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I can't eat or sleep AT ALL! I'm convinced Ihave ms and advice?

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ashley20394
ashley20394

I'm 19yrs old last year I was experiencing this flare like light in the coner if my eye and muscle spams. I googled it and the first thing that showed up was ms. I so was scared!So I went to doctor got blood taken came back good then and mri came back good. But then now I started to get symptoms like a burning crawling feeling and terrible headaches a pain in my eye and a pain in my foot and I started to slur my speech. I have terrible aches, I went back and got more blood taken and an xray of my spine all came back good. Now in january I have another mri I think she said of my brain I also got my reflexes tested she said my left side was off. I have to see a neuro I'm terrified any advice would help thankssmile(sorry this was so long)

0 likes, 16 replies

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  • bic24773
    bic24773 ashley20394

    Posted

    Hello Ashley, must be scary for you. There is other illnesses thst can cause similar symptoms. MRI brain may show what it is, some benign brain tumours can cause ms like symptoms. Write down all your symptoms because once you're in from if the neurologist you won't remember. Try not to panic. easier saud than done but stress usnt good for you or ms. There's lot of help available and they're discovering new stuff everyday. I have MS. My mum had it, she died in October 80 but not of MS it was misadventure/accidentally my sister has neuro problems probably ms. Fear is your biggest enemy not MS you can live a giid life with it, don't met it own you. Good luck, I hope you've got but b deficiency and injections ir tabs sort you out but if its ms please reread this message and comment I'll come back if you want an email. Good luck
    • ashley20394
      ashley20394 bic24773

      Posted

      Thank you so much .I was really panicked and I still kinda

      am my mom and dad dont have ms, but my cousin had it. And he actually

      had it since he was a liite kid! Its just that I can't talk to any one about it my parents wont listen and I'm scared to tell my friends Good luck to you too!♥

    • bic24773
      bic24773 ashley20394

      Posted

      Your parents are probably frightened too and maybe think talking about it will make you fret more. Deep slow breaths in and relax and breath out, thinking about breathing is helpful. I'm a hypnotherapist. ;-) let me know how you are from time to time. You can find me on Facebook if you're on, all my fb friends are lovely people all ages and I'm a bit kooky :-) Lorraine Scarlet Heeney. <3>
    • ashley20394
      ashley20394 bic24773

      Posted

      thanks for your advice your right, I feel lots betterthank yousmileI'll message you:D

  • tracy35015
    tracy35015 ashley20394

    Posted

    Also get your vitamin levels tested: B12, D.

    A B12 deficiency can mimic MS. The normal range used by most doctors is way too low. If yours is in the gray zone below 450 pg/mL (ng/L in the UK) or 332 pmol/L you may be deficient. Get your MMA tested if in the gray zone which can confirm a deficiency.

    • ashley20394
      ashley20394 tracy35015

      Posted

      Ok I'll ask next time , but I thought they checked when I got my blood

      tested?I'll ask next thank yousmile

    • tracy35015
      tracy35015 ashley20394

      Posted

      Doctors don't always automatically test B12 and it isn't part of the standard CBC blood test so you may need to ask for it. But it may be checked as part of a battery of tests for MS. Be sure to ask for your actual numbers, don't settle for your doctor stating it is in normal range. Like I said, doctors are using a range for normal that it far too low. Normal people should have B12 in the 900s or higher (for pg/mL units).
  • b07015
    b07015 ashley20394

    Posted

    Hi Ashley how are you feeling now? Have you seen the neuro?

    I convinced myself I had MS 6 months ago. I have always been a bit of a disease phobic. I remeber finding a chinken pox scar on my neck that I hadent noticed and I was convinced it was the big C.

    Im like you young (22) and worried. I started with floaters and seeing coloured spots. Then I finished uni and i had a tingely feeling across the bridge of my noes. I googled it (worst decision of my life) because since then I have developed every symptom imagainable. Oh help sad

    -legs feel funny, like my knee is stiff and im not walking right

    -sore everywhere

    -sometime feel like im on a boat/unsteady on my feet

    -eyes get blurry sometimes

    -my feet keep getting cold when they dont feel cold to the touch

    ...and so on and so on.

    My doctor sent me for CBT and im in my second session (have you tried this yourself?) Personally I am not noticing much difference but I dont know if im honestly giving it a chance because I am stubbornly convinced.

    Also am scared of waisting doctors time and dont know how to describe half my feelings so I avoid going...

    I really hope i am not alone in all this and someone out their can help sad. I keep thinking this is just the beginning of a long misserable struggle with a chronic disease that is going to stop me being me.

    Please please please any advice would be helpful smile <3 xx

      xx="">

     >

    • bic24773
      bic24773 b07015

      Posted

      Have you explored with your counsellor what triggered the obsession with your health? This would mean changing from CBT to psychotherapy looking at your past. Ask your counsellor especially if CBT doesn't seem to be working. Your other option is hypnotherapy. Good luck.
    • b07015
      b07015 bic24773

      Posted

      Thank you for your reply!

      I had thought about it, my dad is also someone who worries about health. The CBT counceller says we are going to be talking about how to address thoughts as they come into your head.

      Its so destressing and makes me feel like Ill never move on with my life sad

    • bic24773
      bic24773 b07015

      Posted

      You will get through this, I trained in counselling and had to have personal counselling but I had to pay, I freed myself from things I didn't know I needed to. Consider doing a course locally you can start out with counselling certificate it helps you recognize things. People on here are very supportive. Also I've found they're non judgmental which is very therapeutic. You will have a good reason for your feelings abdbonve you know and acknowledge it you'll move on :-)
    • b07015
      b07015 bic24773

      Posted

      Thank you so much, your reply is so understanding and supportive. I am desperate to move on but determind to stop running to the doctor about symptoms. Is their anyway this could all be in my head? Do you have any experiences of online counciling courses?

      Thank you!

    • bic24773
      bic24773 b07015

      Posted

      No experience of online courses sorry but if you're on fb ask your fb friends as recommendation is the best way. Sometimes when we help others we help ourself. Are you UK ir USA? In UK there's counselling courses you can do at evening, I was a Samaritan whenni was very young, the youngest actually they don't counsel as such but they will train volunteers in helping skills. USA I don't know about sorry. You sound really nice, you'll be OK because you already have such good self awareness skills. Also counselling and training helped me with my MS. :-)
    • b07015
      b07015 bic24773

      Posted

      You sound such a lady and your the first person who I have ever talked to who has MS. My doctor dosent think I suffer from it but beleaves that I have anxiety, that is why we are trying this CBT approach. I have never had any sort of medical exam other than blood tests that were clear. I hate to bother people with my problems, thats why I would be tempeted to look at counselling online. I just wish I could beleave what the doctors say. I just cant understand what I have been told- that the mind can create all these symptoms of MS. Everything feels like the worst case sinareo right now.

      xxx

    • bic24773
      bic24773 b07015

      Posted

      Tell him how you feel, anxiety can be awful I have it, I felt like a hypochondriac or at least u fekt like my Dr thought I was one, even after referral to a neurologist he didn't believe me until the tests came back. I'm not saying you have it but say you don't feel like you're being heard, give the therapy a chance but document any symptoms try nkt to focus on them just write them down. I hope you haven't ms but if you eventually get diagnosed don't let it scare you, webon here will always support you. Sending you love and healing kindest Lorraine
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