i'm 11 yrs old and have Achalasia and find it hard to cope
Posted , 5 users are following.
it feels really good to know that i'm not alone suffering this horrible disorder.
good luck to everyone out there who are suffering Achalasia !
0 likes, 16 replies
Guest
Posted
I just wanted to say you are not alone. Keep reading the forum, I check it daily and it gives me a great satisfaction that I am not alone.
Keep smiling :D
All the best.
Guest
Posted
then again i've only had this condition for a year or so.
how long have you had it for and how do you find the strength to cope ?
Eilidh xxx
Guest
Posted
You are doing very well to go through this at 11 years old and very brave. Please keep in contact and read the forum it truely helps.
Good luck
P.s I got a date for my Hellers myotomy for 20 Jan 09.
Guest
Posted
it's funny having achalasia because i also see people who can eat perfectly as \"wierd and lucky \"! and i can't imagine what it'll be like to actually eat and swallow food again :S
i know this sounds a bit weird but do you ever bring like foamy froth up' cause this often happens to me and i dont know weather it happens to alot of people with achalasia ???
also how have you dealt with achalasia for five yaers ??
xx Eilidh
Guest
Posted
I have just had my operation, hellers myotomy.I had to blend my food to begin with but im eating most things now,except bread.(its too stodgy to swallow).Im eating less than i normally do (but thats not a bad thing cause i used to eat loads before I got this horrible condition two years ago. Im glad I had the operation although I was a bit scared.okay a lot scared about what it would be like afterwards but its okay.
.
You are very brave to be dealing with this so young but you are not alone. Take care.
p.s. your christmas dinner will taste lovely.
Guest
Posted
Sorry if I have gone into too much detail, but it would be very interesting to know if any others have the same symptoms.
northeast96
Posted
I have all the symptoms (and then some) associated with achalasia but gastroscopy and barium swallow proved negative. I now await the results of a CT scan when I will be given a further consultant appointment.
I am a 71 year old lady extremely fit (should be on a tour of South America at the moment) until July of this year when the symptoms began. I have lost over 24 pounds although I have not been weighed by the medical profession so they are obviously taking my word for it and had no advice whatsoever on how to try and stabilize my weight or a diet which would provide the necessary vitamins and minerals in order to stay reasonably healthy. I went on holiday to Kenya in September, with my GP's blessing, and although I loved seeing the animals had a really miserable time at the dining table as some meals there was nothing I could attempt without embarrassment and consequently my fellow diners must have felt uncomfortable because one of their fellow diners was unable to eat. I cannot repeat that again. I now find my way at home with the help of Complan, nutritional soups, yoghurts etc. A meal out or even meeting friends for coffee is now out and I am becoming a recluse.
My symptoms - a sensation of a lump in my chest (not the throat) actual pain when swallowing any solid food and discomfort with liquids. I have been sitting upright in bed since July and still being woken with heartburn and constant belching for 2/3 hours each night (a tip from a contributor on this site suggested taking sips of cold water and, hallelulja, this does help).
When I wake now I find I am dribbling and must have been doing so for some time as the collar and shoulder of my pyjamas are damp. I keep getting embarrassing bouts of constant dry coughing and didn't even have time to apologise to my caller on the phone the other night.
Where I go if the scan comes back negative I don't know and Christmas is now only 6 weeks away so this is filling me with dread.
There seems to be no help available and I find friends and neighbours cannot believe that I am unable to eat and they look at me in disbelief.
I am not afraid of dying but I am becoming more and more afraid of having to live the rest of my life with these symptoms.
Any help or advice would be appreciated.
Jean
Guest
Posted
Although I am not a doctor, all the symptoms you describe are classic achalasia and symptoms which I am having. I have had endoscopies and a barium swallow, which suggested achalasia but I had to have a manometry (a tube which goes down your nose and into your oesophagus to look at how your oesophagus works - not as unpleasant as it sounds) to finially confirm achalasia. May be you should suggest this to your GP?
Like many sufferers from achalasia, it does ruin your life but there is treatment out there which you can go back to a normal life. I am trying to stay positive and looking forward to my op in the new year.
I hope this helps. Good luck to you.
northeast96
Posted
Any further suggestions or help for relief of symptoms will be gladly received.
Jean
Guest
Posted
I'm awaiting my next meeting with the consultant next week, but it would have been very helpful to have been able to undertake the necessary test.
I walked out of the hospital feeling like such a failure but I'm told that this isn't something a person can steel themself against.
ellis_emmerson
Posted
r u still checking in to the site
did you get your op and how r you now.
xLMck
Posted
Coughing and dribbiling are also normal, expessially during the night when ure in bed.
I remember once i ate a pot noodle before going to my bed and when i woke up the juice was coming out of my nose. Has anyone else had this?
Xx
northeast96
Posted
jjade123
Posted
I'm awaiting my next meeting with the consultant next week, but it would have been very helpful to have been able to undertake the necessary test.
I walked out of the hospital feeling like such a failure but I'm told that this isn't something a person can steel themself against.[/quote:3e5d445dc8]
hi jamie
hope you are reading this. I have been suffering acid reflux constantly for about 13 years. Did lots of tests and the specialist told me i have sensitive oesophagus. tried so many medicine and none of them helped.
Please tell me have you got your problem fixed? If so what what kind of treatment did you get?
Guest
Posted
You must have had the op by now!
Let us know how it went and how you're doing.
There's plenty of people on here can offer advise ... you only have to ask.
Hand in there, girl!