I have been suffering with 'cardiac syndrome x' for the ...
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I have been suffering with 'cardiac syndrome x' for the las 7 years.
I was initially told there was nothing wrong with me at my local hospital, when i went there with chest pains and pains in my left arm. I innitially thought i was having a Heart Attack, with the severeness of pain i felt, but was told i could return home and run a marathon', thank god i didnt .
I knew there was somthing 'not right' within my body, so i sought private medical attention, which led to my first Angiogram...this showed, 'normal' corinary arteries. ..i was sent home, and told not to worry, but was not told exactly what was wrong with me..so..consequently continued to worry that i was having a heart ttack every time i had symptems..which were often.
I then asked my gp to refere me to a better hospital, as i refused to spend more on private medical care...which he did. i had yet another angiogram done, which again showed no blockages in the larger arteries..this time, the consultant said it 'could be' due to the smaller arteries being narrowed..but it was not caertain. i was advised by her to look up 'Angina ..without coronary artery blockage' on the 'internet' and told to get on with my life.
which i did..for a while, then things were not improving and i was on drugs for angina and collesterol. so my gp reffered me to yet another hospital..which was a specialist heart hospital..a long way from where i lived, but i didnt care. After seeing a consultant, (who, may i add was less 'pompas' as others i had seen) he sent me for lots of tests which i was not offered at other hospitals, and on getting the reports, and seeing my destress which my condition was causing me..he asked if i would allow him to do yet another Angiogram procedure , so he could define for himself exactly what was going on. At first, i was very apprehensive about having another Angio...as i had a bleed with the one previouse,,and the first one , i had a doctor, who couldnt get into my artery properly, which led to my having groin/leg pain for 6months after.
The consoltent aggreed he would do the angio himself, and have me stay overnight, as the journey home was so far, and i was concerned for another bleed.
I had this done. and he confirmed my main arteries were ok..and said not to let anyone else do another angio on me. he also confirmed it was indeed my smaller arteries at fault, and gave me another drug to go along with what i was already taking.
I cant say i feel any better, i dont, somtimes the pains are excrusiating, now with added back/stomache pains also. but this hospital has for the last two and a half years since the procedure, kept an eye on me every 6 months, instesd of just sending me home to go it alone, without support.
I am now looking for some kind of support group in or around the London area, as with this condition,i find it is beneficial to have as much support and understanding as you can get..i do know this, my condition is worse when i am under any sort of stress. so i also think relaxation groups with this condition in mind would be beneficial to me and fellow sufferers..I was in my 40's when i first had the symptoms of 'syndrome x' now i am in my 50's
I am open to all sorts of help and support anyone reading this could offer, as i am sure lots more fellow sufferers and there families would be. Thank you for taking time to read this. i hope it will be benefitial to others . Take care, and god bless x
[i:945737fdb2]This message was automatically imported from the original Patient Experience[/i:945737fdb2]
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my heart but still get angina,but some times I have discovered its not always a proper angina attack. But strong heart burn from acid reflux.If it
happens at rest in the evening after eating try taking Gavisgon to see if it relieves it, then if it helps see doctor and tell him so.As you might need acid reflux medicine.I am going to see stomach consultant next week.
sandy40
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notwell
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I’m on Lansoprazole, Amlodopine, Atanolol, Asprin, Simvestatin and GTN spay. Angiogram = normal, Stress test = 88% completed-normal, ECG’s = all normal.
Pre 3 months ago everything fairly stable but GP didn’t like me using GTN at least once per week because it is for emergency only. He increased Amlodopine from 5 to 10mg. This stopped the need for GTN but I started swelling in all different places, I’ll stand most things but puffy feet and ankles are a no, no. After 1 month he dropped me back down to 5mg. After two weeks everything started to go silly – pains now spreading out from centre to both armpits and seems like you to be almost constant although it like you fluctuates. GTN works within 4 min and lasts for about 1 hour. It is slowly getting worse, last night I had to take a second 15 min after the first and it started coming back after about 30 min, hence A&E.
I have an appointment on the 25th with the cardiac consultant because my GP wants to know why my toe nails keep going grey/blue but I am unsure what to do because I feel I need attention now. A&E Dr definitely said ‘I have read your notes and it is definitely not related to your heart’. The reason I am on this medication is that after having a BP of 170/110 with a pulse of 102 (ave 142/96 – 98 daily) and being given a 34% chance of heat attack within the next 10 years they attacked the risks.
I don’t know about you but I could sleep for team GB and I am realy fatigued and lethargic.
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notwell
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I have stopped taking Atenolol because this could have a detrimental effect on both and they have replaced it with Imdur starting me off on 30mg. So far the effect on my heart and swelling(s) is very good, first time I have seen my ankles in a while and for about 10 to 12 hours I do not feel any chest pain or discomfort (I didn’t realise how much I was having) BUT! the headaches are super bad, a couple of over the counter Asprin last for about an hour. The paperwork and reports on the internet say that these headaches are temporary and are a sign that the drug is working.
I asked about coming off amlodapine but the reply was no! because you will probably have a heart attack.
Happy days.
How goes it with you 2
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notwell
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