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I have LS and use Dermovate and Hydromol which keeps me itch free

Posted , 6 users are following.

Holiday_girl
Holiday_girl

But I have noticed I keep getting bruises on the top of my leg they don't hurt and I haven't knocked myself, I also take tablets for under active thyroid and statins. Has anyone had this happen only overheard someone talking about a lady who has cancer and had bruises on her legs and was told this can be a sign of it. Should I mention it to my doctor ?

0 likes, 35 replies

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  • kathleen65757
    kathleen65757 Holiday_girl

    Posted

    Yes mention it but I would not jump to any conclusions. Some people bruise easily! Your LS is under control? Who looks after it for you?
    • Holiday_girl
      Holiday_girl kathleen65757

      Posted

      I was diagnosed at the hospital when I went for investigation cos smear test kept coming back not clear was 69 at the time. As soon as the lady looked at me to do a more detail smear test she said you have  Leachen Sclerosis didn't know what she was talking about but got me an urgent appointment with a consultant who confirmed it straight away but arranged a biopsy to make sure which came back positive. I have to go back to hospital in September but till then I get repeat meds from my doctor who said I should have told him my problem but I just thought it old age cos my mum was always buying Sudacream to put down below so she may have had it as well. I suffered itchiness for 12 years but now feel fine. I will talk to doctor about bruises but realise he has put me on a coarse of iron tablets so they may be the culprit. Many thanks for replying.
  • kate207
    kate207 Holiday_girl

    Posted

    I don't know if this what you mean by bruises, but when I started on the dermovate I was over-enthusiastic in applying it, and since I was sleeping without knickers it would migrate to the inner tops of my thighs in the night - the result was patches of red, bruise like skin where the dermovate had damaged it.  This happened within two weeks of starting treatment.  I cut back on the amount of cream (no-one had really explained how much to use), made sure it was rubbed in and absorbed and went back to wearing underwear at night. The 'bruises' cleared up fairly quickly.
    • Holiday_girl
      Holiday_girl kate207

      Posted

      Thanks Kate I don't use much only a tiny bit about twice a week and I don't wear knickers either so maybe that is the problem. Going to try to see doctor but normally have to wait and the bruises will probably be gone by then will post on here what he says .
  • marey
    marey Holiday_girl

    Posted

    very concerned to hear you are taking statins H. do you have a coronary condition? it is very rare that there is a genuine need to take statins. COQ10 will generally remove the symptoms caused ...but in any event its wise to take Q10 as well - if statins are indicated. it is a fabulous anti-oxidant. have a chat with your GP about this point. you do need to be aware that GP s have incentives to prescribe statins using people as drug sinks. please don't be one of them! be careful with iron too. see if you can get ferritins or the precursors of iron in the form of 'floravital'...available in europe...i don't know where you're based? good luck. please take care. LS is an autoimmune condition which we're all dealing with diet and lifestyle help and cure is possible but takes work...there's great advice around this site x 
  • Chrisy
    Chrisy Holiday_girl

    Posted

    Hi Holiday girl,  You carry on with what you are doing!!   Just got back from holiday and trying to catch up with everything on the site as I didn't take my computer with me and my phone is useless.  I think we should all do what we feel is right for us, after all we are the ones who are suffering.  I am fed up tonight reading people who are telling others what to do and not do.  You can only tell others what you are doing and give some advice that is general but no one should interfere with doctors advice or advise people to not do something that may or not help them.  Statins have a proven track record so if you want to take them carry on.  My husband has been on them for 24 years due to an inherited angina condition.   He is still only on them and no other heart medication.   They have kept him fit.  I take them having had an Angina attack.  I now never have to use my GTN Spray for it as my cholesterol is now really good level and my angina reduced.  I know diet helps but my sister died aged 56 from a coronary because she wouldn't take any medication and this may of helped her.  Follow your heart.  Check out your bruises with your GP if you are worried, they may be linked. Bearing in mind that LS can be a precursor to cancer it seems wise to check this out. Having said that it is incredibly rare to develop cancer.  We have chatted before about our LS and both you and I now control our LS quite well.  Good luck x
    • Holiday_girl
      Holiday_girl Chrisy

      Posted

      Thanks for your reply. I to get fed up with people thinking they know everything. I don't take the statins every night just occasionally but it keeps my cholesterol fine. Still only using Dermovate maybe once or twice a fortnight just to keep things fine, wash with Hydramol every day down below and then spread some on after drying which touch wood has kept me itch free since beginning of year after 12 years of distress . Hope your keeping ok as well x
    • marey
      marey Chrisy

      Posted

      Phew gosh that's pretty strong chrisy ...and unexpected. How have I offended you?

      Of course statins are definely essential to some. I would certainly not interfer with an accurate diagnosis but it would be remiss of me to remain silent in an instance of abuse. 

    • marey
      marey Holiday_girl

      Posted

      I am so sorry for my intervention which you clearly did not appreciate. Please forgive me!

      I do have some information to share should you wish to enquire but don't wish to impose. I am so sorry again. Please accept my apology.

    • marey
      marey Chrisy

      Posted

      I reallly disagree. I also cannot remain silent .If we share conventional medical care then we are consenting to commentary. Likewise explorations into alternatives are equally subject to comment and dialogue. 

      Statins are controversial.    They deplete ATP. Co-enzyme Q 10 can replace their use and occurs naturally. Even if statin users take Q10, in addition, the benefits are reportedly considerable and are protective.  One's GP (MD) would surely be only too pleased to discuss and monitor the introduction of a vitamin which statins deplete from the body otherwise. The benefits include increased energy, blood flow to the brain ....after speaking to your GP...try it at least!! What have you got to lose? It can do no harm but there is a HUGE amount of benefit in terms of the energy increase to gain....just give it a few weeks to take effect. Enjoy!

      love and best wishes marey 

    • Chrisy
      Chrisy marey

      Posted

      Hi Marey,  Didn't mean to offend you either.
    • marey
      marey Chrisy

      Posted

      o h ...thanks chrisy...means a lot! 

      Well I think you make some valid points....it is probably much more tactful and skillful to refer to one's own material...also to keep things general I note you suggest too.

      So I do acknowledge your suggestions even though I disagree.

      The thing is that I am absolutely bursting with information that I'd like to share and I believe that actually people here are searching...however many of you have perhaps been meeting here a while...I'm relatively new and perhaps I've rather barged in ? I apologise for any perceived lack of restraint and I will try to respond rather than to initiate more appropriately. So thank you for your feed back.

      There are three depletions which occur when taking statins which can be addressed ...I'm happy to pass on more info to anyone interested. How's that Chrisy? More acceptable? Thank you for the dressing down I realise you were being protective of your friend and I was completely tactless!! I do hope that in the course of time she will accept my apology.

      Loads of love marey 

  • Chrisy
    Chrisy Holiday_girl

    Posted

    Hi yes, feeling fine and managed an itch/sore free holiday in Gran Canaria.  Have been itch free for long time now.  So long I have forgotten.  No good with the bleach free incontinence towels unfortunately (cardboard).  But keeping clean and moisturised definately works. I've never had the TV people get back to me about doing a piece on LS with Loose women or Gloria Huniford on TV to advertise our predicamens.  I am starting to think we should all write to a magazine each to see if they could do a piece on it.  Maybe it needs to be in cognito for others to get involved.  I do understand it is embarrassing.

    I hope you get an answer to your bruises,  I had a scare when I developed a black lump, it turned out to be a blood vessel that had blead under the skin which is like a bruise.  Had it removed and checked to be sure.

    • Holiday_girl
      Holiday_girl Chrisy

      Posted

      Hope you had a nice holiday I am off to Gran Canaria on Monday for 3 weeks where did you stay. I have been going for the last 16 years as have a timeshare there which we love. Went to see doc about bruises and he said didn't think any problem but as I have got a blood test when I come home he has added it to that. They have gone now so hope they stay away while I sunbathe. Glad you have been itch free for many years. Good idea about writing to magazines will think about it when back from holiday. If your in England bet your missing the sun .
    • marey
      marey Holiday_girl

      Posted

      so glad to hear the bruises have gone holiday....that's wonderful news!

      have a great time and a well deserved rest in Gran Canaria.

       

    • marey
      marey Chrisy

      Posted

      Great idea to promote awareness chrisy...thanks for that!

       

    • Chrisy
      Chrisy Holiday_girl

      Posted

      Stayed at a fab hotel called the San Augustin Beach Club.  Great food, superb staff.  Total chill out.  Hope you enjoy your holiday too.  I can see why your tag is holiday girl.  You seem to be always on hols.  Lucky you!! Not really missing the sun as we spent a lot of time touring the island and had quite a lot of cloud and rain, but it was warm on the south coast where we stayed. 

      Glad you are having the bruises checked out.  Keep us up to date.  I'm busy at mo trying to catch up on my paperwork. Just checking the site out quickly to keep in touch.  Hope the sun does you good over there.

    • Holiday_girl
      Holiday_girl Chrisy

      Posted

      Thanks Chrisy I know where you stayed we have timeshare at Palm Oasis in   Sonnenland. Bruises are ok but stood on a pin on Monday and has broken off in my heel. Tried to take it out in AE but couldn't then said I would have to have op then decided to leave it to make its own way out. Hope its ok while away but at least I am itch free which is great taking Dermivate and Hydrmol with me just to make sure. Take care Carol
    • Chrisy
      Chrisy Holiday_girl

      Posted

      Ouch!  That must be painful.  I hope it does not play up while you are away.  How are you walking with that in your heel?

      Keep on with the treatment.   I  actually found my Ls was better when on the island, not that it has been bad for a while.  Probably due to the rest and chill we had.  The fact I always had time to look after myself.

      Have a brilliant time over there. The weather should be fab by now. It was getting better towards the end of my holiday.

       

    • Holiday_girl
      Holiday_girl Chrisy

      Posted

      It's getting easier to walk now the pin went in the back of the heel not underneath but where they cut it was sore .Wish they had left it alone. Our friends are out there now and weather is lovely just hope it stays that way. Speak when I get back. Take care and hope you stay itch free as well Carol
    • Chrisy
      Chrisy Holiday_girl

      Posted

      Glad you can walk.  This proves the point that we have to be careful what we say to people on this site. It didn't occur to me that you meant the pin went in the back of your heel when you said you walked on it.  I presumed when you said that it went into your sole.  Glad I was wrong. I had glass in my arm once that came out itself some months later.  I was told the body will eject some objects in time.  I hope you do with the pin. Speak after your hols.  Have a fab time
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