I have just been diagnosed with vascular dementia

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Hi! everyone

I have just been diagnosed, I have had a few TIA's (mini strokes) and when I went to the stroke clinic in Dec 2014 the consultant said he wanted me to have an MRI scan, I went for the results early January & the doc said I had white matter disease caused by the strokes.

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    I have been referred to the memory clinic for further evaluation. I am TERRIFIED the word dementia puts the fear of god in me. I had a full thyroidectomy May 2013 and most of the supplements mentioned in the link I already have but stopped taking them when I had my thyroid removed which I now realise was a big mistake. The supplements are as follows:-

    B12, D3, Oregano oil capsules, kelp tablets, I also use Iodised salt for seasoning & sweetners instead of sugar, are all these okay to start taking again?

    I am having short term memory problems & unsteadyness. I have also had a lot of stress this last 12 months & thought my memory problems were down to the stress I have been under.

     

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    • Posted

      Dear Hilary

      I am Margarets Husband my wife as now had Alzheimers for over 5 years. we have had our problems, but her quality of life is good.

      Margaret and I are commited Christians, and our trust is in Jesus.

      we do not worry about our lives, what ever will be will be.

      We do pray that all goes well for you. God Bless

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    • Posted

      So are you memory problems related to your thyroid problems.  My wife is experiencing memory problems.  She has had low thyroid since about 1978.  She had an MRI and a EEG.  Nothing showed up on these.
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    • Posted

      Hi! Alan, No my thyroid was the first thing that was checked & FT4 & FT3 where within range & I did have problems with my memory when I was hypothyroid but improved vastly when my consultant/endo  put me on T3 replacement therapy as well as T4 medication in fact everything improved including my weight which had increased by 2 stones but went back to normal. I had an MRI scan which showed that I had brain damage which he said was caused by the strokes & he said he thought I had been having small undetected strokes as well as I had only had two documented strokes (TIA's) it was the stroke clinic consultant that said I had Vascular Dementia and he has referred me to the Memory Clinic for tests. It is the waiting that is getting to me and my GP is not forthcoming with any information and has been of no use whatsoever. 

      Hilary x

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    • Posted

      Hi Hilary, there is a difference between TIA (event similar to stroke with no permanent damage) and small stroke (permanent damage). It is possible to have small strokes without even noticing it or TIA. Having TIA increases the risk of strokes and mini strokes increase chance of developing dimentia

      About your question, keep away from sweeteners. They are as much poison for you as the sugar. Do not eat anything sweet at all, except fruits and berries. Just learn living without sugar. I promise after a while your taste changes, and you will feel you are noticing more taste than before in ordinary things. Most people are sugar addicted without even knowing it, and replacing it with sweetners are proven bad for you. Everything from aspartam that is cancerogenic to others that "only" give you diabetes. There are scientist believing alzheimer is a type of diabetes, so there you have the connection. You get brain fog using sweets, you can see this even in healthy people.

      Your next supplement is D3. Use only natural D3, not the pharmateucal ones made from hard calcium. Add vitamin K and magnesium. This is because D3 increases your calcium uptake, and if you don't have enough of Vitamin K or magnesium levels you may end up clogging up your arteries,and specially for someone that has stroke problem, that is bad. magnesium is not taken up from food, use magnesium bath. vitamin K, you can get it from parsley naturally. Vitamin D3, you can get it from direct sunshine, your skin will produce it but you would have to be under the sun often.

      salt, you can buy natural salt with kelp, the natural salt has many minerals and trace materials that your body needs, and kelp has the iodine, to avoid both chemical salt and iodine that do not have the benefits of their natural equivalence 

      if you have not heard it, there is an injection therapy called cerebrolysin for vascular dimentia which is reported to be powerful. The same company also produces cebrium that can be taken orally, but is not as powerful

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    • Posted

      oops remove the line saying "Use only natural D3, not the pharmateucal ones made from hard calcium" I meant calcium not d3. calcium usually is taken with d3 and is often prescribed women to prevent osteoprosis.
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    • Posted

      WoW! Thank You AFW for all that information I have been using iodised salt for ages as that was good for thyroid and also D3, B12 again for my thyroid. The doctor at the Memory Clinic suggested fish oil which I am now taking, I also took kelp tablets for my thyroid but stopped taking them when I had my thyroidectomy but carried on with the D3 & B12 as I had blood tests which showed a deficiency in both.

      Thank You! again your advice is most appreciated.

      kind regards

      Hilary xx

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    • Posted

      Forgot t mention they think I have been having a lot of mini strokes that have been going unnoticed that has caused the damage.
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  • Posted

    I am sorry to hear this, it sounds awful sad
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    • Posted

      Thank You! Sara812, I am okay at the moment as I haven't a lot of problems but I am so, so frightened x
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    • Posted

      I understand the stress and fright you are going through. I have been there. Take each day as it comes and do not try to project what will happen tomorrow, Remember for some people tomorrow never comes. I wish you well. 
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    • Posted

      Thanks Larkie It is the not knowing for sure and lack of information plus the waiting to get an appointement for the memory clinic  that is really getting to me.

      Hilary x 

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  • Posted

    Hello Hilary, I hope you don't mind me butting in.. My 83 year old Nan has recently been disgnosed with Vascular Dementia, only the Mri shows a shrinkage of the brain which is expected to be seen at this mature age, no actual signs of brain damage though?? I'm curious, how are you now? How'd it go at the memory clinic? All the best,xx
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    • Posted

      Hi Jazmin I went to the memory clinic had the tests and did quite well 93/100 the doctor said that I have MCI (mild cognitive impairment) and he kept stressing I was only one step away from dementia. I have to socialise more & start going out even if it's only for a drive & to excersise my brain which I do anyway, I do a crossword at night to help me sleep I always have. The only problem with his suggestions about socilaising which is difficult for me as I have other medical problems that more or less prevent this BUT I have decided I am going to give it a go and have offered my services to Age UK (Dementia) and have been invited to a coffee morning to meet everyone and I will be showing them how to make their own greeting cards etc, as I used to do a lot of crafting at home and have taken it up again and I have even been selling my designs on ebay. It has been one wake up call that I can't ignore. The doctor said if I try & cut out my stress levels and don't have anymore strokes then I should be okay... I feel one lucky person to be given a second chance.. Thank you so much for asking about me I truly appreciate it & hope your Nan is keeping okay & wish you & your nan the VERY BEST!!

      Thank You!

      Hilary xx

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    • Posted

      Besides of the Omega 3s that are very good for the brain, vitamins, etc, have you heard of tese 2 things: 

      1) phosphatidylserine;

      2) alpha lipoic acid (ALA)?

      XX

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