I feel awful but Doctors say theres nothing wrong I dont know what to do???
Posted , 8 users are following.
Hi Everyone , Im new to the forum and I'm hoping someone can give me a little feedback. Quite frankly Ive been quite poorly and now I think I'm being viewed as A hypochondriac, but I am convinced I have a thyroid issue . My Doctor and now it seems my Endocrinologist are wiping there hands of me as they see no underlying endocrine cause. I do have a pituitary macroadenoma but The Endocrinologist says my bloods dont show anything wrong. Sorry to bore everyone but a brief synopsis-
Im losing my hair
Ive put on 3 stone in 3 months despite no change in my diet
I have poor memory
Im exhausted all the time
I get headaches
Erratic body temperature
By late afternoon everyday Im getting cramps in my lower legs and my feet to the extent I can barely walk
Ive had bloods done and the only results I have are
March 15 TSH 3.9
Free T4 13.6
Dec 14 TSH 2.1
Free T4 12.5
My recent bloods I believe show my TSH at about 2.9 again
My Vit D keeps falling it was 17 and after 3 months supplimentation Im at 51 - this is the second time it has dropped.
Please - has anyone any input ?
Thank you
0 likes, 18 replies
specie8472 michelle08474
Posted
You did not mention your weight and it’s your private matter but in that area you have to try and help yourself. For myself I have always taken the view that if I didn't eat I would not get overweight, indeed just the opposite which goes for all of us.
Good Luck, keep at it.
michelle08474 specie8472
Posted
Thank you for the feedback and supportive comments
specie8472 michelle08474
Posted
Rather concentrate on the first paragraph which I have repeated below.
Go back to your doctor and reinstate your position. I would suggest you ask your doc to see another specialist, a different opinion, (a second opinion) ask him/her to be really selective for you, because of how you feel. Impress him/her. Remember GP's see so many people its impossible for them to keep individuals complete problems in their head and I would say also on their computer, so help your GP out and go back and appeal to him/her.
michelle08474 specie8472
Posted
kristen69295 michelle08474
Posted
I was passed over by multiple doctors before I had someone listen. This may just be my experience, but I found that going to a female GP made all the difference. I'm not sure that this is your experience, but I've had multiple occasions ( not just dealing with thyroid) that the male doctor think it is just 'in my head'. It was only when a woman listened that something was sorted. That said, I do not want to say that, that is the case across the board.
have you looked into Functional Medicine? It looks more at the symptoms than the numbers. May be worth a try. Good luck!!!
michelle08474 kristen69295
Posted
specie8472 michelle08474
Posted
Contact the surgery again and ask to see another doctor, don’t think they won’t like this; it’s not uncommon so persist.
I good doctor can be better than a endocrinologist, note can be, you have to get a listening doctor, keep trying, you will succeed, don’t give up, you will get there in the end, we all know it shouldn’t be as difficult as it is, but that’s life, it aint perfect.
michelle08474 specie8472
Posted
Thank you once again for your replies
helsbells15 michelle08474
Posted
Have you had b12 and feritin and folate tested, low numbers in these cause very similar symptoms to hypothyroid, worth getting them tested.
Also nothing wrong with asking for a theraputic dose of levo. Your TSH is high enough next time you put your results on put down the ranges also as I am not sure where on the range your T4 is if this is at the high end this may be the reason they will not supplement.
plus they have not tested FT3 ask it is normally refused and I would get it tested privately if this is low then you have conversion issues and they will have to treat you.
T4 is like a larder and sits in your body waiting to be converted into T3. When T3 drops low we get symptoms. If your T3 is low and your T4 is high then you are not converting and you have some ammo for the endo.
michelle08474 helsbells15
Posted
My T4 keeps changing and has been as high as 4.1 apparently - The Doctors (even today when I was with them ) keep quoting the 2-5 range and telling me that Im within normal range .
My T4 is around 12.5 (TSH 2.1) - 13.6 (tsh 3.9 ) on a range of 9-24
I dont believe I have had FT3 tested
Thank again
helsbells15 michelle08474
Posted
I hope I have been of some help
michelle08474 helsbells15
Posted
Im sorry I havent replied before - thank you for the message. My vit D was 17 after 3 months of supplementing Im at 51. Yes I believe I have to continue with a smaller daily dose
Lou75 michelle08474
Posted
michelle08474 Lou75
Posted
Thank you for your message - I went back to my doctors surgery today and seen a new Doctor - after insisting that I was going to self medicate he is sending me for some more tests including an antibody. Apparently my TSH has been up to 4.1 - it keeps yoyoing. We shall see - thank you again
Lou75 michelle08474
Posted
michelle08474 Lou75
Posted