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I have had M.E for over 20 years .

Posted , 7 users are following.

tina_52093
tina_52093

On the days i find more difficult , I find am short breath . Does any one else experience this .

1 like, 21 replies

21 Replies

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  • sueliz57
    sueliz57 tina_52093

    Posted

    Yes Tina I do when I'm really tired and the adrenaline kicks in to make me start the day. Then the adrenaline makes me over-breathe, breathing through my upper chest instead of taking deep breaths into my lower diaphragm, the result is that I can't catch my breath and cough, cough, cough. I was treated for bad asthma for 10 years before it was correctly diagnosed. Hope this helps.

    SueLiz

  • Beverley_01
    Beverley_01 tina_52093

    Posted

    Hi Tina,

    I do very occasionally get this but, my friend who also has cfs/me gets it quite often. They can get it accompanied by chest pains too, not sure if you get that also?

    B

    • tina_52093
      tina_52093 Beverley_01

      Posted

      Thank you for your reply . Yes I have started to experience that In the last few months. Not often . How long have you had it Beverly ? .
    • Beverley_01
      Beverley_01 tina_52093

      Posted

      hi Tina,

      I've had cfs/me just over 3 years. My friend just over 2.

      B

    • tina_52093
      tina_52093 Beverley_01

      Posted

      Thank you for your reply . What level do you and your friend have it ?.

      T

    • Beverley_01
      Beverley_01

      Posted

      Hi Tina,

      Moderate to severe for us both. We got it very differently-myself a car accident and my friend post virally. Over Christmas has been quite bad as we both seemed ill (can be so hard to tell with this) having family around and there was flooding here which meant feeling awful and alot of needing to rest. Am resting at present. How are you with it? do you have supportive family and friends?

      B

    • tina_52093
      tina_52093 Beverley_01

      Posted

      Thanks for your reply . I sympathise for both both of you and

      with others with this condition.

      I have struggled for several weeks again !! now on the daily basis

      hard to face another day.I do go to bed early even just to rest. I

      say to my self tom is anouther day it will be different. ....

      Everything thing is an effort !!. Even trying to

      get up and dressed & put make up on !!! .

      Am sure other people must think this, am tired of feeling tired...

      Even the smallest chores are frustrating and take so long to do..

      Am not suffering with fibromaylagia, very occasionally. I

      consider my self very lucky. The headaches can last a few days at a time some times. I find talking for 15-20- minutes gives me a

      a sore throat for hours after & feel more tired , and nausea.

      My husband and son are very good and very understanding. If I

      can't cook they are fine.

      I have tried going for a walk every few days , some times I

      manage it & go for a coffee in town which is not to far.

      I could go on , but won't. You all know how it is. Every one has erent levels of it. I count my self very lucky to some people. Sorry my message is all over the place . Can't think clearly ....has

      taken me ages.

      T

  • jackie00198
    jackie00198 tina_52093

    Posted

    Oh, yeah. It's often called "air hunger." I even went to a cardiologist and wore a heart monitor. No heart problems. Just another lousy symptom of ME/CFS.
    • tina_52093
      tina_52093 jackie00198

      Posted

      Thank you Jackie . How have you coped with it all these years and are you on Antidepressants ?. I am one of the lucky ones not been confined in bed for weeks or months but still find it disabling most of the time. On a good days which is not often a any more . I potter about and try and have normal life , see people for coffee but i find talking to people tires me out & i get a sore throat . Very often I don't answer the phone when am having bad week. I am a positive person when I feel a bit human !! .

      Tina

    • jackie00198
      jackie00198 tina_52093

      Posted

      No. I'm not on antidepressants. I cope by practicing meditation every day. I do my best to stay in the moment and not think about "what ifs" or "if onlys." That's a path to true misery. I do have a severe case and am housebound. I'm pretty much totally isolated though I am married. I have a lot of interests that I can pursue even with such a sedentary lifestyle. I have to admit I'm totally disgusted with the medical profession. They don't understand this illness so rather than pursuing research they say the illness doesn't exist. That's the height of arrogance.
    • tina_52093
      tina_52093 jackie00198

      Posted

      Your are an amazing lady and very encouraging. I totally

      agree with you on the medical side things. Tina

    • lynne69494
      lynne69494 tina_52093

      Posted

      lve had a bad chest and rhinitus asthma for many years, but have found the last couple of years from start of other symptoms its got worse, l do get out to town 2-3times a week, but find lve to stop and sit every 5oyds or so rest for l0min. bit of an endurance at times, l also think pollution increasing adding to it,  but trying to stop or delay being housebound, as jackie says that can make for being more isolated, more so if single. My funny little dog makes me laugh and motivated along with phone and computer.  l so agree with  above comments about  some meds response, some quite flip or dismissive, denial. 
    • tina_52093
      tina_52093 lynne69494

      Posted

      Thank you for your reply. I am very lucky I don't suffer in that

      way.

      keep going and am glad your dog makes you laugh. As this illnescan be miserable times how ever much you try to get on with.

  • Tidsel
    Tidsel tina_52093

    Posted

    yes, I too get short of breath in times of stress.
  • artistmike
    artistmike tina_52093

    Posted

    I'm another one with breathlessness problems. I've had ME for about sixteen years too and developed this as the ME went on. In fact my doctor diagnosed Asthma eventually and put me on puffers for it and my breathing has improved immensley as a result but I am always very aware of my breathing especuially when the MEis bad...
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