I have been lightheaded and ears ringing for one year now
Posted , 86 users are following.
I started having symptoms a year ago. I was driving and all of a sudden I thought I was having a stroke. My vision went blurry, my ears started ringing and I got so dizzy I had to pull off the road. To this day, it has not gone away and has gotten worse. I have pressure in my ears, like they are full and they both ring constantly. My vision has changed in my left eye and it's blurry and I have double vision in that eye. It is so bad that it causes me a lot of anxiety. I have made an emergency trip to the hospital because I thought I was dieing. I have had MRI, CT, ENT, ENG, VNG tests done. I have seen 18 doctors and the only thing they can tell me is that I have lost my balance sensation in one ear that is causing my dizziness and unstableness. My legs are weak and shake and I would not dare stand on a ladder right now. I have been thru Vestibular Therapy exercises and they did not help. I am miserable and it has affected my daily function in life and is causing me to lose time at my job. My family is feeling the replicutions of my sickness too. I just want to feel NORMAL again. My brain is not working right and I have the sensation of falling all the time in my head. It is such a weird feeling and I can't fall asleep unless I take a sleeping pill and even now, I am waking up like I am falling. The ENT doctor has not made a diagnosis but I am taking some medicine to try to dry up fluid in my ears. Its hard to walk in a busy store without feeling dizzy or unstable and my vision is so off I can't see. I have had thoughts of not wanting to live like this anymore, that is how awful this disease or whatever this is I have is. Does anyone else have these symptoms or a diagnosis or maybe some ideas on how I can control it?
Thank you
2 likes, 138 replies
atease brenda71967
Posted
mandejw atease
Posted
stevieboy64 brenda71967
Posted
wow.just reading all these responses has prompted me to wright down my short experience I'm having with what seems a similar experience.it is amazing how reading these post seem to make me feel a little easier.
i cut the story short anyway. I'm a male age 51. Reasonably fit and don't tend to look my age. That's what other people say. A few days ago I was driving and felt slight nausea and a sudden ringing in my ears followed by a dizzy spell. This scared me big time and I pulled over waited 10 minutes then carried on. I felt a bit shaky and had a dull headache. Two days later ( today 9/12/15) it happened again. Exactly the same.ive had constant ringing in my ears now for two days and feel lightheaded.at this moment now I'm lay down with a very mild headache but ringing in my ears. I feel this could be the start of what you guys have been going through.
Tbh I'm not as worried as I was after reading these posts but concerned on how it's gonna affect me. As from now I'm gonna cut the salt out of my diet but am a bit confused about the b12 situation. I recently started taking multivitamins everyday but not too sure if this is part of the problem. I did have ear infections that came and went and come back and recently have had a horrible cough that seems to be nearly gone.most symptoms described in the posts I have had in the past few days....the headaches the nausea the shaky unbalanced feeling the dizziness and lightheadednes.
Hope someone could give me a little advice maybe and would like to know how people are coping..
thanks. Steve
Dizzy_P brenda71967
Posted
Without boring you all, I have suffered in one way or another going back to childhood with most of these symptoms, I am now 46. I have joined this site to specifically reply to this post - because if anything I say can help any of you it's worth it.
I have had a skull fracture, neck injuries, a few back injuries etc... I suffer with pain, constant dizziness and true vertigo, headaches, visual disturbances, smell, taste anomalies, tinnitus, pressure in the ear and many other problems. I have had many tests - still see many specialists (but only once a year) and continue to suffer. With all the diagnoses I have had including BPPV, spinal stenosis, migraine - the list is exhaustive, I continue to be dizzy and they (med proff) are unable to explain why. I have even had the psych tests - is it all in his mind? Not one of them has concluded that I am overly anxious or stressed and, therefore, have no psych problems. I often wake with the room spinning sometimes 50+ times in the night - compounding the problems and exacerbating the balance problems. Your body (CNS) gets so messed up that even stomach cramps, gerd, diorreaha, etc., translate into feelings of increased dizziness.
I think many of you probably have overlapping disorders like me - some BPPV, some migraine, menieres, etc and a few possibly anxiety or depression, but I believe these are usually as a result of your problems - not causing them.
What I would say is, migraine (vertigious) can be constant, or so overlapping that each episode can run into the next and the next. This took me many, many years to discover. This, in itself, does not help you with what's causing them, but it can help with getting some treatment for the symptoms, the acceptance by a patient (with a proper diagnosis) understanding that it is a real disorder, and also knowing that there are other people who suffer like you.
I know it's hard, and I DO NOT SAY THIS LIGHTLY, as your GP or specialist might - having no idea what you are going through. But the best advice I have ever received came from an Argentinean Gaucho who didn't really understand the concept of feeling totally drunk and nauseous all the time and it being a problem... "then find something to do." Sounds impossible - I know - but really, when you think about it, what choice do any of us have but to get on with our lives, regardless of the problems?
If you can be helped, I hope you find it and receive it. If you can't - yet, then I hope you find the fortitude to get on with your lives, with two fingers firmly raised to the things that are causing your suffering and pain.
stevieboy64 Dizzy_P
Posted
I think what you have said is great advice.im on day 4 of this.nothing compared to you but for three days I've been worried sick with it.until I signed up to these discussions.im allready beginning to deal with it.ive just driven fours hours from London up north and decided to put earphones in and listen to some banging music.this might sound like madness but it actually took my mind off it and cimpletley cut out the anxiety in the situation that can easily bring it on..as I sit here now its all quiet apart from the buzzing in my wars but coping with it...your advice is great and the more you do the less you think about it.its tough but you got to be strong minded.im a novice but I'm overcoming the fear factor..thanking everyone who has ever posted on this discussion...
Steve
Dizzy_P stevieboy64
Posted
Thanks for your kind words. I guess, you are talking about having tinnitus and no other symptoms. What I would say, make sure it is a benign tinnitus - it probably is. Get checked, as it could be the sign of other things, like Meniere's or then again it could be something as simple as a two-week virus.
If it is noise damage to the inner ear hairs then playing extremely loud music could have caused it and could eventually make it worse - the doctor will be able to detect if the ringing is accompanied by hearing any loss at different pitches to determine this.
If you're having trouble sleeping because of it, mask it with another noise - not overpower it, just enough to take your mind off it and let you fall asleep. I use an old fan with tape on the back to increase the noise. but, you could use music (low) or sounds on a kindle like waves, cicadas etc. It's up to you.
Hopefully, it will pass in a couple of days, otherwise, you're stuck with it - like me. I have very different sounds in each ear - at very different pitches. I'm always asking my wife if something is whistling high-pitched in the house, or if someone's mowing the lawn, running a car or even if a plane has gone over at low altitude.
Just a quick note - if it's permanent, the specialist's will offer you a masker or two for your ears (like a small hearing aid) and expect you to use them for the next two years - blaring out white noise 24/7. I would never tell anybody not to bother or try out things. However, tinnitus replaced by 24/7 white noise - enough said. Ouch! my leg hurts - well we could operate on it for the next two years - slowly removing it, or you could keep the leg with the pain you've already got.
Good Luck!
stevieboy64 Dizzy_P
Posted
Dizzy_P stevieboy64
Posted
Yeah, I know what you mean, it's the same at hospitals and rehabilitations - mostly women, don't know why. I'm male by the way, I mentioned my wife in my previous reply - although, nowerdays, some women do have wives. I've read your previous post now, and it sounds to me that you have a virus - the cold, the ear infections etc BUT I AM NOT A DOCTOR. If it is, you should be fine within a couple of weeks.
It could also be migraine making you off balance, sick, headache. Migraine can do some very weird things - it doesn't always produce a banging head. For me it changes my taste, smell, makes me more off balance, stomach upsets, nausea, I get confused, can't find the right words, causes vision problems - constant shimmer in peripheral view, mad zig-zag auras, and I usually go partially blind in one eye, and then get a banging head - but not always. In many ways it mimics a stroke, but I'm still here, it usually wears off in a few days but another overlaps with it. I have between 15 and 27 pain migraines a month, but the other symptoms are all the time.
Good luck with yours.
stevieboy64 Dizzy_P
Posted
hollyandharrysm stevieboy64
Posted
laineyk brenda71967
Posted
I will try to keep this sjort since I plan on starting my own thread
I started having balance/dizzy issues back when I was in my teens right about the same time I started having "classic migraines" (w/aura)
through out the years (I am now 57 this week) I have had BBPV several times. along with the earth just shifted times.
The last several months it now has become relentless. I have seen all the same Drs you have and actually am still waiting on results of 48 hr EEG
after reading this book I am convinced its migraine!!! and Yes it can be daily
so I hope people will respond to my post too
jan46880 brenda71967
Posted
Scharlot28 brenda71967
Posted
DizzyLizzy68 brenda71967
Posted
Before that, going back 3yrs, I had started getting ringing in my left ear only. I also felt like I was having allergies on that side only. Watery eye, clogged nose, facial pain. Allergist actual pegged it as vestibular migraine and TMJ. Went to neurologist who told me all my symptoms were migraine- also had MRIs to rule out more serious causes. I would get various forms of dizziness: feeling like walking on a boat, actual vertigo, and rocking feelings. Sometimes no facial pressure or headache, just a stuffy nose and ear ringing. I was put on a migraine preventative and told to follow a Migraine diet. Believe me, I hate meds. I get every side effect in the book, as most with migraine do as we have very sensitive nervous systems. It was not fun starting Propranolol. i felt like a zombie, but managed to work my way up and power through. It took about a month to work, so don't quite the meds too fast. I tried nortryptaline first, but made me so imbalanced, I couldn't function. Zombie was better. Anyway, I was "cured" for about a year, except for the sudden hearing loss. The hearing loss was NOT associated with vertigo. I was then in the realm of possibe meniere's, but my neuro said it didn't behave like meniere's, and the migraine med had helped. Well, about two months ago, the propranolol stopped working for some reason. I still adhere to the migraine diet, which is very hard. I am due to start a new med at my next visit.
As I read these, i think most of you have migraine associated vertigo, vestibular migraine, otic migraine, basilar migraine, whatever you want to call it (many names for similar condition). I had a history of migraine, but was very sporadic. Once i hit perimenopause at 46, BAM! Change in pattern, they call it. The only thing that helps this is strict adherence to the migraine diet, and if that alone doesn't work, a preventative medicine. Type in MAV (migraine vertigo). Some neuros even think that Meniere's is a migraine variant. My temporary hearing loss could even be migraine variant. Crazy. My first dizziness attack I was slightly nauseous, and had diarrhea (sorry tmi). I thought I was having an allergic reaction or stroke. I almost went to emergency room, but typed in my symptoms and found it to be yet another manifestation of migraine.
I will say the only med that has helped keep me working and functional is Klonopin. It is like valium, but longer lasting. It can make you tired and out of it at first, which is why my dr. had me cut the smallest dose into quarters and work up. I take only 0.5mg a day, as it can be addictive. It gets a bad rap, but it is what they give some people for MAV and Menieres. FWIW, all of my symptoms are on the left side. I still have a light, baseline tinnitus in that ear, but when the "event" starts up, it goes louder and high pitched. I did have one attack on the other side, where my hearing reduced for abt. 20min, had tingling on my face, sensitive to noise, floaty feeling. A headache then followed in ~30min. It was a classic basilar migraine. Oh, and with these events, I get neck muscle pain into shoulder at times. Since the propranolol has stopped working, I am getting these attacks every other day, sometimes every day. Klonopin stops or reduces them. I think the next drug I am to start is Verapamil... it's one that supposed to be very good for MAV and is even used for Meniere's by drs. that suspect that meniere's might be migraine.... I will let you know how the verapamil goes if I get on it. I have also just started physical therapy for my jaw (which is misaligned on the left) and my neck.
mandejw brenda71967
Posted
DizzyLizzy68 mandejw
Posted
Have the drs diagnosed you with an actual condition? I don't know your gender or age, but do they think it's hormone related?
brenda71967 mandejw
Posted