I have been suffering with 'cardiac syndrome x' for the ...

Posted , 4 users are following.

I have been suffering with 'cardiac syndrome x' for the las 7 years.

I was initially told there was nothing wrong with me at my local hospital, when i went there with chest pains and pains in my left arm. I innitially thought i was having a Heart Attack, with the severeness of pain i felt, but was told i could return home and run a marathon', thank god i didnt .

I knew there was somthing 'not right' within my body, so i sought private medical attention, which led to my first Angiogram...this showed, 'normal' corinary arteries. ..i was sent home, and told not to worry, but was not told exactly what was wrong with me..so..consequently continued to worry that i was having a heart ttack every time i had symptems..which were often.

I then asked my gp to refere me to a better hospital, as i refused to spend more on private medical care...which he did. i had yet another angiogram done, which again showed no blockages in the larger arteries..this time, the consultant said it 'could be' due to the smaller arteries being narrowed..but it was not caertain. i was advised by her to look up 'Angina ..without coronary artery blockage' on the 'internet' and told to get on with my life.

which i did..for a while, then things were not improving and i was on drugs for angina and collesterol. so my gp reffered me to yet another hospital..which was a specialist heart hospital..a long way from where i lived, but i didnt care. After seeing a consultant, (who, may i add was less 'pompas' as others i had seen) he sent me for lots of tests which i was not offered at other hospitals, and on getting the reports, and seeing my destress which my condition was causing me..he asked if i would allow him to do yet another Angiogram procedure , so he could define for himself exactly what was going on. At first, i was very apprehensive about having another Angio...as i had a bleed with the one previouse,,and the first one , i had a doctor, who couldnt get into my artery properly, which led to my having groin/leg pain for 6months after.

The consoltent aggreed he would do the angio himself, and have me stay overnight, as the journey home was so far, and i was concerned for another bleed.

I had this done. and he confirmed my main arteries were ok..and said not to let anyone else do another angio on me. he also confirmed it was indeed my smaller arteries at fault, and gave me another drug to go along with what i was already taking.

I cant say i feel any better, i dont, somtimes the pains are excrusiating, now with added back/stomache pains also. but this hospital has for the last two and a half years since the procedure, kept an eye on me every 6 months, instesd of just sending me home to go it alone, without support.

I am now looking for some kind of support group in or around the London area, as with this condition,i find it is beneficial to have as much support and understanding as you can get..i do know this, my condition is worse when i am under any sort of stress. so i also think relaxation groups with this condition in mind would be beneficial to me and fellow sufferers..I was in my 40's when i first had the symptoms of 'syndrome x' now i am in my 50's

I am open to all sorts of help and support anyone reading this could offer, as i am sure lots more fellow sufferers and there families would be. Thank you for taking time to read this. i hope it will be benefitial to others . Take care, and god bless x

[i:945737fdb2]This message was automatically imported from the original Patient Experience[/i:945737fdb2]

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  • Posted

    I thought that I would keep things up to date because it may help someone now or in the future.

    I have been on Imdur 30mg for 11 days and the horrendous headaches are now starting to fade. I take it in the morning and everything is fine up until lunchtime and then the headaches start coming on. I have found it impossible to drive between 12 noon and about 6pm as my concentration and vision are also affected. Between 8 and 9pm the Imdur wears off and I can feel in my chest again, not having any for about 12 hours means that you notice even the slightest twinge. Twice I have taken one spray of GTN during the day and three times as Imdur as wore off. I also find it even more difficult to get to sleep, which in part is because when it as worn off I feel bright and alert – something that I have not felt in a few years.

    Today because the headache was light I tried to drive at about 2.30pm but quickly turned back because of loss of focus (eyes that is not type of car) so I am hoping that this will go away too!

  • Posted

    How are you getting on ??? Guess who isn't doing too well ??? You guessed it meeE !!! :D Who's getting the killer armpit cramps ??? You guessed it meeE !!! Jeesh they're getting pretty terrible, this morning it started in my left pit and I could feel it creeping / expanding to along my whole arm rolleyes cheesygrin I pumped my remaining dribbles of spray and it went thank god. Hmm at least I'll have something to talk to the Doctor about next time (if) I see them smile
  • Posted

    Well, where do I start, I am now on 60mg Imdur and 2mg perindopril (plus the other stuff). GP panic stations they thought I was having a HA – Go directly to A&E do not pass go etc etc. In there defence I was 200/110 with a 115 pulse and getting a peculiar tumbling or dropping heart sensation.

    By the time I got to A&E, like always every thing had started to calm down, Having that diagnosis of syndrome X helped because I was no longer seen as a fraud. They said because they knew what it was they would not admit me but would not allow me home until my BP was lower, when I reached 140/90 (something like that) they waved me good bye.

    I don’t know about you but to be honest this is getting on my nerves!

  • Posted

    Oh dear your Heart was all over the place,, I bet that ECG would made interesting viewing smile I'd say that you must take things really easy but I doubt it makes much difference to your condition, I know that the more relaxed I get is when it really starts making me double take and think hmm that can't be right neutral It looks like I've managed just over 2 months of feeling relatively OK with this Angioplasty, something was really wrong this morning and I fear somethings gone pop, I dread to think what would have happened without the spray as it was genuine agony sad Well I've gone out and bought myself a big bottle of spray, I couldn't get the metal bottled stuff so I'm stuck with crap Nitrolingual but hey it's better than nothing and I can always take loads cheesygrin

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