I have pain everyday, does anyone else have symptoms everyday?

I have just started a pain management course it helps alot to understand and deal with it but yes you get bad days and worse days seems to be the factor for us all.

At the moment, yes.

I have been managing it for a few yes. I'm 71. Recently it is very bad.

I am able to manage each day care full but at moment almost bedbound. I believe it comes and goes.

Hope this helps you to.look forward to some painfree time.

I was diagnosed about 8 months ago, I have pain 24/7.I'm still trying to figure this out.

Hi Mark, I too have just had bad days!! I was diagnosed in Dec last year but have had the constant pain and stiffness for approx 8 months. Unbearable some days where you are in tears with the pain. You are not alone in this battle against fibromyalgia. So glad this forum is available as you start to think you're going mad with the strange symptoms that go with the pain such as a feeling as if you've burnt your skin, feeling as if cold water is being poured on your legs it's all so strange.

You are not alone. I have been diagnosed to have fibromyalgia about ten years ago (but I still could not believe this result now). I have weak and sore muscles symmetrically over the entire body almost every day. It makes me to felt extreme fatigue. The most of time I have not be able to handle daily regular activities. It drove me into a deep depression; from time to time I thought that I really do not want to live like this way. But I'm still here.

Hi mark 

First off YES men can get fibromyalgia and second every body is different. Some people have a mild case of fibromyalgia and some like me have a very  severe case which keeps me in pain and fatigued 24/7 . I wake with pain and fall asleep with it. Now I don’t know what you have tried physical therapy ,acupuncture,trigger point injections,timeric which a natural herb 🌿 to take or meds . Unfortunately this is what we deal with. I just wanted to let you know that you are not alone and keep coming to this site. And be encouraged big hugs 🤗 to you.

I have read about many, many drugs prescribed for the pain and depression but I’ve also read the Marijuana is effective at treating allot at once successfully. Anyone here had success with it?

Unfortunately FMS is a painful condition that comes to visit and decides to stay a lifetime. It goes from tolerable pain one day to intolerable pain the next. Pain with FMS changes from one day to the next (just that fast) and with no understandable explanation. I thought at first it had to do to the previous day's activities but now I realize the inconsistency in that theory. .And exercise is important to us FMS suffering pain patients as conditions can get worse without it. But exercise causes pain in FMS patient;s; often lasting days after say just pulling a few weeds. 

I truly hate telling you that if you have FMS you will have to deal with pain daily for rest of your life. It did help me understand my pain by keeping a diary of activities, stress, emotional upsets etc etc daily then going back to see if pain was more or less connected to the previous  day on consistent basis. And if stress did more than pulling weeds or if emotional upset hit harder than stress or activity..... but still we want to live normally. If I pick up my 26 lb dog I can have severe pain that night and going into next day  but then again the pain won't be worse than before I picked up the dog. And I figure I cheated FMS out of a bad day.

But other than the diary the only suggestion I can give is work daily to keep a positive attitude and try to keep depressions at bay. And don't blame every pain on FMS! Keep in touch with your doctor to make sure something else hasn't developed. Such as not all chest pain is FMS it could be heart pain. And don't let the doctor's blame everything on FMS as that's a good way for them to get by with "lazy" behavior. Good fortune and prayers to fellow FMS sufferer.

Hi mark65624, ive had fibro for about 5 years. I've found firstly you need an amazing doc. I broke my back 6 years ago which then I went onto develop fibromyalgia. My doctor has me on gabepentin to stop the nerve receptors sending pain message to my brain. Baclofen to stop the muscle spasms and then you're usual paracetamol and tramadol. It does seem like I'm taking a cocktail everyday but the result has been that I've been able to hold down my 12hr a week job and live a relatively "normal" life. It's very difficult with fibro as the pain along with my disability means the pain is 24/7 and as has already been said everyone is different and reacts differently to medications and therapies.

I have found a wonderful woman on the internet she does cocolime fitness. She has fibromyalgia but is also a personal trainer so she knows exactly what we go through. She's so positive and does some lovely stretches (unfortunately that's all I can do) but she does a lot of very very low impact workouts if you feel you can do. I know not everyone can do it.

If I can help anyone or encourage anyone I'd love to try and help. At the end of the day the only ones who understand how fibro feels are the ones that struggle with it day in day out.

Hi Mark, 

Sorry to disappoint but unfortunately fibro Illness does not come and go 😞 wish it did. 

I’m 33 years old and iv had fibro for 3 years now. I am in pain every single day. The “good days” I have shooting pains in my legs, arms that come and go, along with a dull pain in my shoulders and back. 

On my bad days “Flare up” I have extreme pain in every inch of my body and it’s random weird pain sensations no 2 pains are the same. From shocks, shooting, stabbing, dull aching pains in my whole body. The fatigue is terrible and frustrating. 

The difference between my good and bad days is that on my “good” days I can deal with the pain and get on with things. My “bad” days I’m in tears and no matter what I can’t do a single thing only go to bed. My bad days can last days. I’m going through a flare for 6 days now and I had to get a cert for the week off work. 

I would advise you to find a balance (which takes months even years) to help you deal with your illness rather than trying to find a cure because, unfortunately to us there is no such thing as a cure. Therefore we need to get to know our bodies and our limitations and try to listen to our bodies when it’s telling you to slow down or stop. 

Most importantly look after your mental health because if you don’t you won’t cope with this illness. Trust me this illness tries to take over every bit of your life but you need to stand up to it and tell the illness to feck off that your running your life not the “fibro” 

My recommendations are

1. Learn to deal with fibromyalgia mentally before doing anything else. Cause there is no cure. 

2. Yoga helps with your physical health and mental health. (I do a few stretches and the rest breathing techniques and relaxation) look for a place locally you will be surprised how many people go that are just like us. You will find a common long term supporter there) 

3. CBD oil (contains a little cannibis but no stone off it) it tastes absolutely terrible but if you can get past that it actually works (to a certain degree) you can also buy it in Vape form with different flavors. Haven’t tried that yet but I will on pay day. 

4. Try triple Omega 3,6,9 it helps a bit for concentration (fibro fog) 

I really wish I had better news but unfortunately not. I keep telling myself that I’m not going to die from this unless I allow it to take over my life (mentally) I really struggled for 2 years trying to come to terms with this Illness but I’m trying to stay positive or else I’ll roll over and die. 

Hope this helps hun. Chin up you can do this xx

Gentle hugs

Victoria 

This is in ref. to Victoria's post 

Not 100% true but mostly accurate. I have been sick with Fibro since I was in my mid/late mid 20's. I am now 42. I actually got better for a little over 2 years after about 3 years of being sick. I got up to about 95% normal again. I went back to the same job, abused my body and felt something just give inside me. I went home, got blood work drawn, tried to go back and help and was only there 10 minutes before I had to leave. I have been sick since. I do not ever foresee another "relapse" and I dont know what caused the first. My advice, if you are lucky enough to have one do NOT over work yourself no matter how healthy you think you are.

I also completely disagree with yoga or any form of exercise. It makes my condition MUCH worse. Live your life the best way you can, treat the mental stuff and whatever else you can with meds but you will end up having to deal with the rest.