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I'm 17 years old and 3 months ago became very ill. They tried telling me I had glandular fever so they gave me painkillers to ease my pain, the head aches were terrible, I was constantly tired I haven't had a decent nights sleep since this all started, a few weeks went by and I was getting worse I had servere back aches to the point I was bent over (still am now) I couldn't straighten my back as the pressure it put on my head was to much to handle. It would make my dizzy and light headed. They took me in to hospital and I stayed there for a week. This is when they found the syringomyelia but they said the cyst is to low to cause my problems. I suffer with head aches, back aches, neck pain, anxiety, the left side of my body completely goes numb, I never have no energy, I have fallen a couple of times because my left leg gives way and I now walk with a limp. So I went to a private doctor and he found that I had chiari but he found it on a spinal MRI and said he didn't know how bad it was.. I am now waiting till the 37th of July to see another neurologist. Now to make things worst I am now having seizures that are lasting for 10-15 minutes and I when I wake up I know nothing about?.
im sorry that was also long but it's just hard to go through on your own as no one understands what it actually feels like to live with just wondering if any one could share some information with me.
thank you, Danielle
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