I could’ve punched doctor at hospital!!
Posted , 11 users are following.
Hi all,
I’ve posted already about my traumatic time. Basically agonising pain, hours in a & e. Admitted. Sent home first time after 2 days even tho I said something is wrong and I was throwing up bile. Agonising pain again Same procedure again only this time my bloods showed huge elevation in inflammation markers and I got CT scan showing acute cholecystitis, infection, necrotic areas on my gallbladder etc etc. It was too sick to remove so got gallbladder drain in. Bile leak causing the worst pain i’ve Ever had in my shoulder that I was screaming.
Anyways 3 weeks in hosi and 8 weeks with drain in I got to see a surgeon (not my surgeon) 2 weeks ago. She took the drain out and and I said I haven’t had my endoscopy yet! Need it as they found streptococcus bovis in my bile a marker for cancer. They should have booked me an urgent one but didn’t. So she says i’ll Get that arranged. So I need those results before I can get my operation to remove it.
So yesterday after all that I thought I was going to see my surgeon at last. Went into the appointment and it was a female doctor ( my doctor is a man) turns out she assists him. He was next door taking appointments. First words out of her mouth were so you’ve had your gallbladder out!! 😡😡😡
Eh no!!!! Still waiting!! Wtf!!! Oh sorry!! Frantically looks at screen!!
Next thing oh and it says you had your endoscopy as an inpatient on the 20th Dec but I can’t find the results!!
No I didn’t!!!! and I still haven’t had it yet and I need the results before my operation!! Really!! After everything i’ve been through!!
Oh I’ll order an urgent one today. That’s what the surgeon 2 weeks ago said.
I’m trusting these people to take an organ out!!!! Now on a waiting list and could be 12 weeks this goes on and on and on 😳😡😫😤
I’m in Scotland. This is the state of the UK NHS!!
Hoping when I finally get my appointment they take out my feckin gallbladder and I don’t wake up minus my liver or pancreas!!
Honestly my patience is wearing very thin!!
Sorry for the long rant! I really need it!!! Claire
0 likes, 52 replies
Mrsoscared lilacchiararose
Posted
my iPad just writes what it likes and embarrass me lol maybe I should give my iPad to the nhs lol
Mrsoscared
Posted
lol of course were not old chap.
and of course I will they tried to take my life .
and of course we all hear about the success story’s Scottie in fact that’s all we do gear about the horrors are nicely brushed under the carpet .
but hey if your happy with the nhs , not so good for you !!! Lol.
we don’t have to agree Scottie it’s just one mans opinion against another.
were all friends here and I know you also mean extremely well.
so please I ask you , do not take this the wrong way, it’s just my opinion and I am entitled to mine as you are yours !!
bless you and I hope your healing is going well .
allthough I do have to say you will all ways defend the crappy nhs because you are part of it as you used to work for it so somewhat bias, not to be forgotten lol.
Micklemus Mrsoscared
Posted
Back to the complicated subject of our gall bladders and the research re the fact that there are many so called experts such as the lady registrar mentioned in my past postings who have never heard of Ursodioxycholic acid. This is where mistrust is generated on a big scale.
Surly the successful chemical method of dissolving gall stones that are definitely dissolved with the taking of Ursodioxycholic acid tabs is better and cheaper than an operation?
The treatment as already said is not for everyone but for many it works a treat and in fact the Surgeon who prescribed them for me stated that they will indeed dissolve my stones as they were cholesterol based and also a follow up letter told me that he was pleased that the Urso had worked admirably for me & would not hesitate to repeat the next years prescription.
There must be thousands of gall bladder removals that could be avoided and in this process surely a lot of much needed funds could be saved also.
Why is this not broadcast with a fanfare of trumpets I do not know. I noted the NHS anti antibiotic
adverts were to save money as well as educate those who take them unnecessarily. On the other hand I would most definitely would have been dead 2001 without antibiotics.
My experience with several GP's was that until proven that I had an infection no antibiotics would be given. They were apparently inexperienced to the extent that they did no cultures so could not see I had an infection. Specialists are discussing ( would you believe) whether a short course or a long course of antibiotics is suitable to kill off all bacteria in a body & yet there is no testing after an infection to confirm that infection is gone/eradicated.
As regards TB which can affect any material in the human body there is a cut off date at 70 years of age for referral! Does this mean that an old person is written off if TB is suspected
at 70 years of age? It may well be worth remembering due to TB not being history that the bacteria can affect the gall bladder the liver and any lymph systems around the body.
wanda1999 Micklemus
Posted
wanda1999 Micklemus
Posted
This has been the most informative forum I’ve read. I just want to make sure that I am understanding you correctly. At age 70 you are basically told by nhl that it would be to your advantage to go ahead and die because you are no longer going to get specialized treatment. Am I understanding you correctly? I can’t believe how long patients have to wait for treatment.
Most people in the US think that your form of healthcare would be wonderful. I don’t believe all the hoops you have to jump through just to “get in line” to wait for months for treatment. My aunt is 90 yrs old and just had her rotator cuff repaired as she tore it completely off her shoulder. She is extremely an active person and she told the orthopedist she had too much to do in her yard and in her house, it’s about 5500 square feet and it’s just her living there. He said she was the oldest person he had ever done a repair on but after he met her he said no problem. She had an MRI that week and out patient surgery the next week. It appears from what I have read that most of the time you don’t always have the same doctor every visit, it’s just who happens to be there. I couldn’t deal with that. Do you have to pay for medications you get at the pharmacy? The ironic thing is there are ads in the newspaper directing people in the US to our meds from Canada or Great Britain because they are sooooo much cheaper than here. About 15 yrs ago one of my Drs told me the medication I needed was about $400 a month because there was no generic in the US but there was in Canada. It cost me $89 for 6 months.
As you approach 70 drop me a line and I will tell you good luck and I’ll know you no longer post on these forums LOL😢🙏.
lynda20916 Mrsoscared
Posted
Hi--back from hospital. Surgery went well, but staff did their best to kill me afterwards. Fortunately, my oncologist's partner visited me twice & got me some good pain meds. Was bundled up & discharged yesterday at 3:30 pm. xx
Mrsoscared lynda20916
Posted
ahh bless you so happy for you well done for getting through it Lynda.
now just rest drink plenty of water , sleep as much as you can although that’s difficult for a bit.
and heal well .
you only get one chance to heal Lynda.
so take your time and HEAL WELL !!
what happened at the hosp , how did they try to kill you ?
wish you a good recovery.
lynda20916 Mrsoscared
Posted
Well, they decided I didn't need my antacids. Fed me clear diet with highly salted broth, etc. Put a binder on over my stomach/lungs/diaphragm that didn't cover the incision site. ! was vomiting from being dehydrated. After having abdominal surgery, mind. They were giving me nausea meds, but not more iv fluids.
Argued with my cancer doctor over pain meds. At a certain point was told I'd have to make half of a standard dosage last 7 hours.
If I overslept when my pain med was due, they told me it was too soon to ask for it. Checked my vitals every hour. Decided my heart heeded monitoring so stuffed electrodes underneath the binder & stuck a 3 pound telemetry unit in the pocket of my hospital gown.
Did cleaning and hammering at night...just, you know "little things."
Micklemus lilacchiararose
Posted
If a person had TB as a child and realizes that TB can re emerge through careful research the UK cut off date is 70 years of age. I do not quite know how the referral system works but the TB problem has not gone away despite lots of doctors thinking it is history it is not. That is why there are now improved advice to all UK doctors on this subject but the UK is miles behind USA.
The authorities advice is really to imegrants and not us lot who are old enough to have seen TB and of course to have caught that bacteria. Coupled to this I am told by our practice manager that doctors (meaning all) have difficulty accessing paper medical history notes so they do not look for them.
This seems a stupid system because it is a stupid system.
In 2016 a matron type nurse very mature told me the system was to change (all being well) to electronic
systems. Therefore she said if all goes well the past medical history will be there on screen in front of 'them'.
It is said that a percentage in good diagnosis of 80% is based on past history. So that means I assume that
due to no doctor referring to my past history ever in 37 years it's no wonder I found them abysmal at discovering what has been wrong with me in all that time.
I did not think this outcome was possible & placed a lot of trust in 'them' but I am very suspicious now & as I said every mortal thing now goes down in writing. They now have to get their letters of reply correct or I can refer to an incorrect statement issued from 'them'. This is a very disconcerting situation to live with but
this has to be done.
I see many a gall bladder is being outed but mine was cured with Ursodioxycholic acid and that was due to me being keen to try that method with very valid reasons and it worked.
biliarydyskines Micklemus
Posted
Beenthruit biliarydyskines
Posted
Micklemus Beenthruit
Posted
the whole year I took the course. In any case although liver function tests are carried out before and during the treatment..... Urso is given for patients with liver deterioration to halt that deterioration so quite how it is detrimental to the liver when it is given to dissolve stones is a question I have not gone into. You will most probably be aware that all chemicals/drugs/antibiotics do not suit every one but I gave them a go and I am very please to say it worked for me and I have been much fitter previously to the taking of them!
Beenthruit Micklemus
Posted
Micklemus Beenthruit
Posted
I agree in every respect. As I said the taking of Urso in many instances must be a missed chance
and I feel that is deplorable. There is extensive data on urso especially from the USA. There is also a lot of mumbo jumbo bandied about almost all subjects that any one could think about but when it comes to the human body which is the most complex item ever I cannot imagine that a doctor would
give the wrong advice same as the registrar I mentioned who would tell anyone she is an expert and the only thing to do is out the gall bladder...... totally out of order and totally unthinkable that such practises can happen but they do happen and will continue to happen in the present circumstances.
None of us know or can confirm that certain procedures are done with the criteria bases on finance alone. This also is deplorable but it is happening. I decided to research into the gall bladder problem and found removal is not the only choice we are all faced with so I gave it a go.
When a patient starts a course of tablets that may work better than an operation that patient can
stop the course which has not made any difference to the clinical diagnosis but once a patient is on the table for the removal of the gall bladder it is a final solution.
Provided there are no other complications with the gall bladder and associated organs etc that in my case was indicated by ultrasound which is not 100% certain nothing else was amiss I thought is it better to keep it or let them out it--------- I mean the registrar who had my fate in her inexperienced hands asked me if I had ever had pancreatitis????? how the hell did I know if I had pancreatitis - I though that was her job to tell me that.......... I told her that due to this consultation I was not at all happy -not at all. Then came the reply letter to mine saying I had been discharged. After a bit more letter writing and a reply from the important man himself there it was, the statement I needed= yes Urso will dissolve gall stones and mine were the type they will dissolve....... I might add that Mr S P ( Nottingham)is one of the most experienced 'thinking'
gastroenterologists in the coutry as a whole. What a pity his registrar has only a fraction of his ability.
Micklemus biliarydyskines
Posted
Hello biliarydyskines I don't know the answer to that question but if you look at all the research
by typing in Ursodioxycholic acid you will see that it is not onl for the dissolving of gall stones but is used to help patients with cirrhosis of the liver. The liver of patients which has been damaged are I believe given urso on a long term basis. I would have thought that in your case the best procedure would be to consult a gastro E surgeon who knows all there is to know about the liver and all the associated organs in the digestive tract and especially the treatment of your particular problem. I would not accept any final decision made by or offered by any registrar but would only accept such critical clinical advice from the gastroenterologist him/ herself.
See my bad experience re young inexperienced registrar...... This is not to say that all registrars are in the same category as the one I mention re gall bladders but this is the third adverse experience I have had regarding registrars. After all they are learners \and are not experienced enough to dish out important lifechanging advice on a regular basis....... I just think this is not on.
biliarydyskines Micklemus
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Micklemus biliarydyskines
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biliarydyskines In addition to my post below I looked on the ursodioxycholic acid website =there are numerous addresses to research on that subject and it's worth you yourself looking at the site in which it says that damage to the tubes are treated with Urso under clinical supervision.
Years ago I saw that Urso was given to counteract cirrhosis of the liver......
I do not know the compexities how that treatment works but I believe it is well established in the gastroenterology field. What I read is that there have been several research procedures re gall stones and there are some quite up to date re the use of Urso to dissolve stones.
It surprises me that there is a lot of mumbo jumbo bandied about which astonishes me when it is about such a serious subject ie life and death and good health. This is how things have progressed and it's called 'progress'. As other chaps and a lady has said it's quite abysmal when
a patient does not get the help they need & forces them to have to read blogs such as these but on the other hand in many cases if this blog helps to reduce someone's worry then that is surely a good thing.
I have always kept an open mind on everything and I will not hesitate to ask a question if it seems at all necessary==== everyone on the face of this earth is here once only so make it count and do the best you can while you are here!