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I have had pseudomonas for 3 months

Posted , 5 users are following.

joy23863
joy23863

i have had bronchiectasis for 61 years and for the last few months I have had pseudomonas which the doctor has been unable to clear up, I have had two lots of IV antibiotics and I do physiotherapy 3 times daily, has any one else had this problem, I don't have a tempreture. 

0 likes, 22 replies

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  • jojo40
    jojo40 joy23863

    Posted

    Hi joy. Yes I am going throw same as you since October I was in ho then on iv for 10 days since iv been home had 3 more lots of antibiotics and none seem to be working I do my draning 3 or 4 times a day with not much success doctor told me if i have an infection then i won't bring much sputum up i don't know if this is right but like you this is really getting me down now don't know what to do anymore i hope you feel better soon it's horrible having to live like this
  • joy23863
    joy23863

    Posted

    I,m sorry to hear your going through this as well, I find I have either a lot of sputum or non at all, it's a real problem and I don't know if I should be concerned about the pseudomonas or not, is it part of having bronchiectasis my doctor says it is, I found this worrying especially as nothing clears it up
    • jojo40
      jojo40 joy23863

      Posted

      i have only had bronchiectasis since october when i had a ct scan before that i had a year and a half chest infections but never was sent to the hospital until they saw it on the cat scan sometimes i don't think some doctors are up to this bronchiectasisalso like i said since i've been home from hospital not even 3 months yet the doctor has put me on three different lots and antibiotics again i and i'm still on them now not got to go back to the hospital until the end of january i am very confused i'm worried about this condition not sure like you want to do i also went to my doctors 3 weeks ago complaining of pain in my knee he also told me this was due to having bronchiectasis and that shocked me because i wouldn't have thought it had anything to do with that but you just have to believe your doctor but somehow the only person i believe is the hospital consultant and in the meantime i just feel im on my own to get on with it i find it very hard to clear my lung but have been told when you have an infection it won't come out how true that is i don't know that's amthat condition you have now on top of bronchiectasis is that like ppneumonia

      Iv had to stsy away from my family this christmas the cause of children having colds this condition changes your whole life you have had it for such a long time however have you coped do you like in uk? 

    • joy23863
      joy23863 jojo40

      Posted

      Hi jojo.

      what a shock for you to find you have bronchiectasis, mine was diagnosed when I was 7 so had to live with this for a long time, i had a lobectomy on my right lung at 7. It's not easy to come to terms with when you get older I,m told and depression does unfortunately come with the illness and the amount of antibiotics you have to take, aches and pains are again a side effect, I have club shaped nails as well. You could wear a mask when your shopping to help prevent getting more infections and when you visit friends and family. You will feel better when the warmer weather comes, try to get some exercise on a regular basis and do your postural draing 2/3 times a day, it's helps to stop the infection getting worse. I hope you feel better soon.

    • jojo40
      jojo40 joy23863

      Posted

      Thank you so much for your support.  I will try to be positive ryan get on with my life i have diabetes aswell so that don't really  help also had depression and insomnia  20 years its so nice to have other who kmow how you feel I really hope you feel better soon. Can you just tell me when you bring up mucus do you do the deep breathing and the huffing or the acapella
    • joy23863
      joy23863 jojo40

      Posted

      I do it all jojo, anything that helps to bring up the mucky stuff, I find taking a breath holding it for a few seconds breath out then take a deeper one, do this three times then huff,I'm was shown how to do this when I was in hospital and find it helps a lot.

      take care every one, look after yourselfs because no one can do it for you. Lots of love 

    • jojo40
      jojo40 joy23863

      Posted

      Thank for that.  Yes I do thst find it to work better than the acapella you take care and keep in touch i would love that bye for now xx
  • Operalyn
    Operalyn joy23863

    Posted

    Pseudomonas is a right pain. I have been infected with it for years. The only antibiotic that works for me is azithromycin but it's only temporary - I never get rid of it completely.  I just plod on, living my life, doing my physio,  using my steroid puffers to keep the tubes clear, taking the antibiotics as a last resort.  Bronchiectasis does make your joints ache - in fact when my knees ache I know I have an infection coming.  I have had this thing 65 years - you just have to accept it. 

    When I am well I do everything I can to live a normal life but when you're ill you must rest and give in to it and you'll feel better all the quicker.  

    Bronchiectasis is nothing to be scared of. It's just lung damage. 

    I don't have it as badly as some but when I was young there was less help and was ill all the time - I chose the path of ignoring it and just living best I can.

    Good luck to all of you. Depression can be part of this too - get help! 

  • joy23863
    joy23863

    Posted

    Hi operalyn.

    the joint pains are unfortunately part of the bronchiectasis I also have club shape nails again it's part of the illness. I was diagnosed with diverticulitis a few years ago wi

    hich was put down to the antibiotics I have had over the years. Bronchiectasis I can live with until it gets out of control, I lead a normal life when I can and enjoy life as much as possible, keeping positive is important.

    i wish everyone with a serious health condition like this a happy and healthy new year.

  • Operalyn
    Operalyn joy23863

    Posted

    What a good post joy. I can cope most of the time too - but some days.....well you know about those days.

    Good luck to all of us and as healthy a new year as we can manage. I've been better since taking montelukast which is an asthma drug which acts on allergies. I have lots of allergies so it really helps me. Especially my breathing.  Not for everyone unfortunately.  My specialist is baffled as to why it helps me so much. I don't care why - I am.just grateful. 

    • jojo40
      jojo40 Operalyn

      Posted

      and a very very healthy new year to you too and all the best to all of us with this disease i hope the new year can bring us all to feel and keep as well as we can. Happy new year and keep in touch love to hear from all of you that's what keeps me going
    • Operalyn
      Operalyn jojo40

      Posted

      Have a hug jojo - the winter is the worst. When spring comes may we all feel better than we do now.
    • jojo40
      jojo40 Operalyn

      Posted

      Thanks for that. At moment cant do much my rheumatoid arthritis in my knee is really giving me bad pain cant bear  any weight on it at all the last  fewdays hopefully when that calm down a bit i'll be over to exercise more happy new year to everybody and hope just like you that we do feel better and keep on going happy new year keep in touchxx
  • mary08543
    mary08543 joy23863

    Posted

    HI Joy, hope you get some relief soon. Interesting info regarding knee pain because I've been experiencing it lately and never thought it was related to Bronci.  I was diagnosed just over 1 year ago at 55. I also have asthma and many allergies. Take SIngular as well. Use a "The Vest" Airway Clearance System machine twice daily for clearing lungs. Expensive, but ins. covered most of it.  Have had 3 sinus infections since Aug. but no lung infect. See ENT regularly for sinus as catching it there I'm trying to stop from going to lungs. Frustrating disease that is unique to everyone, but staying positive and walking as much as possible with daily drainage is key. Good luck all, hang in there, its almost a New Year !

     

    • jojo40
      jojo40 mary08543

      Posted

      Hi mary where did you buy your machine from and how much was . Can you explan how it works because I would pay anythink to this stuf up.
    • mary08543
      mary08543 jojo40

      Posted

      My pulmonologist ordered if for me. It's like $16000 so you need ins to cover most of it. It's portable and heavy. Comes in it's own suitcase. It has a vest with tubes that plug into machine and vest inflates then shakes you up for 29 min. Works great 
    • jojo40
      jojo40 mary08543

      Posted

      Can you tell me the name of it so I can look on internet im in uk thanks 
    • mary08543
      mary08543 jojo40

      Posted

      It is by Hill-Rom  The Vest Model 105. Airway clearance machine   Used for CF too evidently   Good luck 
    • jojo40
      jojo40 mary08543

      Posted

      Thanks for that mary I will let you know how I get on .take care x
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