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I have bronchiectasis and was diagnosed approx. 35 years ago.

Posted , 12 users are following.

stellaclark
stellaclark

When I went to the Chest Clinic some weeks ago I had a routine chest x-ray.

It came back showing some white spots on my lungs. 

I was then sent for a CT scan, and worried whilst waiting for the results.

The Radiologists findings were, that a round new abnormality was found in my left lung. He thinks this is most likely an area of bronchiectasis filled with mucus.

I have to go back to the clinic in six weeks for another x-ray.

I would be interested to hear from anyone who has experienced anything similar.

 

0 likes, 67 replies

67 Replies

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  • lesley05714
    lesley05714 stellaclark

    Posted

    wow!...Australia, how wonderful...perhaps the blue mountains would have clean air. I live near Manchester in a suburban area, on the hill side...I really think the hills help with exercise. My husband and I have also had a holiday in Wales which was good.I have had a rough time, but this summer has been so good and I feel so well.

    Blessings,

    Lesley

    • stellaclark
      stellaclark lesley05714

      Posted

      Hi Lesley, not sure what is happening here as your reply to me about Australia is meant to be for adawoolsey.  I live in Greater Manchester too, but no hills around here.

      Regards

      Stella

       

    • supercough
      supercough stellaclark

      Posted

      I live in rural Argyllshire in Scotland where the air is as clear as can be but I still have my problems but of course, I spent much of my life in the big city amongst the fumes and dust so I suppose I shouldn't be surprised that my lungs have got worse.
  • lesley05714
    lesley05714 stellaclark

    Posted

    hi stella,

    we can all read everything, I am sure it is irrelevent, but sorry if I didn't put your name on the note. I know we all receive all the notes if we have visited the site.

    All the best

    Lesley

  • supercough
    supercough stellaclark

    Posted

    Yes Stella, I have had this happen many times and by now have become used to it. There are many way in which it can be dealt with such as major antibiotics, intense physio and washout by flexible bronchoscope. I wouldn't be surprised if you are offered a bronchoscopy to take a closer look and to take samples of the gunk. It is then that it can be suctioned out and the area washed free of stuff. A bronchoscopy can be a daunting prospect but trust me, I have dozens and they are quite simple and not in the least painful. You will be given a sedative and some painkiller via an I/V which can be topped up as required. Your nose and throat will be sprayed with a local anaesthetic. You wil feel little or nothing and most people drift off into a jolly twilight world and remember little afterwords. I tend to refuse the I/V drug because I want to be fully aware so that I can see the TV monitor. You seem to be in good hands so I would put my trust in them. Good luck!
    • stellaclark
      stellaclark supercough

      Posted

      Hi, I am feeling alot better now. I last had a bronchoscopy about 10 years ago. 

      I am due to go to the Chest Clinic on the 12th August, will let you know the out-come.

      Thanks for your reply and helpful comments.

  • hayleyleela
    hayleyleela stellaclark

    Posted

    hi my bf has had a cough for ages now and a tight chest,he keeps fit jogs 3 times a week and does boxing hes 42 and alot fitter than me im 33,he smokes 20 yrs ago but only for 5 years,but hes trained all his life,we went to the docs last year and she thought he had asthma,and gave him a pump but that didnt really do anything so we went back to the docs last week,he checked is oxygen in hi blood an everything was fine but he sent him for a chest xray as he sometime coughs a little bit of blood in his phleym but the doc said this could be where hes coughing alot,he mainly coughs in the mornings,never during the night,anyway  they rang him last week to say a ct scans been arranged for him for this tues then he sees the consultant to get the results,im worried sick that theyve found something and to why hes got to have it,im really dreading tues i cant think of anything else its so horrible havin to wait till tues,i ope everything ok with you  have you had your results now
    • lesley05714
      lesley05714 hayleyleela

      Posted

      Hi Hayley,

      Don't worry, I had an enourmous lung bleed after being treated for indigestion for a very bad productive cough. After a CT scan it was such a relief to finally have a diagnosis, it was Bronchiectasis and antibiotics,have sorted it out. Not a cure, but managable.

      Let me know how you get on, the blood is a sign of a lung infection.

      Blessings,

      Lesley

    • hayleyleela
      hayleyleela lesley05714

      Posted

      hi lesley thanks for getting back to me,im just worrying that theyve found something as they made him an apointment for a week after,and why does he have to see the consultant,i think im just getting really worried over nothing,its just i keep looking on the internet and cancer keeps coming up stressing me out,i dont think hed be able to train like he does if it was something serious,why do they do ct scans?is it because theyve seen something in the xray or just to look further,im glad yours turned out good im hopin ours will to
    • lesley05714
      lesley05714 hayleyleela

      Posted

      Hi Hayley,

      The CT scan will detect bronchiectasis if it is there, no doubt nothing showed up on the xray. My xray was clear, but the later CT scan showed a very different picture. In bronchiectasis, one or more of the bronchi are abnormally widened. This means more mucus than usual gathers there and this will only show up on a CT scan.

      If it is bronchIectasis it is necessary to have a specialist to deal with this as they have specialist knowledge in the subject.

      I am sure that everything will be fine and I look forward to hearing from you with a positive result.

      All my prayers and blessings for you and your boyfriend,

      Lesley

    • hayleyleela
      hayleyleela lesley05714

      Posted

      ah thanks alot youve made me feel alot better ive been soo anxious this week imagining the worst,i thought that they only sent you for a ct scan because theyve seen something on the xray,they didnt tell him why he had to go the lady just said shes not sure it could be just to investigate more,im hoping his xray was clear an thats why they want to look further as soon as i find out tues ill get back to you,im not sure if hel get the result tues?but he does have to see the consultant tues at 3 so maybe theyl tell him,they wanted him to go back fri to see the consultant but he managed to get an ap the same day as he cant get time off from work,thanks so much for writing back youve put me at ease a bit now hahaha,its all ive been thinking about xx
    • hayleyleela
      hayleyleela

      Posted

      does it sound like bronchiectisis to you?he coughs alot in the mornings not in the night though it seems to be when he gets up,hes always clearing his throat an he said he feels wheezy and out of breathe sometimes,but he jogs ok 3 times a week and keeps fit  and doesnt smoke he said it feels like hes go phleym on his chest that he needs to clear xx
    • lesley05714
      lesley05714 hayleyleela

      Posted

      ...it does dound like bronchiectisis, in which case it can be managed although not cured. I have never smoked, but it sounds similar to mine...these specialists know all about it and are very clever...it will all be sorted.

      Blessings, Lesley

    • hayleyleela
      hayleyleela lesley05714

      Posted

      hopefully wel get it all sorted tues ive started to stress again now,im wondering why he has to see the consultant after?or do you usually see the consultant after a ct scan?he was meant to go back to see the consultant 2 days after the scan but wev managed to get one the same day but later on in the afternoon
    • lesley05714
      lesley05714 hayleyleela

      Posted

      That is the procedure, the consultant is in charge of the treatment and he gives any results; or it could be one of his team who works with the consultant that gives the results. It sounds fine to me...been there, done it, They are so good at the hospital and very thoughtful. If you have any questions, ask the consultant while you are there and ask to see the scan. They can show you on the computer. It will be ok...I look forward to hearing how you get on.

      Blessings,

      Lesley

       

    • hayleyleela
      hayleyleela lesley05714

      Posted

      oh right,i think im just getting worried as my bf has never had to do anything like this nor hav i so im just imagining the worst thinking theyre doing it because its something bad,at least tues is nearly here and hopefully my mind will be put at rest,its so horrilbe waiting as you know,im going to try not to think about it till tues haha i will be in touch tues to let you know thanks again hayley x
    • hayleyleela
      hayleyleela

      Posted

      i think if they had seen something bad in the xray they would have told him by now
    • lesley05714
      lesley05714 hayleyleela

      Posted

      ...you are correct, they would have told you. I am sure that they are giving a CT scan because they couldn't find anything with the Xray. They are so good and check everything, trust the hospital, ...
    • hayleyleela
      hayleyleela

      Posted

      its good to talk to someone who has been there

       

    • hayleyleela
      hayleyleela

      Posted

      hi just to let you know we went for the ct scan yesterday and you was right they didnt see anything on the chest xray!i was very anxious all day and it was horrible going back for the results but the consultant couldnt see anything wrong she seems to think its asthma and has given him a little machine he has to blow in morn an night an fill a chart in and then he has to go back in nov,if it turns out it isnt asthma then he has to have a camera down his throat which doesnt sound very nice but she said its not cancer or emphasemya so im really happy,and just wanted to say thanks for your help x
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