I feel so angry

Hi there Mickey1 hope you are feeling not too bad.

Congratulations on getting an appointment with a specialist dermatologist so quickly, hope she is able to help a little.

It is good to know there are other women out there and to be able to talk even just online. I have joined a support group WMVP for vulval pain on Yahoo Groups, they are lovely but I have not met anyone with LS sadly. I often wish I felt able to tell family and friends but it is so difficult, only my partner knows. Keep talking even if only to us, if you can find a good counsellor even better.

My partner is lovely but finds it difficult to talk about and we have not been able to have sex for over a year now. That is bad enough but when you have miscarried and desperately want a baby it is just heartbreaking. Don't give up, treat yourself gently and take your time getting better. Best wishes. Sue xx.

Went to see the dermotologist yesterday and she does not think I have LS but psoriasis and vulvodynia. The other consultant diagnosed me with vulva LS and pudendal nerve damage. Not sure which consultant to believe - they both do not want to do a biopsy as they think it will just make things worse as it is so red raw at the moment. I just don't understand as I have lot of white areas on the tears and one small part of my labia has shrunk. She has given me instructions on how to wash, use the steroid ointment, use the ointment to numb the area and use the barrier cream. I will make sure I follow her instructions and not give up.

I am also worried this burning pain and bladder pain will never go because of the vulvodynia. It constantluy feels like I have a urine infection as I contanstly need to urinate and when I go I really have to push and stings like hell - they have tested my urine and I don not have an infection.

She says that if the pain does not get better in a few months I need to see a consultant who deals with chronic pain.

Anyway better start to get more positive as I am sure I am making things worse by stressing and crying all the time.

Thanks for all your messages and support everyone - it has helped me so much xxx

Hi Mickey1 just read your post, not sure whether it's good news or bad, I think I would be even more confused.

If it isn't LS then probably good news, as if you can get the psoriasis under control maybe the vulvodynia will ease as well. Personally I would wonder why my labia were shrinking if there is no LS and you are young.

Still, sounds like the treatments are similar so good luck with them. Don't know what else to say to help, just hang in there!

I have found writing things down helps when dealing with consultants. Otherwise I forget what I mean to say due to the stress of it all. Very best wishes. Sue.

Hallo mickey1

go to ****

select the first option on left side of page = ****

select Message Board on left side of page

scroll down the page and under the picture of the flowers select message board again.

Very relevant info for you concerning LS and bladder infections. Most of us visit this forum and find it and the woman who set it up Marlyn so helpful and encouraging.

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[quote:f2d6a46836=\"marilyn49\"]Hi Mickey. If you read back over old threads and answers as gbs has said you will have all your answers. What comes over to me is that you are trying to get your products to work PDQ and that is not the way it is...Be patient and dont give up on something after a few days...If you use the aqueaus to wash with firstly- rub a good blob into watered hands and then put your hands back under the tap for a quick rub together , you will see that the emollient is smoother, then, gently smooth on you and then just rinse with warm water. The emollient will soften as well as clean. Just water will not moisturise you will just get dry. The paladin as you can get in the UK on **** .

Take your time - de stress - [b:f2d6a46836]use your steroid once in the morning and at night for a month at least. Your aqueaus, use every wash. If you are showering put it on before you shower or if you have to bathe then smooth some on before entering the bath it will help to protect you. Dermol200 shower cream is also goodIf you do those things as gbs says the soap stays out your nether regions. Use your barrier as, often as [/b:f2d6a46836]you like. With time and understanding and doing as we have said about healing yourself first and not distressing and rushing things you Will see an good improvement. Stop thinking anything you put on has chemicals like lanolin that can harm. Babies bottoms are delicate and nappy creams and E45 has lanolin. If you take pills of any kind you could have a reaction. I am 60 and have used lanolin all my life. If its good enough to treat psoriasis with E45 cream then its good enough for us and the risk is so tiny. you could get a rash from any foods or prescriptive medicines so it is all a lottery.

Mickey lobe, it wont do you any good getting upset that you have it so young, because you have it and you have got to learn how to make the most of your life and not be negative always. The girls are really giving you such good advice. Believe in them. Look at old threads, you are not alone Mickey we are all in the same canoe!.. Love Mal ( the nagger)xxx[/quote:f2d6a46836]

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If you wish to communicate directly with people, you should register, for free, with the forum (click Register in the menu list below the green banner above). You and other registered members will then be able to communicate with each other via Private Messaging (PM) or e-mail.) [/i:f2d6a46836][/b:f2d6a46836][/size:f2d6a46836][/color:f2d6a46836]

hi mickey,everyone is right on here,stick to the routine and you will get there xx