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I have LS and HSV2…

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linda94703
linda94703

I have LS and the Herpe virus 2, can anyone tell me what protocol you have been given and whether it is working well. I have heard the Clobetasol does not work well with the herpe simplex...help please...

0 likes, 33 replies

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  • mary_lou60460
    mary_lou60460 linda94703

    Posted

    Hi Linda, 

    I also have HVS2 and LS. Ive had LS for 21 years. This past January i got diagnosed with HVS2. I actually thought i was having a LS flare up, i used the Clobetasol and omg i was on fire, i couldnt wash it off fast enough. I am lucky and dont have many flare ups with my LS. For my HVS2 if i have an outbreak i take  my anti viral, i take vitamins, i take baking soda baths, try and limit my stress, which isnt easy, i also use coconut oil for my LS and HVS2. 

    • linda94703
      linda94703 mary_lou60460

      Posted

      I am so sorry for your pain with it. I am hoping I won’t start with an outbreak but feel an itch sometimes. Are you putting the Clob on the inside and not the outer skin? So it sounds like your doc gave you the same treatment with or without the HSV2...thank you for replying. 
    • mary_lou60460
      mary_lou60460 linda94703

      Posted

      Thank you Linda,

      I use the Clob on my vulva mainly. But I've had LS for so long and have managed it well. This Hvs2 is devestating, physically and mentally.

    • linda94703
      linda94703 mary_lou60460

      Posted

      yes it is....I have been rubbing the Clob on the outer part of the Labia Majora, should I rub it lower?
    • mary_lou60460
      mary_lou60460 linda94703

      Posted

      I put my Clob where the doctor directed me, did your doctor give you instructions?
    • linda94703
      linda94703 mary_lou60460

      Posted

      Yes, after what seems like 7 weeks this thing is not stopping irritating me daily. I can’t stand the discomfort especially to the upper areas. When I walk feels like sandpaper up there...thx Mary Lou...
  • martyanner
    martyanner linda94703

    Posted

    I'm very new here and not an expert in anything.  But I do have some knowledge on some things.  So what came to mind when you said Herpes is that a relative has it and his wife gives him L-lysine everyday.  Maybe do some research on that.  Google lysine and herpes.  Hope this helps a bit

     

  • heather63700
    heather63700 linda94703

    Posted

    I also was diagnosed hsv2. I think I contracted hsv2 and then developed LS. I think the virus sent my immune system into over drive. FYI. I have never to my knowledge had an outbreak. And I used clobetasol ointment twice a week. I followed dr. Goldsteins protocol. Very important. Google him. You must use the ointment. By lichen is in remission.  Clobetasol calms the immune system so some people can get ob’s. It has never caused me to have one. 
    • mary_lou60460
      mary_lou60460 heather63700

      Posted

      I will check him out also, thank you for that. To my understanding, ls is an auto immune disease. My doctor said there are factors they think causes it, but no one knows for sure, and unfortunately no cure. Even babies can get it. I thought I had a yeast infection, but after biopsy it was confirmed ls.
    • linda94703
      linda94703 mary_lou60460

      Posted

      They classify it as autoimmune due to your body attacking its own tissues...lots of theories of what triggers it but none are clear cut. I look back and can think of many things that they list as possible triggers...
    • linda94703
      linda94703 heather63700

      Posted

      I am still using it twice a day because I am miserable...when will it settle down? This has been weeks...
    • linda94703
      linda94703 mary_lou60460

      Posted

      What is an OB Mary Loo? Dr. testing me physically and said I have Vulvadynia...I had pain as soon as she touched the tissue...hard ot believe I was great just 2 months ago..
    • mary_lou60460
      mary_lou60460 linda94703

      Posted

      I'm so sorry to hear that Linda. Its difficult enough without something else! OB is out break from the HVS2. So how is the doctor treating you now?

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