I feel so angry
Posted , 4 users are following.
I feel so angry - why did I have to get this so young.This time last year I did not even know there was such an awful disease and all I had to worry about was trying for a baby. I can't event have sex, let alone trying for a baby now. I have been in constant pain, red raw, burning, itchy and soreness since November. Am I ever going to feel and look normal down below. My labia has started to shrink. I feel like I am living a nightmare.
Sorry just needed to have a moan as I do not know how I am going to live with this for all my life and am so scared I will never be able to have a baby.
0 likes, 21 replies
Guest
Posted
I hope that you get it under control soon and you get the baby you so desperatly want XXX
gbs
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Take care and keep talking. :gbs
sueg
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There is lots of advice on these forums and they have helped me more than the doctors who didn't tell me much. Mine is getting a little more comfortable now, do use the steroids and lots of barrier cream. I find clothes really irritating to the sore skin have taken to wearing full skirts and not much else! :lol:
Please try to stay positive, the problems aren't in your reproductive system, no reason you can't have babies when you get this more under control. Very best wishes and don't give up! Sue.
Guest
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Guest
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I might book an appointment with a counsellor. I will see how I am after I see this dermatologist who specialises in vulva LS.
Thanks again for all your lovely messages xxx
Guest
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Guest
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Hope the dermotlogist gives you more help. take care.
gbs
Guest
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I have not been able to wear jeans since November and sometimes can not even bare to wear cotton knickers. I have not had sex since the end of September and things just seem to be getting worse, week by week. I am very lucky as my husband has been so understanding since I had my miscarraige and all this started up. Even though he is brillant this is putting a strain on our marriage as we can no do what normal newly weds do.
I have started a diary to see if anything flares it up - like things I eat. I am also having reflexology and acupunture once a week which does not seem to help.
It really helps hearing everyones advice xxx
Guest
Posted
Take your time - de stress - [b:1ddbe2447a]use your steroid once in the morning and at night for a month at least. Your aqueaus, use every wash. If you are showering put it on before you shower or if you have to bathe then smooth some on before entering the bath it will help to protect you. Dermol200 shower cream is also goodIf you do those things as gbs says the soap stays out your nether regions. Use your barrier as, often as [/b:1ddbe2447a]you like. With time and understanding and doing as we have said about healing yourself first and not distressing and rushing things you Will see an good improvement. Stop thinking anything you put on has chemicals like lanolin that can harm. Babies bottoms are delicate and nappy creams and E45 has lanolin. If you take pills of any kind you could have a reaction. I am 60 and have used lanolin all my life. If its good enough to treat psoriasis with E45 cream then its good enough for us and the risk is so tiny. you could get a rash from any foods or prescriptive medicines so it is all a lottery.
Mickey lobe, it wont do you any good getting upset that you have it so young, because you have it and you have got to learn how to make the most of your life and not be negative always. The girls are really giving you such good advice. Believe in them. Look at old threads, you are not alone Mickey we are all in the same canoe!.. Love Mal ( the nagger)xxx
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gbs
Posted
Mickey1 I use aqueous cream all the time - for washing - moisturising - after i go to the loo - etc, Sometimes i don't even use water as it's water based already, just pat dry. I've just had a biopsy and believe me it's sore but using just water will make it even sorer - at the moment i can't use the paladin or the dermovate so i am relying on the aqueous to help heal and keep the ls and possibly lp at bay.
You really do need to talk to someone face to face about all your feelings. Really sorry you've gone through a miscarriage, it's so hard to deal with the loss and imperitive that you talk it through with someone who understands what youve been/still going through. Please follow peoples advise about controlling your ls - it will improve if you work at it. take care sweetie.
gbs
Guest
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It would be so lovely to have a LS support group near where I live to speak to women like you xxx
Guest
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I really do feel like you at nearly 34 I never imagined I would be going through all this and my body has already been through such a lot with pregnancies, losses and gallstones to name a few I feel like the walking wounded and everytime things start to look better something else crops up!!! I know stress is my biggest problem and I think once my diagnosis is sorted I may talk about going on the low dose anti d's as my gp had tried me and I did'nt like them after my dad died but if a low dose keeps me calm enough to slow the flare ups then I will try this route. Chin up hunni you are doing really well you have so much to contend with XXX
gbs
Posted
It would be so lovely to have a LS support group near where I live to speak to women like you xxx[/quote:6d0822f136]
Think i've had it for few years but was only diagnosed last year - which was a relief really as you think you're going mad with all the itching etc. I was thinking all sorts of irrational things like std's (even though hadn't been with anyone else)!
Guest
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You seem to be coping fine after your op. You did not say how many biopsies you had or from which part of the area. I can not tolerate anti-inflamatories so I used 'panadol extra' and they worked.
Emx appears to be doing really after 3 biopsies.
I have to wait 6 weeks also for the results but was kept busy with my wounds. Mind yourselves. I found lavender in the bath helpful. Not allowed to use salt. wishing uou both a good healing and lots of patience! May
Guest
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It would be so lovely to have a LS support group near where I live to speak to women like you xxx[/quote:00dbf7b489]
Think i've had it for few years but was only diagnosed last year - which was a relief really as you think you're going mad with all the itching etc. I was thinking all sorts of irrational things like std's (even though hadn't been with anyone else)! [/quote:00dbf7b489]
I have had it for about 3 years but formally diagnosed 18months...Like gbs, thought I had all sorts of irrational ideas as to what it was. There really needs to be more openness with this complaint. I have spent almost a whole year learning about it and asking questions but there seems to be that point everytime when you come to a dead end. We can only try to help each other. Saying to us the words No Cure really p....me off. I was always taught there was no such word as no, there is always a way and that I believe that will happen. Keep going.Mal