep u updated, hope to talk to soon.

Cindy

Hope you feel better!

Hi Cindy :

To hear what is going on with you, doesnt seem right. To be in so much pain and suffering from the flashing lights does mean that you should get to the ER. Personally I wouldn't wait. It's important to take care of it. What would be causing this to happen, I just wouldn't have the slightest idea. You mention maybe it could be the stimulator. I wonder how this could be? Is it possible for the leads in the spine may be touching a nerve it shouldn't be? I wish I could help but the doctors should investigate this. I think calling your rep wouldn't give you a reason either but what do I know. I really want to know how you make out with this. Please let me know. I am very concerned about you and please don't let this pass by. All my best to you and feel better. Looking forward to your response to me.

mel

Cynthia, I think you should call an ambulance - right away.  Something does not sound right for sure!  I know we have a tendency to be tough, but this is not a time to be tough, this is a time to get medical attention, okay?  Please call them, doesn't sound like you should be driving.

Love ya,

Linda

Hi Linda:

I following Cindy and I hope that she can read here as well. I tried to answer her and show my concern her taking care of this urgent matter. I'm sure she has received it. I she went ER immediately to be taking of. So far I haven't heard from her but maybe she at the E R now. I asked her let me as soon as she can. I really hope that it can be taken care of. I want her be well well as you do too.

I am using my phone in writing this and it is just slow as the tablet and maybe a little more slower because the keys are tinyer. My fingers are 3x larger than the keys. He.He. It is taking me forever to get anything done. I can just pull my hair out. Using my phone a reliable but I to be more careful. Anyway I will close for now. At this rate I will fall behind and messages will pile up. Maybe I should make a general announcement so others will see my Delmar is and forgive me for the delays. Meanwhile I will definitely stay abreast of Cindy and if are able, please tell Cindy that to contact me. Thanks. I will talk later. Meanwhile have a good with minimal pain. Bye for now.

As always,

Tiger

Thanks, I think you are typing pretty good.  I make a lot of mistakes w hen I have to type with my phone.  Sometimes I can turn it sideways and the keyboard gets a little bigger that way.  I have not heard from Cindy.  I'm assuming that when she responds to one of us, we can all see, unless she makes it private.  I hope she is at the hospital.  Where she might or might not be able to communicate. But I for one think that when you are in the emergency room, you should be focusing on your health.  

Hi Cynthia,

Are you okay? Did you go to the hospital? What happened?

Linda

Hi Linda

I just let it run its course, just sick, my brother on the other hand, I live with my brother and nephew, so I go and check on him hate to say had to call the ambulance, He's diabetic he took off his pump so he wasn't making any sense so I had to call the ambulance, all our bedrooms are up stairs, he was so dehydrated kept asking for water, his blood glucose reading was off the charts so he couldn't deny it, so I had a feeling all night cause I didn't hear him much, so I went in there at 6:30 and he wasn't making any sense, so I told him I'm calling, I was like I can't take care of u like that, it was crazy morning for me, and I was just starting to feel better yesterday, I honestly think it's caused by the OIC, I just think it had to do with that ,I hardly eat cause of it, I should be 90 pounds lol ever since this stupid stimulator I know why they block or read some of messages if you put to many periods so its like a complete sentences you are sending ugh but I'm hanging in here thank you and Mel for checking up on me it really felt nice knowing people care about you

I will keep you posted on my pain and stimulator going make an appointment to see rep to see if we can schedule a date for it I'm in more pain sleeping because it sticks out so much and I do roll on my back alot.

Hope everyone is doing OK! Take care talk to you guys when I find out when I'm going

Have some what a pain free day!

Your friend cindy Cynthia from Ct

Glad you are all there for each other! It's nice to have famliy you can rely on. Don't know what I would do without my Cecil. Take care of your brother. That's a lot of responsibility for you, but I think it's good to have someone to look after and to care for and who cares for you too.  Have a good day.

Linda

Linda,

Little bit of bad news, he's sugar was over 1000 he was pretty much dead they said when he came in, they told me he had so much acid in system and it wasn't pumping out, so they had to induced coma he had a breathing tube in a direct line into to his heart breathing machine so many meds pumping into him to try and get his blood pressure up, they told me it was in gods hands and go home and make phone calls to my family that he's probably not gonna make it, now he was fine on Wednesday went out shopping with his ex gf they are still friends, and Thursday he thought he was getting sick but I couldn't sleep felt like something was wrong, that's when I checked in on him, in a matter if 12 hours if that he was in that bad of shape, now just praying to see if he's gonna make it, and not be brain damaged, so no sleep last night called today they said pretty much the same, so gonna lay down been doing to much, running around keeping busy, than when I get up go back up to the hospital, I'll keep you updated and of course I am kicking myself in the butt for not checking in earlier with him, but who knew he thought he ate something bad and was getting sick.

Hope everyone is doing OK today.

Talk soon

Cindy

Dear Cynthia,

I cannot believe what you are going through.  I had no idea things were that bad where you live. No wonder it took so long t heaer back from you. I'll write to Mel and let him knkow if he doesn't know already. Your poor brother! Do you know anytning yet? I don't know much about diabetes really except had an acquaintance choose death over dialysis.  i will pray for you and your brother.

Linda