I have had vestibular neuritis for 6 months
Posted , 12 users are following.
Hi people, new to this site but upon looking at it I have already found great comfort knowing that I am not alone when for so long I felt like I was. I am 19 years old and have had VN for around 6 months now leaving me with this almost constant feeling of rockiness and it has been the worst 6 months of my life. My symptons are almost identical to many people on this forum including the anxiety issues. For about 2 months I have been doing VRT exercises which seemed to help and lead me to believe I was on the mend but I am still having bad days and I still feel like I'm never going to feel normal again. Being 19 i feel i am missing out on alot such as going out with my friends. I am now able to do this regulary however when out I am filled with jealousy of my friends who are able to move about with no worries not that I would ever wish this upon anyone. I am gaining weight as i am too scared to exercise in fear i will make it worse. My friends and family have noticed that I am not the same boy anymore. Vertigo is something that is constantly on my mind and is a constant source of unhappiness. I wish you all well and a full recovery! Thanks everyone for sharing as it's not an easy thing to talk about.
0 likes, 38 replies
Waffalobill kieran03144
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I know the feeling to well. I to don't go out. Used to be a outdoors person. Long walks in the woods every day cause I work nights. Now my life is work and home. Have been home 2 weeks with this latest bout. Your definitely not alone. Alot of people have it. But cause there's not a lot they can do about it. It's not talked about much in main stream media. Drugs don't help. PT helps some but is a slow process and the wrong therapist can make it way worse. I am now waiting on the results of some tests. Another round of PT. Hearing tests. And probably a different diagnosis as to what is going on. Fall used to be my favorite time of year. Love the cooler weather. Now it's just that time of year when the world spins and I fight to stay on my feet.
kieran03144 Waffalobill
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Its a horrible thing that i wouldnt wish on my worst enemy but do let me know on what you're results are if you wouldnt mind, thanks for the quick reply!
Waffalobill kieran03144
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Waffalobill kieran03144
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kieran03144 Waffalobill
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Great, i personally found the key to vrt was to just keep at it, i was even able to go on holiday to Ibiza with my mates because of it, my vrt specialist told me that a change in environment can make it worse which it did but only for a couple days, after that i felt almost normal for the rest of the holiday however i felt my symptons come back more once i was home, I've been home for 3 weeks now.
Waffalobill kieran03144
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I been to VRT a few times. 3 moths worth each time. First therapist I had sucked. Made it worse. Second time was 3 months lady was great. Lucked out. She is a sufferer as well. Knew exactly what I was describing and how to help. But they bounce people around so much I don't think I will be able to get in to see her. I hate the thought of a therapist who has no clue what they are doing. I know where she is now. But it's a pretty far drive and she's not listed as a VRT no more. She does yoga and Pilates. Lol
Waffalobill kieran03144
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Waffalobill kieran03144
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Doc talked to me briefly on the phone. I asked about MRI. She said she took a quick look at the results. Showed no tumors or anything like that. PT called me. Had a cancelation. Went this afternoon. She said I have something going on. She's very very curious to know what VNG shows. Says I may have more than one thing going on. Why it's diff this time.
Waffalobill
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patty818 kieran03144
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I'm so sorry you going throgh this, your so young and I can understand it's hard watching others to normal and missing out on things with your friends.
I don't have VN but I migraine associated vertigo. It's a very hard disorder to live with.
It sounds like your seeing a doc, have they offered you ant meds? I don't know what meds work with this but maybe there is something. I don't take meds, my anxiety about its to high.
You are right the VRT helps but as you've oribably read here there are good days and bad. I know for me o can feel good for a coupe of days but then feels like taking 10 steps back when what I thought was me getting well, but it's not gone. Depression and frustration as well as anxiety is a big part of this. I guess being great fun for the good days and resting on the bad is what we do. But always have hope that this will go away. I hope you feel better and I wish I could stop it all for you.
kieran03144 patty818
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Thank you and my gp gave me some betahystamine i think when i first had the symptoms only to then be told by a vrt specialist that taking that is the worst thing you can do so medication is something I am now avoiding, thank you Patty I appreciate that and I wish you all the best with your own recovery, keep me posted with your progress if you can!
melody08508 kieran03144
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Hey Kieran :-) I'm 28 yrs old and have had VN for 4.5 months. I'm definitely a lot better than that day it started but like u I still have ups and downs. I went to the movies last week with a girlfriend and was so scared I'd get dizzy but I didn't! I think sometimes we need to push ourselves a little bit. Go out and have a laugh with ur friends. Even if u only last an hour, next time u May last longer. Don't let the illness rule ur life, u rule IT!! Try to not get jealous although I no it's hard. I watch people out for lunch laughing away and I am so sad that I used to be just like that and now I sit in fear of the "what ifs". But this illness has taught me that life is short. Health should never be taken for granted. Ur young, u will beat this! I'd love to talk to u as I also feel alone sometimes. Feel free to private message me if u like :-)
kieran03144 melody08508
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Hey Melody,
That's great to hear that you're on the mend! Everything you're saying I can relate to so much it's mad! Thanks for the reply I really appreciate it and I will private message you!
jennifer_08036 kieran03144
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It will be 6 months for me also in a few days and I'm only 23. It has been the worst 6 months of my life. For me, it was a sudden intense head rush of dizziness and I've been left in a constant state of swaying, heavy head, lightheaded, tinnitus, visual issues, which of course has lead to severe anxiety. It has not gotten better for me yet but I am determined to fight this. Any time you need to talk message me!
Waffalobill jennifer_08036
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It's also tough cause when it hits your first thought is a docs office,hospital, etc. After a few visits you begin to realize they can't help. Time is about it. After a bit of rehab. Finding out what helps and what hurts you learn to live with it. They can help with the anxiety from it. If needed talk to them about that. It makes the rest a bit easier. Enjoy the good days. Deal with the not so good ones as they arise.
kieran03144 jennifer_08036
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Hey Jennifer, have you tried VRT? Even though i still have my bad days and have a long way to go, i still feel it done wonders for me. I didnt start VRT till about 4 months in as my gp wouldnt refer me even when i asked so i had to do my own research but it's definitely worth a try! I will drop you a message, its great to have you guys to talk to! Thanks for the reply!
kieran03144 Waffalobill
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Hey, You're right their really isnt much they can do. After seeing a vrt specialist for the very first time i realised that my gp had completely misdiagnosed my vertigo. Time is a healer in this case and it seems to vary from person to person. My dad has had vertigo which only lasted him two weeks with no vrt, which goes to show that everyones different. Thanks for the advice and the quick response!
Waffalobill kieran03144
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My parents divorced when I was 5 . Now I am 53. Birthday was monday. Spent it in a ENT office dizzy. After I spent my life's savings on docs and hospital visits I found out it runs in my dad's side of the family. Grandmother had it. Dad had it. Great grandfather, several cousins, etc. Years ago Gp told me was bppv. But it seems to be more. Some of the symptoms just don't fit no more. It's much worse and the vertigo spells more frequent. I have had several in the past 3 weeks. It's either got into something else or gearing up for a bad spin. Trying to head it off at the pass. Lol.
melody08508 Waffalobill
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Waffalobill melody08508
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melody08508 Waffalobill
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Yes I was told menieres is what they call it when they don't know what's wrong! I read 80% of people can manage it if they watch their diet. Limit salt etc.
Waffalobill melody08508
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No salt,caffeine,chocolate, etc
Still jumps me whenever. Lol. Haven't drank anything but water for decades. Haven't touched salt in decades either. Like a dentist . When you have a cavity he blames it on everything. I have been told limit salt by 10 people in 2 weeks. When I say I never use it they don't know what to say.
Waffalobill melody08508
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melody08508 Waffalobill
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Yea I'm stumped!! I hope u find the help u need :-(
Waffalobill melody08508
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dana25464 Waffalobill
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kim34950 jennifer_08036
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