I have a 7 year old daughter with lichen sclerosus

I have a daughter who is almost 7 and fortunately does not have LS, but since I have it myself I know what your daughter is going through and as a mom I sympathize with you as you try to find relief for your little girl.  Try using emu oil on her several times a day.  Teach her to apply it herself.  I read about it for at least a year before finally deciding to try it myself and I couldn't believe how much of a difference it made.  You have to be very liberal with it at first--apply in the morning, a couple of times throughout the day (particularly after using the bathroom), and at night right before bed.  It helps to build up elasticity in the skin and softens it.  Make sure she is always very clean down there.  An ice pack when she's having those pains may help, or you can always try a warm baking soda bath.  That brings me and many other sufferers a lot of relief but I know others on this forum have actually found it irritating, so unfortunately that particular recommendation is just trial and error.  Just don't overdo it on the baking soda--you don't need much.  I had to look up calpol and nurofen, but it looks like they are what we call acetaminophen and ibuprofen.  Try a naproxen if you can get a child's version.  That has always worked better on me than acetaminophen or ibuprofen.  Good luck, I hope you find relief for your little one!

I hope you find a solution that works.

Have you tried cutting out all sugar including natural ones? A lot of suffers find that improves things dramatically.

X

hi,

I'm so sorry to hear about your daughter. My daughter was diagnosed aged 7 too and she is now 9.  She didn't have a biopsy but the dermalogist diagosed LS and prescribed steoroid creams after several years of extreme itching/burning and redness and also constipation which I've read can also be a side affect. 

Unfortunately the steroid creams just exagerated the problem. so we decided to try and cure the cause not just the symptoms, but our GP would only suggest more steroid creams so we decided to look at other things.

I'm not saying this will work, it has definitely been a journey and everyone is different but bascially because LS is an auto immune disorder we looked at trying to boost her immune system through nutrition..

there are loads of reasons why your immune system can be low, so we saw a natropath which got us thinking about other things. ( eg, I think my daughter suffers from anxiety so stress can be a factor, also but all the good bacteria in her gut was gone, so we've been trying to boost this by a very healthy diet, low in gluten and sugar).

After about a year now of being gluten free and low sugar (very tricky with a 7 year old) we can avoid much of the LS symptoms.

If your daughter suffers from constipation, the best thing we have come across is a magnesium powder which we dissolve into water and juice. AS for the itching, we removed all soap from bath time and use either dead sea salts or a bath oil from Neils Yard with essential oils that help relieve the inflamation.

As for topical creams we have got some emu oil, which others on this forum have mentioned, but we use it rarely.

I recently read that  LS in girls will eventually go at puberty becasue right now their skin is so thin, and that with puberty the vulva skin will eventually thicken and therefore the condition will just go. I don't know how true this is, I would be very grateful to hear if any of this makes any sense, or helps you. 

But good luck, I hope you find some answers.

best