I have chronic fatigue syndrome and many other problems anybody else?
Posted , 8 users are following.
I am a 22year old girl who try's to lead a normal life but my illness gets in the way, I can't do a lot of things like a lot of other 22 year olds do...
just wondered if anybody else out there has the same conditions as me as haven't met any body as yet and wanted to know how they deal with day to day life...
thanks for ready
Danielle
0 likes, 33 replies
tiki92 danielle94752
Posted
Yes i know what you mean all too well. Im 24 years old been sick with CFS for 6 years. Its been torturous I'm tired all the time and in pain all the time no energy to do anything normal or if I do do something I relaspe and then I'm stuck in bed regretting I even did anything. Its sad we shouldn't have to live like this at a young age because no one understands what chronic fatigue syndrome is like unless they have it. I don't get to hang out with friends and sometimes I choose not to since they don't understand how bad I feel I would hate to keep saying I'm tired or I can't do that i have no energy so I just avoid social settings all together.
danielle94752 tiki92
Posted
That's exactly how I feel!!
Constantly tired, want to do something but in my head I'm thinking about the consequences if I get tired how can I explain the situation and want to go home after half an hour! I'm really glad I'm not the only one feeling this! But you are right a lot more needs to be done about this and explained a bit more to people just because we "look fine" people think we are fine but we really aren't! And that's what gets me down more!!
starhel danielle94752
Posted
I have had M.E for three years and I am 55 but only diagnosed this year . I gave up work last may as I had been struggling.
Pacing helps me, resting before and after activities but I cant do anything like I used to as I was a busy person rushing here and there, it can be frustrating and have just cancelled a weekend away that I had planned last year.
Try doing things you love but be selective and kind to yourself
danielle94752 starhel
Posted
Thankyou for your help!
Yes I had to stopped working last year as I couldn't cope reduced hours to 2hours a day and still couldn't cope!
I've started to love my condition a little bit more than hate it! Just so hard sometimes trying to do things that I wished I could but can't!
tiki92 danielle94752
Posted
danielle94752 tiki92
Posted
Maybe one day we have answers!
The only way to describe this is having really bad flu!
Hopefully things will get better
Patrickgeoffrey danielle94752
Posted
danielle94752 Patrickgeoffrey
Posted
Must be so awful for you!
How do cope with day to day life?
GeorgiaS danielle94752
Posted
I've had ME for over 10 years and I think it's a matter of finding your own level of how much you can and can't do. If you overdo it then next time don't do quite as much.
Don't fight sleep in the day time. I've heard people saying try not to fall asleep in the day time so you'll sleep better at night but if you fight it it just makes you worse.
I keep saying this but it's such a help to me; Valerian, a herb, for a good night's sleep.
danielle94752 GeorgiaS
Posted
Yes I agree! The main key is not to over do it!
People say not to sleep all the time cause you won't sleep at night but I will sleep in the afternoon but will still sleep at night but never ever feel refreshed!
GeorgiaS danielle94752
Posted
Me too Danielle, I feel rubbish without my afternoon sleep and I still usually sleep all night. Sometimes I've been known to sleep for 19 hours in a day and I just think well I must've really needed it.
By the way I don't call it my afternoon nap because it's a full on, probably snoring, 2 hour proper sleep.
GeorgiaS danielle94752
Posted
danielle94752 GeorgiaS
Posted
Yes I need my afternoon nap aswel if I don't get that either I am so misrerable and I can't think 💭 straight either!
Ooo wow that's a long time, the best thing I did was buy a dog! If I didn't have him I would be in the bed 24/7!
GeorgiaS danielle94752
Posted
Lol I should've said it wasn't 19 hours straight through! I woke up to go to the loo and eat and things.
I thought about getting a pet but I just don't have the energy for one. Even cleaning a fish tank would do me in!
danielle94752 GeorgiaS
Posted
Yah sometimes the only thing that wakes me up is to go to the loo haha!!
See the dog was hard work but he just sleeps when I sleep now which is good, I love having him! I can talk to him( I know quite sad) but he doesn't answer back and listens and sometimes he's the only one there for me!!
Most of the time he is hard work but my neighbors have him when I'm really in a bad way which is a bonus!
GeorgiaS danielle94752
Posted
Lol I wouldn't move much if I didn't have to go to the loo and eat!
Pets are supposed to be very therapeutic; studies have been done on it. I'm working very hard on getting well; some of my symptoms have improved and I think that when I'm
GeorgiaS
Posted
strong enough to keep my bungalow clean and tidy that might be the time to get a pet.
I accidently touched the touch pad and it got posted before I'd finished.
danielle94752 GeorgiaS
Posted
Well only you can do what's best for you and taking things Ines step at a time even if there any steps well all get there eventually, nothing is a race! I know it's hard for us but what we have to remember is we are still here and that's the main thing! We are strong in our own way 💪
GeorgiaS danielle94752
Posted
Very true!
In a way I think it's a strength to accept our limitations and to not push ourselves too hard, to be patient with our progress and to appreciate what we do have.
I've found that I can still be happy through ME because it's our attitude, not our circumstances that dictate whether we can be happy.
danielle94752 GeorgiaS
Posted
That's very very true!
And speaking to others I think helps a lot aswel!
Very wise words 😊
GeorgiaS danielle94752
Posted
That's very true! Wise yourself
This little part of your thread has turned into a mutual appreciation society.