I had surgery in 2014.

Thank you jason. Yes you are so right, i do feel so unwell, and would never wish anyone to get this problem. X

http://www.uclh.nhs.uk/PandV/PIL/Patient%20information%20leaflets/Inner%20Ear%20Balance%20Problems.pdf

there is interesting information on this site.

Anne, this is where I  am going. Read the booklet, nd interesting that they don,t cover any questions about 'what if the VRT doesn,t help'?  I am now under the physio dept there and exercises they gave me are more or less same as ones I,ve had before and they 'ain't giving me any relief!

Gillian, i am loathe to say this, but  do they really know if anything actually helps, has there been any research into who has benefited from these treatments and how many it has helped.  Obvioulsy i gave up smoking and that's got to be good, but it hasn't changed my dizziness.  I tried the MAV diet and gave up things i liked but made no difference, i now drink decaff, makes no difference, i tried the excercises, makes no difference.I tried the meds made no difference.   I am not saying it can't help some people but just that it hasn't helped me and it hasn't helped you by the sound of it.  I'm not blaming anyone for that, just that's the way it is.  At the end of it all my ENT specialist, that i eventually paid to see privately, just said 'carry on as normal' which is pretty much what i try to do.  I tried to do some VRT exercises that i found on the internet and it worsened my balance, maybe it would improve if i kept at it, but as i still have to work and drive for my job, i can't continue with them if they worsen it and still keep working whilst my body tries to adjust.  I bought a dizzyfix hat which worsened everything and the ENT consultant told me never to use it again.  I don't know who i can get to buy that off me

Yes Anne, like you I agree!  Seems to me if they cannot come up with a definitive diagnosis (although they get that wrong too!) for someone like me they just chuck the same old,treatment at you, VRT!  and the. WhenYou say it,s not helping, they just say you have to keep doing it 3 Times a day.  there are days I can,t do it when  My head is bad.  I tried ,to,do that once thinking   I should just ignore it and do them. Big  mistake, I felt awful,mine worse! and just went to bed!!  Imdon,t think going private would make much difference ever.m I even said to this new physio at the NeuromHopsital, I could probably deal with the dizziness part if I didn,t have to deal with the exhaustion and inability to function when I need do expend more energy than usual.  I meant to move from where I live and I know it won,t be possible yet as it would kill me physically  (no help, would all be done by me, except driving then van!). Just cleaning my flat screws me up,for two,days afterwards and they have to be 'Don,t do much days'!!n not heard of this hat you mention,,glad I didn,t go for that one!  Ha ha. You can keep it mate, probably bin it. Xx

Gillian, sorry to hear you can't move yet, it would be difficult to do all that on your own and probably make matters worse than if you just stay put probably.  It can't be easy living with this condition on your own, well done you!

Hi Paula. Thanks for that. Yes i think you deffinately right. I have trouble with steps, almost like i cant see where they are. Yes i also have had pains in my stomac but put that down to medication. The stress jumps in with the dizziness, it can be so frightning. I have fell a couple of times and as i live alone it makes me very anxious. I live down the East of england so Salford bit to far to see a specialist, Lol. Maybe i should stay with my sister who is not far from Salford. Well will see what comes of tomorrow, not holding any hopes there.I have had 6 bad weeeks of this, i was just beginning to feel bit better over christmas, then wallop. But tell myself there are people so seriously ill mine is just minor. Hope you keep well. X 

Hi Paula. Well had appt with ENT. Diagnised BPPV by Dr!! But wants me to have MRI scan plus see Neuro Dr. i mentioned could it be migraine related and he just ignored my question!!! i really think ENT know not alot about this awfull complaint. Hr tried to do this head movement thing but i was so dizzy and almost past out he left ii!!! I really think people on this forum know more than any of these Drs. Any help i get from here is more trust worthy Lol. Hope you and everyone else having a dizzy free day. X

Hi Carol

Ah yes that head twisty thing.  I had that and it was negative so I didnt have that.  So youre test was positive then ?  Its all to do with what happens to your eyes when he twists your neck I think.  Lets see what happens to you next.  Ive been prescribed new tablets gabapentin by neurologist but my headache neurologist prescribed metoprolol .  So got to contact hospital to see who wins !! I say they should settle it the harry hill way - FIGHT !!

Hi Paula. Well that bit sorted but he thinks I have other problem with the headaches and face and limb numbness, but as I said when I asked could it be MAV, he just looked at me with no answer! Also changed my GP today as last week when very unwell was told I live out of catchment area for home visit. Role on when I get to see this neurologist. Hopefully will get some joy then.So seems like its a fight for everything. X

He probably didnt know what it is.  Hence the referral to the neurologist.  See what the scan brings but it will prob be clear.  Which wont help at all.  But will be good news that its nothing serious.  Even though this is so debilitating and extremely serious to us without a life and struggling to go to work.  I wonder how long you will have to wait.  x  Must say headaches and face and limb numbness sounds like migraine. 

Yes that's why I mentioned the MAV. He has asked for MRI to be done before I see him in 8weeks time, but I don't hold my breath.

Hi Paula. good to that you have learnt a little from migraine clinic. Not so good about your social life etc.i too never knew anything like thise existed. I also have had to give up so much and social life gone, but i keep my fingers crossed that one morning i will wake up and its gone!!! i went to chiro practor with my neck plus the pain in my right arm, which i struggle to lift up any more, but didnt improve it. I do think if any neurologist got this im sure more research would have gone into it. wish you well. X

Hi Paula did they say there is anything that can help this corrugator muscle like exercises or something?  Today as far as these silent migraines are concerned, i could feel that my head felt dull etc., and my ears were a bit full.