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I have been lightheaded and ears ringing for one year now

Posted , 86 users are following.

brenda71967
brenda71967

I started having symptoms a year ago. I was driving and all of a sudden I thought I was having a stroke. My vision went blurry, my ears started ringing and I got so dizzy I had to pull off the road. To this day, it has not gone away and has gotten worse. I have pressure in my ears, like they are full and they both ring constantly. My vision has changed in my left eye and it's blurry and I have double vision in that eye. It is so bad that it causes me a lot of anxiety. I have made an emergency trip to the hospital because I thought I was dieing. I have had MRI, CT, ENT, ENG, VNG tests done. I have seen 18 doctors and the only thing they can tell me is that I have lost my balance sensation in one ear that is causing my dizziness and unstableness. My legs are weak and shake and I would not dare stand on a ladder right now. I have been thru Vestibular Therapy exercises and they did not help. I am miserable and it has affected my daily function in life and is causing me to lose time at my job. My family is feeling the replicutions of my sickness too. I just want to feel NORMAL again. My brain is not working right and I have the sensation of falling all the time in my head. It is such a weird feeling and I can't fall asleep unless I take a sleeping pill and even now, I am waking up like I am falling. The ENT doctor has not made a diagnosis but I am taking some medicine to try to dry up fluid in my ears. Its hard to walk in a busy store without feeling dizzy or unstable and my vision is so off I can't see. I have had thoughts of not wanting to live like this anymore, that is how awful this disease or whatever this is I have is. Does anyone else have these symptoms or a diagnosis or maybe some ideas on how I can control it? 

Thank you 

2 likes, 138 replies

138 Replies

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  • mohd37812
    mohd37812 brenda71967

    Posted

    Hi Brenda,

    My wife having same problem exist since 1 year. H r u now.

    Plz tel me wat how you cured yourself. It will help my wife life.

    Advance thanks

    Your reply will be really appreciable

  • ernie_91710
    ernie_91710 brenda71967

    Posted

    hi all--- i have some of these issues-- ear hissing and vertigo.  But i think it anxiety-- i just came off effexor cold turkey and started with brain zaps and vertigo--- and then got the hissing about 2 weeks ago.   

    i am going to try to not come back here--- why, because i find it creates lots of anxiety reading and relating to other's pain and challenges.  it immediately raises the level of ear ringing!  

    i was in full out panic about the constant ringing-- but found that acupuncture really reduced the ringing and vertigo problem -- and the anxiety has dissipated.  i highly recommend German Occular? (ear) acupuncture... try it every day or every second day for 2 weeks or so.  

    And pray-- my dad tells me that this is an opportunity to put faith in God and not ourselves.  i find it hard to use this Christian faith when in anxiety-- but that is what is what suffering is supposed to help us to learn... help us give up control and fear.  Fear is the enemy.

    Try to relax and treat the anxiety-- even people i know with real diagnosis behind the symptoms say that reducing the anxiety and ignoring the fear reduces symptoms by 50% or more. 

    God Bless you all-- my heart is troubled reading these stories... but i do know people who heal even after 5 years.  don't give up, accept where you are, surrender and keep positive.  And try the acupuncture-- from a PRO-- not someone doing it on the side.  Ear acupuncture especially.  My aunt was CURED with acupuncture from Fibermyalga after 4 years-- cured... there is no cure according to doctors... 

    Keep going-- and don't give into the fear and stress

  • shelly00113
    shelly00113 brenda71967

    Posted

    Have the same things going on with me for years now, I'm 51 and my life is a mess, I hardly go out anymore because I fell like I'll pass out, the noise and brightness I can't deal with, tried so many Dr's proscriptions nothing works when the ringing gets really really loud I spend those days in darkness, lost my job and life seems worthless most days, only time I get a little relief is when I lay on my back or left side turning while sleeping I can fell like I'm gonna fall so wake up, getting out of bed knowing how my day will be just taking a shower have to sit in the bathtub, trying to make dinner is a task for me just turning around in the kitchen or standing for too long I force myself until I can't take any more but then the panic/axi steps in n and takes over and my day is done, it's no way to live when you can't have fun with your family or roll around with my grandkids the saddest part of all, my family keeps me going, made a play area in my room so I can lay down and watch my precious grandbabies play. But most days😖

    • joanna47929
      joanna47929 shelly00113

      Posted

      Hi Shelly , honey ,i know what your dealing with ,,,I had the same thing .I thought I was dying . I WENT to UCLA neurologist Dr Baloh ,he has studied this disorder for 2o years . It has a name its called PPPD, look it up and read many sites on this disorder. GOOD news it does go away but very very slowly .The key is to get on zoloft and work with a dr to go up to at least 100 millagrams after 2 to 3 months you will see a big difference .I know have some good hours ,good days ,and of course bad too. The other key is to not give up and push thru it ,, get up stop laying down try to walk around the block Dr Baloh said excersize its hard but I had to do it ,still do , like I said i have good days bad days ,but im calm now no panic attacks anymore ,,,,your not alone
  • sab65033
    sab65033 brenda71967

    Posted

    Hi Brenda,

    Good morning to you,

    I know your post is for the past 4 years.

    Please I am asking you are you still suffering with the above symptoms.

    I am the same here, suffers in silence, I have all the symptoms, please let me know.

    I am getting crazy.

    Thanks

    Sab  

  • joanne75186
    joanne75186 brenda71967

    Posted

    I also have been suffering these horrible symptoms for 5 years now.

    Lots of test done but still sitting in bed today feeling dizzy, blurred vision and weak.

    • joanne75186
      joanne75186 biliarydyskines

      Posted

      Hello yes I do actually, I had my gall bladder removed in 2009.

      I have always thought the dizziness and tummy troubles go together.

      I have a small leak where the gall bladder used to be but I was told this wouldn't cause me my problems.

      X

  • beyza38945
    beyza38945 brenda71967

    Posted

    Hey I'm from Turkey and my English is not really good.Are you still dizzy? I have the same symptoms like you.Dizziness,out of balance ringing ears, shaking legs for one year.My symptoms starts last year with my Tmj issue.I have lock jaw and my jaw is clicking popping a lot.I went to a dentist she said to me that tmj is causing dizziness and ringing ears.Do you have a tmj issue?if you do please look at this https://youtu.be/_ekjRZCrzBM

    And this channel https://youtu.be/F5inNl7hia0 on youtube

    I can't go there because I'm living in turkey hope you will get better

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