I have today been prescribed Bu Tran patches

Posted , 11 users are following.

Having just been given the patches, 5mg, and now read all the feedback shown on this site I am rather concerned about using them.  I have lived in pain for eight months.  An MRI has shown no reason why I am in pain and my left leg is getting worse.  My foot goes numb and at times I have pins and needles in the toes and foot.  The top of my leg and lower back is in constant pain and it takes a while to get going in a morning.  I think eventually a steroid injection is going to be tried.  I am told that if I had got sciatica then it would have shown in the MRI, yet the symptoms seem the same.  Worrying now as to what can be wrong and even more concerned about these patches!  I am 64 years old, very active, swim every week and walk most days. I do excercises to get motivated in a morning.  Have tried just about everything possible to try and help myself, even acupuncture, but now at a loss as to what to do.  Have seen a consultant who advises there is nothing he can do.  How do you explain that lack of sleep and constant pain drags you down to the point you feel like life is unbearable.  I am no whimp but my life is changing rapidly and stopping me doing lots of things.  Would appreciate anyone giving feedback, particularly about the use of the patches.

3 likes, 28 replies

28 Replies

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  • Posted

    Hi Pitts,

    It could have been me writing your letter, sounds so similiar. I too had a very active lifestyle, walking, gym etc. and now the only relief I have is when sitting down. I too have just been prescribed these BuTrans 5mg. patches  and am so reluctant and most concerned about starting them. Would be very interested to know how you are getting on.

    • Posted

      Amber, please read my last comment to Helen before you make a decision about using the patches.  We all have to make our own choices and you must decide for yourself. My experience is not a very nice one but it does not mean it would necessarily happen to you or anyone else, we are all different. I hope you find something to assist you very soon.
  • Posted

    Hi Pitts,

    Thank you so much for your reply and referring me to your reply to Helen. I'm so sorry you have had such a nasty reaction - this is what I have been concerned about. As yet I have not used the patch and after what I read I've made a decision not to. My G.P has recently retired and I know this current one will not be amused that I haven't taken their advice on this matter. I had been prescribed Co-Codamol 30/500 Tablets and felt sick with them and now I'm refusing to try these. At a loss to know what to do, but again thank you for your reply and hope you get some relief very soon..

  • Posted

    hi Pitts. i've just read ur brief post on i whay i presume is leg pain, slow getting started in the am & intermittent pins/needless with numbness in foot/toes. this set of symptoms, especially the latter ones, reminds me of b12 deficiency. it's got that kind of picture and won't show up on an MRI untill there's marked neurological symptoms.

    i suggest u ask Doc to have ur b12 levels checked (if not already done) and also to have ur Vitamin D levels checked too. the latter can cause a lot of bone pain. unfortunately, b12 has beocme the an ngelected hidden disease.

    best wishes

    caitlin.

  • Posted

    Reading your post, and the type of pain you are in is very similar to my own. The physio says it's my spine and referred pain, my GP agrees, but says am MRI is a waste of time because I'm 63, have MS and use a wheelchair, that surgery would never be an option..even if needed. I've had co-codamol, Tramadol, and now 5mg slow release morphine x twice daily. Nothing has even taken the edge from the pain. First thing in the morning the pain is extreme. Going to see GP again tomorrow, but am scared that this is how my life/existance will be. Feel useless and hopeless. I so hope that by now you have had some positive results with your pain relief.
    • Posted

      Hi Cat,

      I'm so sorry for what youre going through.  I too have bee in chronic pain for 11 years, prescribed norco which masked the pain. Been off it for 4 months now and my pain was no worse. Not sure why Specialist put me on the patch...which I'm going off of with his help. I understand about feeling useless and hopeless, but don't give up. After 11 years of debilitating migraines and full body pain, including sciatica, my new physician realized that I'm hypoglycemic and carbs were making me worse. Two months on HG diet, the pain is reduced by at least half.  It has even returned my energy. My point is that around the corner could be something to help you. Dont give up fighting or hoping

       

  • Posted

    Hi Pitts,

     I've been on 5 mg for a month recently raised to 7.5 for my fibromyalgia pain.  It is helping and I've had no bad side effects but I just read the pamphlet and it says no hot tubs or heating pads and the patch can only stay at one site, arm, side, back (2 different places) for no more than 7 days in one month.  I'd been alternating only 2 places, and live with my heating pad and for my hot tub, so I may give it up for them after talking to my Pain Specialist. He took me off Norco because it's an opoid so I was shocked to see that the pain patch is as well. It pays to read the pamphlet with the medicine!   Good luck to you 

  • Posted

    Hello Pitts. I have had chronic pain in my back, neck and legs, for 7 years now. I have had 4 cortisone injections and numerous concoctions of pills which I have had to discontinue due  bad allergic reactions ( sinus ).After 5 years of pushing for a scan I have been told I have degenerative discs at top and bottom of spine. On my last consultation the consultant advised that I would be in pain for rest of my days due to nerve damage and due to problems with oral medication has now put me on the butran patch 5mcg and I feel worse than I did with the initial pain !! Nausea, constipation, dizziness and not feeling with it , to mention a few. Gp said to stick with it and wants to increase to 10mcg as it is not doing anything for the pain. I have stuck with it for 2 weeks now and I don't think I will be doing so for much longer and definitely won't be going up to 10 !! But at least I an say I tried it and to be honest my GP seemed to be very excited when I said i would try it, as I was his guinea pig !! But give it a go as ome or two said earlier you may not have the same response to it. Good luck.
    • Posted

      Hello Margaret,

      so sorry to hear what you are coping with.  You probably did not read earlier comments regarding the patches.  I was unable to tolerate for no more than 18 hours.  Have followed a lot of the advice given via this site.  a B12 deficiency blood test etc and all normal.  Now seeing my long trusted osteopath who seems to have sorted exactly where the pain is coming from.  He reckons the reason nothing showed up on the MRI is because the pain is coming from deep into my buttock and hip joint. Been three times now and not seeing him again for a month to see how I get on.  Hot showers in the mornings, exercises he has given me and ice packs in the evening.  He can see the improvement and I certainly feel we are on the right track.  All very time consuming and a slow process but happy to stick with it all.  Much better than taking any medication! Do hope you find something to improve your life very soon.

  • Posted

    Hi Pitts, sorry didn't see that lol. Sounds more like something going on in your sacroiliac joint, which is where they were injecting me a couple of times until I had the scan. I just hope your osteopath is right. It took 5 yrs to get my diagnosis right !! Well good luck , hope all works out for you.
  • Posted

    Update ... Just spoke to GP and he has talked me into sticking with butran for at least another week. When I explained about the nausea,dizzinesss and drowsiness, he actually said this was unique to me !! Can't believe that for one minute, actually states on leaflet that they are common side effects. He is giving me something for the nausea and seems convinced I will feel a lot better in time. I am not so sure but I will persevere a little longer. I know from past experience with tramodol, amitryptyline, noritriptyline and gebanthon that I am sensitive to all of those, with same side effects. So only time will tell.

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